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87 public communities
Anticoagulation Support
3,794 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
Group B Strep Support
746 members
This is a community dedicated to helping those affected by group B Strep (GBS). GBS is a common bacterium that lives in 20-30% of adults, usually with no symptoms or side-effects. Most commonly found in the intestines, it can also live in the vagina of adult women. It is a ‘commensal’ – an organism that lives on another without causing harm. GBS can cause infection, most often in newborn babies. It more rarely causes infection in adults (typically women during pregnancy or after birth, the elderly and those with serious underlying medical conditions causing impaired immune system). Although relatively uncommon, GBS is the most common cause of infection in newborn babies and of meningitis in babies under age 3 months. On average in the UK, one baby a day develops GBS infection - one baby a week dies and one survivor a fortnight has long-term disability.
The Children's Trust
239 members
The Children’s Trust, Tadworth is a national charity working with children with brain injury. We are based at a 24 acre site in Tadworth, Surrey but offer our services to children from across the UK. We provide expert rehabilitation, education, therapy and care to support children and their families. The Children's Trust has also developed The Brain Injury Hub which is an online information and advice service for parents and other family members and includes as well as developing an online community and includes Health Unlocked.
Mental Health Support
31,374 members
Shawmind is a young charity on a mental health mission. We are committed to helping young people, adults and communities to have access to mental health resources when they need them. We do not provide therapy or counselling. Our focus is on early intervention, helping people to understand anxiety, its triggers and related mental health affects, and how to effectively deal with them before they escalate into more serious mental health challenges. Our Breathe Cafés are the perfect place to just ‘breathe’ when you're feeling stressed or anxious. We are partnering with coffeeshops, pubs and restaurants around the country to provide a trained mental health first aider, mental health books, and other resources for those who need them. BreatheUni is a group run by trained Shawmind student volunteers, for students - dealing with all aspects of student mental health & wellbeing. This group is active on Instagram: @breathe_uni We provide a range of training courses which help one better understand mental health conditions and how to spot the signs of those who are struggling. See our website for more info and help! --- The best way to keep your community as safe as possible is by using "Report" feature. If needed, please do not hesitate to flag any posts to by clicking "Report" button https://support.healthunlocked.com/article/17-how-do-i-report-content or sending an email at support@healthunlocked.com. No one should have to deal with extreme feelings alone, so please reach out to close family and friends for help if you need to. You can also talk to your GP or contact one of the many mental health resources found in our Help Centre article here: https://support.healthunlocked.com/article/12-mental-health-resources-and-services If you feel you need immediate support, please call your emergency number 999 or go to your local A&E.
Gorlin Syndrome Group
220 members
The Gorlin Syndrome Group is a support network offering guidance and information to individuals, their families and carers whose lives are affected by Gorlin Syndrome (also known as Nevoid Basal Cell Carcinoma Syndrome). The group is organised by individuals affected by Gorlin Syndrome and their families, with support from medical advisors. Our aims and objectives are: to offer guidance and information to individuals, their carers, family and friends with Gorlin syndrome the advancement of the education of the medical profession into Gorlin syndrome and its implications for the family to promote research into the causes, effects, treatment and management of Gorlin syndrome.
Advanced Prostate Cancer
20,964 members
A friendly prostate cancer support group where we can pick each other's brains. Our 24-hour online support group. Talking about advanced prostate cancer is a powerful tool. Malecare Cancer Support runs our community. We are people fighting prostate cancer together.
Teesside Lupus Support Group
292 members
Teesside Lupus Support Group is a group in the North East which aims to raise awareness of Lupus and all diseases associated with it. We give support and information to newly diagnosed and to those living with Lupus. We endeavour to gather as much information as we can to support one another. We also hold meetings and give one to one support to those who need it.
Stanmore Young Spine Group
185 members
The Royal National Orthopaedic Hospital NHS Trust (RNOH) is the largest orthopaedic hospital in the UK, and is regarded as a leader in the field of orthopaedics both in the UK and world-wide. The RNOH provides a comprehensive range of neuro-musculoskeletal health care, ranging from acute spinal injury or complex bone tumour to orthopaedic medicine and specialist rehabilitation for chronic back pain sufferers. This broad range of services is unique within the NHS. As a national centre of excellence, the RNOH treats patients from across the country, many of whom have been referred by other hospital consultants for second opinions or for treatment of complex or rare conditions.
Chronic Pancreatitis Support
807 members
Welcome to the Chronic Pancreatitis Support community, here to support anyone impacted by chronic pancreatitis and related conditions, such as EPI (Exocrine Pancreatic Insufficiency). Whether you are looking for a diagnosis or currently on Pancreatic Enzyme Replacement Therapy (PERT), here you will find peers with whom you can share experiences, information and participate in research events within the community. This community is offered by Mission: Cure on the HealthUnlocked platform. We serve the patients & communities affected by recurrent acute and chronic pancreatitis. Our impact extends to disease research and healthcare, applying innovative financing models to advance new therapies and cures. Beginning with chronic pancreatitis, we are committed to advancing new therapies and accelerating a cure for debilitating and untreatable diseases—within ten years. This community has been funded in part by Aimmune Therapeutics, Inc., a Nestlé Health Science Company. Anonymous data from the content shared in this community is used to improve the understanding of this condition.
Melanoma Wellness Canada
87 members
Melanoma Wellness Canada is a group created and maintained by the Canadian melanoma patient group Save Your Skin Foundation. It exists as a place for patients and caregivers touched by melanoma skin cancer to connect and share resources. We strive to support overall wellness for melanoma. Wellness is about more than just the absence of physical illness. Working towards wellness encourages us to work towards complete health. We believe that emotional wellness fosters physical wellness and physical wellness increases our emotional wellness. Team members of Save Your Skin Foundation will facilitate the page, but this is your space; please feel free to share, as long as it is relevant to the group and respectful. This may include your experience with melanoma, or any other articles or resources you feel the rest of the group could benefit from.
The UK Mastocytosis Support Group
540 members
The UK Mastocytosis Support Group community is for anyone with diagnosed or un-diagnosed Mast Cell Diseases or those supporting them. The UK Mastocytosis Support Group is a charity that supports people with Mast Cell Diseases including Mastocytosis and mast cell activation syndromes. We support people by informing them of various aspects of Mast Cell Diseases and testing.
Tourettes Action
1,280 members
This group connects people, volunteers and professionals involved with Tourettes for support and help online.
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