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End of holiday??
Hi everybody, was wondering if you could share your experiences to help me decide the end of my ADT holiday. In short: PCA found in 10/2019, PSA=49, Gleason=8, mets in local + infra/para aortal lymph nodes, started ADT 11/2019, radiotherapy 01/2020, undetectable PSA 09/2020, started holiday 05/2022
Hi everybody, was wondering if you could share your experiences to help me decide the end of my ADT holiday. In short: PCA found in 10/2019, PSA=49, Gleason=8, mets in local + infra/para aortal lymph nodes, started ADT 11/2019, radiotherapy 01/2020, undetectable PSA 09/2020, started holiday 05/2022
R1166
in
Advanced Prostate Cancer
11 months ago
Finally, a reason to celebrate :-)
For months now my *** has been dragging around this deep gloomy feeling. While everyone else seems to be Joyfully celebrating their holidays. Part of my gloominess is "SAD" Seasonal affective disorder. I try antidepressants, light therapy, and exorcising ,,, oops exercising. And it helps but the other
For months now my *** has been dragging around this deep gloomy feeling. While everyone else seems to be Joyfully celebrating their holidays. Part of my gloominess is "SAD" Seasonal affective disorder. I try antidepressants, light therapy, and exorcising ,,, oops exercising. And it helps but the other
Boston001
in
Anxiety and Depression Support
1 year ago
Need help to fight fatigue from Radium 223
Stage 4 for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months until it stopped being effective. Currently part of trial with Radium 223. Had 4 cycles already and 2 more to go. After this will likely have to switch to Enzalutamide and ADT. Now having bad fatigue issues; on scale
Stage 4 for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months until it stopped being effective. Currently part of trial with Radium 223. Had 4 cycles already and 2 more to go. After this will likely have to switch to Enzalutamide and ADT. Now having bad fatigue issues; on scale
Ronnie7C
in
Advanced Prostate Cancer
11 months ago
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Is this right or should I request a second opinion?
Been suffering fatigue on another level, weight gain, brain fog etc etc so ordered private bloods for fatigue through medicheck. Results came back as low iron, low Vit D and low T4. THS was normal. Doctors notes was possibly hypothyroid but seek GP advice. Doctor wanted to wait for iron supplements
Been suffering fatigue on another level, weight gain, brain fog etc etc so ordered private bloods for fatigue through medicheck. Results came back as low iron, low Vit D and low T4. THS was normal. Doctors notes was possibly hypothyroid but seek GP advice. Doctor wanted to wait for iron supplements
OnTheCusp33
in
Thyroid UK
11 months ago
PSMA PET Scan Shows no mets?!
I have/had Stage 4, Gleason 8/9 prostate cancer now for 2 years. 5 mets including 4 rib and 1 shoulder blade. Possible lymph node involvement. Went on Lupron and Zytiga. Radiation of prostate after 8 months of ADT. I've had now 4 PET scans. The latest was yesterday, as reported below. It says
I have/had Stage 4, Gleason 8/9 prostate cancer now for 2 years. 5 mets including 4 rib and 1 shoulder blade. Possible lymph node involvement. Went on Lupron and Zytiga. Radiation of prostate after 8 months of ADT. I've had now 4 PET scans. The latest was yesterday, as reported below. It says
groth12345
in
Advanced Prostate Cancer
11 months ago
2 Questions
Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
revchris77
in
Advanced Prostate Cancer
11 months ago
Cholesterol again
My latest FBC (not specifically to look at thyroid) showed high cholesterol. I haven't been taking my thyroid meds religiously as I usually do and my TSH has gone up. So, I will get on the case. I am on 75mg which is usually more than enough to keep my TSH around 1.5. However, my GP was reluctant
My latest FBC (not specifically to look at thyroid) showed high cholesterol. I haven't been taking my thyroid meds religiously as I usually do and my TSH has gone up. So, I will get on the case. I am on 75mg which is usually more than enough to keep my TSH around 1.5. However, my GP was reluctant
Aloha79
in
Thyroid UK
11 months ago
On prostap every 4 weeks now on 2nd injection but feeling sick and have pelvic stabbing pain ? Anyone else had the same ? Is it normal ?
I'm 34 , i have stage 4 endometriosis after having 12 miscarriages and a still born daughter we are unable to conceive and ivf would be slim and high chance of other problems . Iv Had many operations and currently on prostap injections every 4 week and waiting for my full hysterectomy. Both of my tubes
I'm 34 , i have stage 4 endometriosis after having 12 miscarriages and a still born daughter we are unable to conceive and ivf would be slim and high chance of other problems . Iv Had many operations and currently on prostap injections every 4 week and waiting for my full hysterectomy. Both of my tubes
Sjxxx
in
Endometriosis UK
11 months ago
Anyone have a high testosterone after SBRT?
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
Yearofthecow
in
Prostate Cancer Network
11 months ago
Hysterectomy, HRT and possible flare up
HI Ladies. So, I was diagnosed with stage 4 endometriosis when I was about 30 years old (Im now 45). I've had 2 laproscopys, 1 laperotomy and finally a total hysterectomy when I was 40. My ovaries were completely stuck to everything else around them, major pain, also had endo on my bowel, pretty much
HI Ladies. So, I was diagnosed with stage 4 endometriosis when I was about 30 years old (Im now 45). I've had 2 laproscopys, 1 laperotomy and finally a total hysterectomy when I was 40. My ovaries were completely stuck to everything else around them, major pain, also had endo on my bowel, pretty much
MrsBee78
in
Endometriosis UK
11 months ago
Zoladex & NO HRT
Is there any ladies out there who have had a positive experience with the zoladex injection without HRT? I can’t take HRT due to medical conditions so I’m going on the zoladex but worried about side effects but hopefully will give me relief from such awful symptoms I have now with the endo & suspected
Is there any ladies out there who have had a positive experience with the zoladex injection without HRT? I can’t take HRT due to medical conditions so I’m going on the zoladex but worried about side effects but hopefully will give me relief from such awful symptoms I have now with the endo & suspected
Cats1311
in
Endometriosis UK
11 months ago
The use of combination therapy in Ireland
This downloable paper shows that Irish doctors are quite ready to prescribe T4/T3 combination therapy and are not dissuaded from doing so:
Use of Thyroid Hormones in Hypothyroid and Euthyroid Patients: A THESIS questionnaire survey of members of the Irish Endocrine Society
December 2022
This downloable paper shows that Irish doctors are quite ready to prescribe T4/T3 combination therapy and are not dissuaded from doing so:
Use of Thyroid Hormones in Hypothyroid and Euthyroid Patients: A THESIS questionnaire survey of members of the Irish Endocrine Society
December 2022
diogenes
in
Thyroid UK
1 year ago
The T3-4-Hypo trial
I think this has previously been mentioned. [i][/i] [i]
The T3-4-Hypo trial
[/i] [i]A Dutch national randomized placebo-controlled double-blind multicenter trial of LT4/LT3 combination therapy in patients with autoimmune hypothyroidism.[/i] https://t3-4-hypotrial.nl/english/ I note that the
I think this has previously been mentioned. [i][/i] [i]
The T3-4-Hypo trial
[/i] [i]A Dutch national randomized placebo-controlled double-blind multicenter trial of LT4/LT3 combination therapy in patients with autoimmune hypothyroidism.[/i] https://t3-4-hypotrial.nl/english/ I note that the
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Bleeding after Laparoscopy
Hi all, Please note this maybe to much info .... Apologies. Sorry for the question. I know there is a few topics regarding Laparoscopy but just want to understand if what's happening is normal. I had my laparoscopy 3 weeks ago. All the incisions have healed well and from surgery side of things I'm
Hi all, Please note this maybe to much info .... Apologies. Sorry for the question. I know there is a few topics regarding Laparoscopy but just want to understand if what's happening is normal. I had my laparoscopy 3 weeks ago. All the incisions have healed well and from surgery side of things I'm
AMJ88
in
Endometriosis UK
11 months ago
Enhertu next treatment??
I have been posting a lot lately. Thank you everyone for all your help. Some history…..I have lobular MBC. I have Mets in stomach lining, liver, and hip bone. got almost a year and a half from ibrance. After that I was on Exemestane and Everolimus for 2 months and all my liver mets grew. My
I have been posting a lot lately. Thank you everyone for all your help. Some history…..I have lobular MBC. I have Mets in stomach lining, liver, and hip bone. got almost a year and a half from ibrance. After that I was on Exemestane and Everolimus for 2 months and all my liver mets grew. My
Ticket123
in
SHARE Metastatic Breast Cancer
11 months ago
Blood Test Result
After being on ADT for two weeks, my blood test shows my Testosterone to be 109 (low). I guess this is the goal of ADT, to lower my Testosterone. However, in the same test result, the following was flagged as either low or high. Can my ADT attributed to the issues flagged by the test result? RBC
After being on ADT for two weeks, my blood test shows my Testosterone to be 109 (low). I guess this is the goal of ADT, to lower my Testosterone. However, in the same test result, the following was flagged as either low or high. Can my ADT attributed to the issues flagged by the test result? RBC
toyman79912
in
Advanced Prostate Cancer
11 months ago
Requesting Help to Develop Bespoke BAT
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Fight Prostate Cancer
11 months ago
Requesting Help to Develop Bespoke BAT Protocol
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Advanced Prostate Cancer
11 months ago
PSA Went Up After Start of ADT
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
toyman79912
in
Advanced Prostate Cancer
11 months ago
Estradiol levels high? and progesterone help!
Good morning! I'm 47, and have been on HRT for about 2 years. I have evorel 50 and 2 weeks of micronised progesterone every 12 weeks. I also have under active thyroid disease and have to have vitamin b12 injections, so some symptoms can get confused! HRT has managed hot flushes and other peri-specific
Good morning! I'm 47, and have been on HRT for about 2 years. I have evorel 50 and 2 weeks of micronised progesterone every 12 weeks. I also have under active thyroid disease and have to have vitamin b12 injections, so some symptoms can get confused! HRT has managed hot flushes and other peri-specific
Laundretta
in
Menopause and Perimenopause Support
11 months ago
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