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GnRH side affects and endo pain
I have had my second monthly GnRH injection out of three that I am having but have really been struggling with menopause side affects such as hot flushes, all over aches and feeling exhausted. Has anyone else had this and did these symptoms go on their own or did you have to have HRT tablets or did anything
I have had my second monthly GnRH injection out of three that I am having but have really been struggling with menopause side affects such as hot flushes, all over aches and feeling exhausted. Has anyone else had this and did these symptoms go on their own or did you have to have HRT tablets or did anything
Luci20
in
Endometriosis UK
9 months ago
I've been prescribed Amitriptyline for pelvic pain. Has anyone had success with this medication?
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
Mindfullness4791
in
Endometriosis UK
9 months ago
Long time member advice required on recent thyroid blood test after starting HRT.
I’m just after some advice on my recent blood test I had taken myself. I know the drill no levo 24 hours before. NDT gap of 8 hours. Vitamins stoped week before My test was taken at the same time as all other blood test 7.10am. I always stick to this routine to ensure consistency. I decided to take
I’m just after some advice on my recent blood test I had taken myself. I know the drill no levo 24 hours before. NDT gap of 8 hours. Vitamins stoped week before My test was taken at the same time as all other blood test 7.10am. I always stick to this routine to ensure consistency. I decided to take
Peanut31
in
Thyroid UK
9 months ago
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The NIR project, a neuro-illumination technology to combat PD
A demonstration model shows the position of an experimental brain implant for treating Parkinson’s disease using near-infrared light, developed by the Grenoble-based research institute CEA-Leti and its partners. There have been many posts about red light therapies, but this was new to me. Others have
A demonstration model shows the position of an experimental brain implant for treating Parkinson’s disease using near-infrared light, developed by the Grenoble-based research institute CEA-Leti and its partners. There have been many posts about red light therapies, but this was new to me. Others have
Esperanto
in
Cure Parkinson's
1 year ago
Happy Thanksgiving Eve
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
dockam
in
Advanced Prostate Cancer
9 months ago
Medichecks hormone test. Any thoughts?
I’ve been on thyroid replacement for about six years now and starting to feel that quite soon I will have improved as much as I’m going to and I’m wondering if HRT could be the last part of what I need to feel more like me. I’ve remained reasonably well all things considered but it’s as though I’m a
I’ve been on thyroid replacement for about six years now and starting to feel that quite soon I will have improved as much as I’m going to and I’m wondering if HRT could be the last part of what I need to feel more like me. I’ve remained reasonably well all things considered but it’s as though I’m a
Noelnoel
in
Thyroid UK
9 months ago
Dad with Stage 4 PCa - Need some words of wisdom...again please!
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
kikinini
in
Advanced Prostate Cancer
9 months ago
Post Menopausal?
Hello This is my first time on this board but I am also on the Thyroid UK board - hello! I've always wondered about this - and hope that someone might be able to answer or have any other explanation? When I was 43 - nearly 10 years ago - I was diagnosed with an underactive thyroid via an ordinary
Hello This is my first time on this board but I am also on the Thyroid UK board - hello! I've always wondered about this - and hope that someone might be able to answer or have any other explanation? When I was 43 - nearly 10 years ago - I was diagnosed with an underactive thyroid via an ordinary
missrees
in
Menopause and Perimenopause Support
9 months ago
When To End An ADT Holiday
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
6357axbz
in
Advanced Prostate Cancer
9 months ago
Extra heart beats - should I pursue this?
HiI have on going palpitations. They are partly what drove me to gp in 2019 when I was diagnosed. They are better than they were. I take 100/15. I have found They are less when I take my t3 all in one go. I am about to start trial of hrt. (I have a second post). The doctor sent me for an ECG. This
HiI have on going palpitations. They are partly what drove me to gp in 2019 when I was diagnosed. They are better than they were. I take 100/15. I have found They are less when I take my t3 all in one go. I am about to start trial of hrt. (I have a second post). The doctor sent me for an ECG. This
BiscuitBaby
in
Thyroid UK
9 months ago
HRT - does it take effect quickly?
Hi For those of you on hrt do you feel the difference quickly or is it slow like levo? I am just about to start a trial of oestrogen patches and progesterone tablets. I still have regular periods but have on going fatigue and muscle aches, palpitations etc. Gp thinks it's because I'm perimenopausal.
Hi For those of you on hrt do you feel the difference quickly or is it slow like levo? I am just about to start a trial of oestrogen patches and progesterone tablets. I still have regular periods but have on going fatigue and muscle aches, palpitations etc. Gp thinks it's because I'm perimenopausal.
BiscuitBaby
in
Thyroid UK
9 months ago
Stopped taking NDT thyroid
Hello, could you share your experiences if you tried stopping thyroid hormone replacement? I was on NDT for years, developed hyperthyroid symptoms +very low TSH (normal ft3 and ft4), had heart arrythmia and high blood pressure, lost a lot of hair. Taking NDT didn't help with my weight problems or other
Hello, could you share your experiences if you tried stopping thyroid hormone replacement? I was on NDT for years, developed hyperthyroid symptoms +very low TSH (normal ft3 and ft4), had heart arrythmia and high blood pressure, lost a lot of hair. Taking NDT didn't help with my weight problems or other
Monika4
in
Thyroid UK
9 months ago
Stopping Lupron
Today I’ve had my next medical check. PSA still undetectable after RT IMRT/VMAT to prostate bed and pelvic floor accompanied by 24 months of Lupron. This was my third regimen after DXed in 11/2017, for more details pls refer to my bio. I will now stop Lupron, let’s see what the future will bring.
Today I’ve had my next medical check. PSA still undetectable after RT IMRT/VMAT to prostate bed and pelvic floor accompanied by 24 months of Lupron. This was my third regimen after DXed in 11/2017, for more details pls refer to my bio. I will now stop Lupron, let’s see what the future will bring.
Nusch
in
Advanced Prostate Cancer
8 months ago
FDA approves niraparib and abiraterone acetate plus prednisone for BRCA-mutated metastatic castration-resistant prostate cancer - 08/11/2023
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
cujoe
in
Fight Prostate Cancer
1 year ago
TRT Causing Breast Enlargement
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Jack54
in
Advanced Prostate Cancer
9 months ago
coming off prostap
hi i had a Prostap injection 7 weeks ago for a pre op (which I didn’t have) I really did t get on well with it. Very very depressed mood and terrible anxiety, insomnia and crushing headaches. Also lost my appetite. I’ve never felt so poorly before :-( it was scary. Especially the mental health side
hi i had a Prostap injection 7 weeks ago for a pre op (which I didn’t have) I really did t get on well with it. Very very depressed mood and terrible anxiety, insomnia and crushing headaches. Also lost my appetite. I’ve never felt so poorly before :-( it was scary. Especially the mental health side
Lothead01
in
Endometriosis UK
9 months ago
Where to get Orgovyx?
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
ToolBeltZia
in
Prostate Cancer Network
9 months ago
Let's change the way we're treated by adding metabolic therapy to SOC
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
TryGuyCP
in
Advanced Prostate Cancer
9 months ago
help with Perimenopause anxiety/ depression
Hi has anyone found relief with their anxiety and depression using HRT. I’m feeling so desperate with many symptoms but these two are taking me over and a black cloud is following me everywhere. I’m on sertraline 100mg daily been on it a long time upping and downing the dosage. I was on 200mg last year
Hi has anyone found relief with their anxiety and depression using HRT. I’m feeling so desperate with many symptoms but these two are taking me over and a black cloud is following me everywhere. I’m on sertraline 100mg daily been on it a long time upping and downing the dosage. I was on 200mg last year
Junkjournal1
in
Menopause and Perimenopause Support
9 months ago
ART NIH Predicting the Outcome of Salvage Radiation Therapy for Recurrent Prostate Cancer After Radical Prostatectomy
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
RMontana
in
Active Surveillance - Prostate Cancer
11 months ago
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