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Venetoclax: The Final Stretch……Do You Have A Uric Acid Problem
I’ve just finished my tenth year since my Stage IV diagnosis of CLL and my questions today are about the incidence of gout in patients who have been in various forms of treatment. Early on, my Uric Acid was only an issue in case that tumor lysis syndrome was an outcome of the treatment. Later on
I’ve just finished my tenth year since my Stage IV diagnosis of CLL and my questions today are about the incidence of gout in patients who have been in various forms of treatment. Early on, my Uric Acid was only an issue in case that tumor lysis syndrome was an outcome of the treatment. Later on
KevinCLLITP
in
CLL Support
2 years ago
Help for a friend with corticobasal degeneration.
Dear forum friends: I have a friend who has been diagnosed with corticobasal degeneration. I can't find much specific information about this atypical parkinsonism. Except for Dr. Costantini's reference in the famous interview (number 30) or the comments on medical cannabis oil, I can't find any information
Dear forum friends: I have a friend who has been diagnosed with corticobasal degeneration. I can't find much specific information about this atypical parkinsonism. Except for Dr. Costantini's reference in the famous interview (number 30) or the comments on medical cannabis oil, I can't find any information
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Reflexology
Hi All, I’ve posted before re my gout and thought you might like to know that, through the MycancerMychoices programme I’ve been having reflexology every two weeks. It’s something I never thought I’d want to try, I don’t like feet! But it’s AMAZING, the whole process is so relaxing and therapeutic, really
Hi All, I’ve posted before re my gout and thought you might like to know that, through the MycancerMychoices programme I’ve been having reflexology every two weeks. It’s something I never thought I’d want to try, I don’t like feet! But it’s AMAZING, the whole process is so relaxing and therapeutic, really
Guilane
in
My Ovacome
2 years ago
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Fed up with episodes
Post ablation, nearly week 12, episodes are weekly, latest one started Thursday, it’s now Saturday and it’s been a mixed of HHR 130, 137 for hours then it goes to AF, this is on Apple Watch, it’s still coming up AF although HR is 98 now , just so confused why it won’t just settle down. I’m talking
Post ablation, nearly week 12, episodes are weekly, latest one started Thursday, it’s now Saturday and it’s been a mixed of HHR 130, 137 for hours then it goes to AF, this is on Apple Watch, it’s still coming up AF although HR is 98 now , just so confused why it won’t just settle down. I’m talking
Electricblue1
in
AF Association
2 years ago
Did you stop your biologic for 4th vaccination?
Finally have my 4th jab booked for next Thursday 13th Jan and am trying to work out whether to stop the Adalimumab for two weeks before and after or not. Have had conflicting advice from sensible sources. Rheum nurse said to inject as normal as would be worse to flare and pointed to the versusarthritis
Finally have my 4th jab booked for next Thursday 13th Jan and am trying to work out whether to stop the Adalimumab for two weeks before and after or not. Have had conflicting advice from sensible sources. Rheum nurse said to inject as normal as would be worse to flare and pointed to the versusarthritis
Hidden
in
NRAS
2 years ago
Thank you for your replies to my post about Plavix
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
Bluetoday1
in
MPN Voice
2 years ago
Lactoferrin and anticoagulants
I am a 78 old male with PAF. I take Eliquis, Flecainide and Bisoprolol. In these times of Covid a GP suggested to my son, who has no PAF, to take Lactoferrin as a preventative. I would like to take it as well, but I cannot find information on interactions between Lactoferrin and anticoagulants. Has
I am a 78 old male with PAF. I take Eliquis, Flecainide and Bisoprolol. In these times of Covid a GP suggested to my son, who has no PAF, to take Lactoferrin as a preventative. I would like to take it as well, but I cannot find information on interactions between Lactoferrin and anticoagulants. Has
mirtilla
in
AF Association
2 years ago
Apixaban and subconjunctival haemorrhage.
After taking Apixaban for 6 days (2x5mg, daily) I woke this morning with a subconjunctival haemorrhage in the left eye. Yesterday, the eye had been bloodshot and itchy; I had hoped that it was just conjunctivitis and would clear up. As I had a similar subconjunctival haemorrhage three years ago, two
After taking Apixaban for 6 days (2x5mg, daily) I woke this morning with a subconjunctival haemorrhage in the left eye. Yesterday, the eye had been bloodshot and itchy; I had hoped that it was just conjunctivitis and would clear up. As I had a similar subconjunctival haemorrhage three years ago, two
Hidden
in
AF Association
3 years ago
Fix your Microbiome using Cognitive Behavioral Therapy (CBT)
I decided to do this post in English! So we are frequently discussing how fixing our microbiomes might help fix our brains. I still believe in that, and I believe the Specific Carbohydrate Diet (SCD) may be a good tool (or Wahls Paleo Plus). But this new article seems to say you might also change your
I decided to do this post in English! So we are frequently discussing how fixing our microbiomes might help fix our brains. I still believe in that, and I believe the Specific Carbohydrate Diet (SCD) may be a good tool (or Wahls Paleo Plus). But this new article seems to say you might also change your
Bolt_Upright
in
Cure Parkinson's
3 years ago
Post thyroidectomy problems with gout medication (allopurinol)
Has anyone else had problems taking allopurinol along side their post thyroidectomy thyroid hormone replacement therapy (either T4 or combination therapy)? I have a background of Thyroidectomy (PCT) and Follicular Lymphoma. As a result of the FL I have high uric acid levels leading to gout and joint
Has anyone else had problems taking allopurinol along side their post thyroidectomy thyroid hormone replacement therapy (either T4 or combination therapy)? I have a background of Thyroidectomy (PCT) and Follicular Lymphoma. As a result of the FL I have high uric acid levels leading to gout and joint
CaptainBeOS
in
Thyroid UK
3 years ago
Inhibition of Epstein-Barr virus reactivation in nasopharyngeal carcinoma cells by dietary sulforaphane 2013
EBV is a very common latent virus (up to 95% prevalence) and has been linked to autoimmune diseases and inflammation. PD may be an autoimmune disease. Seeing what things tamper down EBV. Inhibition of Epstein-Barr virus reactivation in nasopharyngeal carcinoma cells by dietary sulforaphane 2013 https
EBV is a very common latent virus (up to 95% prevalence) and has been linked to autoimmune diseases and inflammation. PD may be an autoimmune disease. Seeing what things tamper down EBV. Inhibition of Epstein-Barr virus reactivation in nasopharyngeal carcinoma cells by dietary sulforaphane 2013 https
Bolt_Upright
in
Cure Parkinson's
3 years ago
Green tea Catechins
Looks like oral supplement twice a day, not a drink. Sounds easy to try off trial, probably no risk in purchasing supplements listed!! Drug: Sinecatechins Given PO Other Names: Camellia sinensis Leaf Catechins Kunecatechins Polyphenon E Polyphenon E TM Veregen
Looks like oral supplement twice a day, not a drink. Sounds easy to try off trial, probably no risk in purchasing supplements listed!! Drug: Sinecatechins Given PO Other Names: Camellia sinensis Leaf Catechins Kunecatechins Polyphenon E Polyphenon E TM Veregen
Bkraus1
in
Advanced Prostate Cancer
3 years ago
HSP and alport syndrome
Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney damage (I was sick for a good 5 years prior to this). I've recently moved house and got a.new consultant who on reviewing my file wants me tested for alport syndrome. Has anyone else with HSP had this done? I'm not sure if
Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney damage (I was sick for a good 5 years prior to this). I've recently moved house and got a.new consultant who on reviewing my file wants me tested for alport syndrome. Has anyone else with HSP had this done? I'm not sure if
kc4t
in
Vasculitis UK
3 years ago
Hi guys not been on in a while !
Hi everyone I've not been on in a while I've been a little head mashed and since having a bad allergic reaction to the fabulous jab I'm still in solitary confinement grrrrr.i wanted to ask if anybody has any ideas of how I can get a bit of peace as last week I had to go into hospital as I had a major
Hi everyone I've not been on in a while I've been a little head mashed and since having a bad allergic reaction to the fabulous jab I'm still in solitary confinement grrrrr.i wanted to ask if anybody has any ideas of how I can get a bit of peace as last week I had to go into hospital as I had a major
Boobles
in
MPN Voice
3 years ago
Black Cohosh Research
In a post discussing hot flushes, a couple of members said they used black cohosh. When I started researching it, I was surprised to find research abstracts showing that it killed prostate cancer cells in vitro and in mouse models. I’d never heard of using it for hot flushes or a possible adjunct treatment
In a post discussing hot flushes, a couple of members said they used black cohosh. When I started researching it, I was surprised to find research abstracts showing that it killed prostate cancer cells in vitro and in mouse models. I’d never heard of using it for hot flushes or a possible adjunct treatment
Javelin18
in
Advanced Prostate Cancer
3 years ago
Cholesterol and uric acid
I've just received bloods results from my gp. My cholesterol is 7.4 and my uric acid is high, (I've requested a print out of results). Can anyone advise me on best course of action? I take levothyroxine 100, vitd/k2 and magnesium glycinate.
I've just received bloods results from my gp. My cholesterol is 7.4 and my uric acid is high, (I've requested a print out of results). Can anyone advise me on best course of action? I take levothyroxine 100, vitd/k2 and magnesium glycinate.
Geegee777
in
Thyroid UK
3 years ago
Apixaban
Is anyone on a DOAC and undergone retinopexy for a retinal tear? I’m having the procedure tomorrow and wondering whether I should not take the Apixaban tonight and in the morning. I wasn’t asked if I was taking a blood thinner today so not sure what to do. Can anyone offer any advice pls?
Is anyone on a DOAC and undergone retinopexy for a retinal tear? I’m having the procedure tomorrow and wondering whether I should not take the Apixaban tonight and in the morning. I wasn’t asked if I was taking a blood thinner today so not sure what to do. Can anyone offer any advice pls?
Barbadosgirl
in
AF Association
3 years ago
2.5 years since my 3rd ablation
It has been awhile since I have last posted after my cardiac tamponade during my 2nd ablation and thought I would give an update and share the good news. My 3rd ablation went well and it has been over 2 years since I had it done. I have had no afib episodes since then. In fact I just had a heart
It has been awhile since I have last posted after my cardiac tamponade during my 2nd ablation and thought I would give an update and share the good news. My 3rd ablation went well and it has been over 2 years since I had it done. I have had no afib episodes since then. In fact I just had a heart
perkman
in
AF Association
3 years ago
Adventures with Cabazitaxel
Hey gang, Was supposed to begin the first of six Cabazitaxel sessions last Friday(the six Taxotere rechallenge failed) , but the pharmacy messed up the mixture and it got moved to today! Looked up the cost, and Kaiser wasted $7800 with that error. Hoping the switch to Cabazitaxel does the job.
Hey gang, Was supposed to begin the first of six Cabazitaxel sessions last Friday(the six Taxotere rechallenge failed) , but the pharmacy messed up the mixture and it got moved to today! Looked up the cost, and Kaiser wasted $7800 with that error. Hoping the switch to Cabazitaxel does the job.
dockam
in
Advanced Prostate Cancer
3 years ago
eGFR Level and Pain
Has anyone experienced an increase in eGFR when in pain, i.e. Fibromyalgia, Arthritis, and Myofascial pain?
Has anyone experienced an increase in eGFR when in pain, i.e. Fibromyalgia, Arthritis, and Myofascial pain?
My_Kidneys
in
Early CKD Support
3 years ago
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