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My case is unusual in as much as I was diagnosed with stage 4 prostate cancer four years ago. A bone scan identified many areas where I had bone mets, even one between my shoulder blades on my spine that looked like structural surgery was inevitable. My PSA topped 1000 and I had zero treatments of any
My case is unusual in as much as I was diagnosed with stage 4 prostate cancer four years ago. A bone scan identified many areas where I had bone mets, even one between my shoulder blades on my spine that looked like structural surgery was inevitable. My PSA topped 1000 and I had zero treatments of any
Bangkok
in
Advanced Prostate Cancer
9 months ago
IDH2 R172 Linked With Improved Survival in Myeloid Neoplasms from April 14, 2023 Hematology Advisor- More r/t AML than MPNs- look below it..
Among patients with myeloid neoplasms
including
acute myeloid leukemia (AML), IDH2 R172 mutations (mR172) appear to be linked with improved overall survival, and moreover represent a distinct clinical disease subtype, according to research published in the American Journal of Clinical Pathology
Among patients with myeloid neoplasms
including
acute myeloid leukemia (AML), IDH2 R172 mutations (mR172) appear to be linked with improved overall survival, and moreover represent a distinct clinical disease subtype, according to research published in the American Journal of Clinical Pathology
PhysAssist
in
MPN Voice
1 year ago
HRT /anti depressants
Hi to all who are going through the peri menopause it’s awful 😞. I’ve been really struggling with my anxiety and depression that I’ve had to up my dosage of Sertraline that I’ve been on for a number of years . I thought it was helping somewhat but no yesterday I had another complete meltdown and today
Hi to all who are going through the peri menopause it’s awful 😞. I’ve been really struggling with my anxiety and depression that I’ve had to up my dosage of Sertraline that I’ve been on for a number of years . I thought it was helping somewhat but no yesterday I had another complete meltdown and today
Junkjournal1
in
Menopause and Perimenopause Support
9 months ago
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Bowel irrigation (Not "colonic irrigation")
I have obstructed defecation (anismus) which has not responded to biofeedback etc. The next step is at home bowel irrigation and I am just waiting for an appointment with the bowel nurse to issue me with the equipment. It would be helpful to hear of anyone`s experience with this. I don`t know which
I have obstructed defecation (anismus) which has not responded to biofeedback etc. The next step is at home bowel irrigation and I am just waiting for an appointment with the bowel nurse to issue me with the equipment. It would be helpful to hear of anyone`s experience with this. I don`t know which
janke
in
IBS Network
1 year ago
Meds and CBT
Does anyone have any stories about how meds might of helped them with anxiety and depression, I have been on and constant up and down spiral for months, one week I might be extremely positive and confident with moments of bliss, then the next I can be rock bottom feel utterly hopeles and get paranoid
Does anyone have any stories about how meds might of helped them with anxiety and depression, I have been on and constant up and down spiral for months, one week I might be extremely positive and confident with moments of bliss, then the next I can be rock bottom feel utterly hopeles and get paranoid
Talkinghelps
in
Anxiety and Depression Support
9 months ago
End of my patience really unsure what to do feel completely alone and like nobody is listening Consultant confusing me what is wrong with me
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
LovelyLou81
in
Endometriosis UK
9 months ago
How to get bladder to hold urine again? Bladder training?
Looking for guidance from others who have had to regain bladder function. I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked urine flow due to clots, the last time being end of Jan 2023. After 20 sessions of hyperbaric oxygen
Looking for guidance from others who have had to regain bladder function. I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked urine flow due to clots, the last time being end of Jan 2023. After 20 sessions of hyperbaric oxygen
Teddy28
in
Advanced Prostate Cancer
11 months ago
If immediately stopping after two years taking Orgovyx how long before testosterone begins to rise?
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
SViking
in
Advanced Prostate Cancer
9 months ago
Traveling with supra pubic tube / catheter and urine bag - is it possible?
Looking for guidance from others who have experienced this. Briefly, I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked urine flow due to clots, the last time being end of Jan 2023. After 20 sessions of hyperbaric oxygen
Looking for guidance from others who have experienced this. Briefly, I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked urine flow due to clots, the last time being end of Jan 2023. After 20 sessions of hyperbaric oxygen
Teddy28
in
Advanced Prostate Cancer
11 months ago
dilated left ventricle informed over the phone (heart failure) 1 week ago
Hello everyone I am a 37 year old man with no signs or symptoms of any heart condition until now . aprox a month ago I was sent for a echocardiogram to check my heart (routine every 5years ) as my father has a pacemaker since the age of 50 and 5years ago had an aortic aneurysm. 5 years ago I had
Hello everyone I am a 37 year old man with no signs or symptoms of any heart condition until now . aprox a month ago I was sent for a echocardiogram to check my heart (routine every 5years ) as my father has a pacemaker since the age of 50 and 5years ago had an aortic aneurysm. 5 years ago I had
Wallewoos
in
British Heart Foundation
11 months ago
Just had Psma-pet scan... Confused
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
GSDF
in
Advanced Prostate Cancer
9 months ago
Finding Support Groups
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
gbpmdjd
in
Advanced Prostate Cancer
9 months ago
My Small PCa Cells Don't Produce PSA
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Bandit99
in
Advanced Prostate Cancer
9 months ago
Help with bloods
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
WendyW1964
in
Menopause and Perimenopause Support
9 months ago
Regulolix [Orgovyx]
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
podsart
in
Advanced Prostate Cancer
9 months ago
Tamoxifen
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
galgo
in
My Breast Cancer Community
9 months ago
I want to try SARM's-Yes or No?
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
AllenMarco
in
Advanced Prostate Cancer
9 months ago
Can orchidectomy substitute ADT/HT?
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
FMOH_N
in
Prostate Cancer Network
9 months ago
Dodged Another Bullet
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
TottenhamMan
in
Advanced Prostate Cancer
9 months ago
Far Infrared Heat Mat with Bone Mets
Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MBC with bone mets in spine. A friend let me use her mat and I found it really soothing and felt great afterwards. I would like to buy one myself but wonder if it would be OK for regular use with the bone mets, I don't want
Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MBC with bone mets in spine. A friend let me use her mat and I found it really soothing and felt great afterwards. I would like to buy one myself but wonder if it would be OK for regular use with the bone mets, I don't want
Hidden
in
SHARE Metastatic Breast Cancer
1 year ago
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