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My CLL, where is the finishing line?
Just over a year ago my “Abnormal CLL” took off. I lost weight rapidly and my 22 cm spleen hurt. I was glad to be offered V+O and after a bad initial reaction settled into the routine. Then the sinusitis and upper respiratory tract infections set in and the cough…. Fair to say I have endured the year
Just over a year ago my “Abnormal CLL” took off. I lost weight rapidly and my 22 cm spleen hurt. I was glad to be offered V+O and after a bad initial reaction settled into the routine. Then the sinusitis and upper respiratory tract infections set in and the cough…. Fair to say I have endured the year
carolly
in
CLL Support
1 year ago
Finally got an endocrinology appointment
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
unlucky-angler
in
Thyroid UK
8 months ago
Covid and Blood Tests
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
SilverSavvy
in
Thyroid UK
8 months ago
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Shingles injection
Hi iam on peggasy and have p v having shingles jab soon any problems with this thank you
Hi iam on peggasy and have p v having shingles jab soon any problems with this thank you
baggies
in
MPN Voice
7 months ago
ANyone taking Prolia for osteoporosis?
Hi! I have been dealing with osteoporosis for more than 20 years and taken all the pills and Forteo shots. I have Lupus, Hyperparathyroidisn, Low Vitamin D and low body mass that all contribute to the problem. Unfortunately, it has continues to get worse. I have been hesitant to take Prolia as it will
Hi! I have been dealing with osteoporosis for more than 20 years and taken all the pills and Forteo shots. I have Lupus, Hyperparathyroidisn, Low Vitamin D and low body mass that all contribute to the problem. Unfortunately, it has continues to get worse. I have been hesitant to take Prolia as it will
Pumpkin2009
in
LUPUS UK
9 months ago
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 Data is starting to roll in on Covid-19 vaccine inequities this fall
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
lankisterguy
Volunteer
in
CLL Support
8 months ago
Shingles Vaccination
Hi folks, just been sent a link for the Shingles Vaccine, is this something anyone else has had. I wasn't aware that when taking Methotrexate this was possible. Unfortunately I can never get through to my surgery to ask the question. Thank you
Hi folks, just been sent a link for the Shingles Vaccine, is this something anyone else has had. I wasn't aware that when taking Methotrexate this was possible. Unfortunately I can never get through to my surgery to ask the question. Thank you
Ports
in
NRAS
9 months ago
what to do - advice please
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
Billiebobdog
in
PMRGCAuk
8 months ago
INVOLVEMENT OPPORTUNITY – CENTRAL LONDON (Hepatitis B)
[u]
Share your experiences to help researchers improve care for hepatitis B in the UK
[/u]
Do you live with hepatitis B and want to make the way it is diagnosed, monitored, and treated in the UK better for patients?
The British Liver Trust are working with researchers and clinicians to
[u]
Share your experiences to help researchers improve care for hepatitis B in the UK
[/u]
Do you live with hepatitis B and want to make the way it is diagnosed, monitored, and treated in the UK better for patients?
The British Liver Trust are working with researchers and clinicians to
BritishLiverTrust1
Partner
in
British Liver Trust
9 months ago
b12 purchase
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Maximus2222
in
Pernicious Anaemia Society
9 months ago
UTI issues
Hi all, Is it quite common to see blood in the urine with a UTI? My doctor says so but Googling has me believe it’s a kidney infection and I’m on the wrong antibiotics. I’ve had a UTI in the past and had the burning and pain but no visible blood? Thanks
Hi all, Is it quite common to see blood in the urine with a UTI? My doctor says so but Googling has me believe it’s a kidney infection and I’m on the wrong antibiotics. I’ve had a UTI in the past and had the burning and pain but no visible blood? Thanks
Kimbad1990
in
Women's Health
9 months ago
bad cough
I have a very bad cough I think it might be in the thc that I smoke 10 reefers a day I know it’s wrong but what am I to do?
I have a very bad cough I think it might be in the thc that I smoke 10 reefers a day I know it’s wrong but what am I to do?
Antcurt
in
Lung Conditions Community Forum
1 year ago
Wish me luck.
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
punkster
in
Anxiety and Depression Support
8 months ago
Fever for 5 weeks (viral meningitis)
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Roosvanderv
in
Meningitis Now
7 months ago
Covid
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Belfastman
in
PMRGCAuk
8 months ago
MSA-C with ataxia rebound
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
rideabike
in
Multiple System Atrophy Trust
8 months ago
Bronchiectasis persistent cough
I was diagnosed with Bronchiectasis last week. I am on Carbocisteine 2 x 3 times a day. What's depressing me is my cough. Its dreadful the first hour of the day , I'm coughing up lots of sputum and wrenching . I'm having frequent coughing episodes during the day as well coughing up more sputum , I have
I was diagnosed with Bronchiectasis last week. I am on Carbocisteine 2 x 3 times a day. What's depressing me is my cough. Its dreadful the first hour of the day , I'm coughing up lots of sputum and wrenching . I'm having frequent coughing episodes during the day as well coughing up more sputum , I have
Enable
in
Lung Conditions Community Forum
1 year ago
Any tips pls ..? Dad's really tired of is cough - that's now a mix of dry (mainly) and some mucous
Hi, the mucous is not really coming out now. But the dry cough is new. The hospital checked for an infection (given the dry cough), but didn't spot anything which is a relief.
So, my question is really about how best to handle a cough that's dry , with just a little mucous ..?
He's using codeine
Hi, the mucous is not really coming out now. But the dry cough is new. The hospital checked for an infection (given the dry cough), but didn't spot anything which is a relief.
So, my question is really about how best to handle a cough that's dry , with just a little mucous ..?
He's using codeine
Vip1
in
The Roy Castle Lung Cancer Foundation
1 year ago
Dizziness / Vertigo whilst on Pred
I’ve been suffering with nausea and dizziness whilst on Pred, whilst this has been awful it’s not as bad as the PMR pain I was experiencing. My GP and an a nurse have suggested this could be to do with the inner ear. I do suffer from travel sickness and avoid roller coasters / waltzers because they
I’ve been suffering with nausea and dizziness whilst on Pred, whilst this has been awful it’s not as bad as the PMR pain I was experiencing. My GP and an a nurse have suggested this could be to do with the inner ear. I do suffer from travel sickness and avoid roller coasters / waltzers because they
SpaghettiWestern99
in
PMRGCAuk
9 months ago
Covid has just hit our Thanksgiving plans!
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
PJBinMI
in
SHARE Metastatic Breast Cancer
8 months ago
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