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Start interferon or "watch and wait"?
First, thank you to all who have reached out to me this last week since I joined the forum. Your kindness has truly helped me come to terms with all this. I have my first meeting with my MPN specialist coming up soon. He will be giving me the results of the genetic testing to see which driver mutation
First, thank you to all who have reached out to me this last week since I joined the forum. Your kindness has truly helped me come to terms with all this. I have my first meeting with my MPN specialist coming up soon. He will be giving me the results of the genetic testing to see which driver mutation
cmc_ufl
in
MPN Voice
4 years ago
Should I push harder for tests to rule out essential thrombocythemia?
I have a complex medical history, mixed connective tissue disease, RA, eosiniophilc esophagitis, hypopituitarism, adrenal insufficiency, exercise anaphylaxis, a bunch of things that are unrelated, some serious, some annoyances. I have extremely high bone density, so have degenerative spinal disease
I have a complex medical history, mixed connective tissue disease, RA, eosiniophilc esophagitis, hypopituitarism, adrenal insufficiency, exercise anaphylaxis, a bunch of things that are unrelated, some serious, some annoyances. I have extremely high bone density, so have degenerative spinal disease
lilyak
in
MPN Voice
4 years ago
Counseling and Therapy
Hello. My name is Keith Wilson. I have had over five years of counseling and at least a year of individual therapy. I have been diagnosed with over fifteen different mental health diagnosis' but the doctors still do not quite know which one really fits my situation. Recently, I received a second opinion
Hello. My name is Keith Wilson. I have had over five years of counseling and at least a year of individual therapy. I have been diagnosed with over fifteen different mental health diagnosis' but the doctors still do not quite know which one really fits my situation. Recently, I received a second opinion
Static1
in
CHADD's Adult ADHD Support
4 years ago
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*Positive* life update.
Hello everyone, So over the last few months I've been having botox injections, pelvic floor physiotherapy and psychosexual counselling for a variety of pelvic pain issues (endometriosis, vaginismus, vulvodynia, hypertonic pelvic floor...) I've also been started on anti-depressants and I have to say
Hello everyone, So over the last few months I've been having botox injections, pelvic floor physiotherapy and psychosexual counselling for a variety of pelvic pain issues (endometriosis, vaginismus, vulvodynia, hypertonic pelvic floor...) I've also been started on anti-depressants and I have to say
Bubble_by
in
Pelvic Pain Support Network
4 years ago
CBD OILS FOR ANXIETY
Hello everyone, I am new to the group, and excited to join. I hope I can help others, just as you all can help me. I originally joined the group because I needed a group to do my school project on. However, I also suffer from untreated anxiety and depression. So, does my 5 year old son. I thought this
Hello everyone, I am new to the group, and excited to join. I hope I can help others, just as you all can help me. I originally joined the group because I needed a group to do my school project on. However, I also suffer from untreated anxiety and depression. So, does my 5 year old son. I thought this
Rhianna39
in
Anxiety and Depression Support
4 years ago
AF’s untimely arrival
Hi all, It’s just a short one really how do you all deal with her arrival? I’m struggling emotionally at the moment and I’m not in a position to do anything like counselling. I just wondered if anyone had any simple little tips. Hope you’re all well wherever you are in your journeys Thank
Hi all, It’s just a short one really how do you all deal with her arrival? I’m struggling emotionally at the moment and I’m not in a position to do anything like counselling. I just wondered if anyone had any simple little tips. Hope you’re all well wherever you are in your journeys Thank
kelsbels88
in
Fertility Network UK
4 years ago
First genetic testing, it’s funny doctors don’t explain this to you...what do you think?
01/28/2021 Message body: I have already done genetic studies on your tumor and I will look into germline testing next week. Your PSA remains undetectable PSA <0.1 01/21/2021 PSA <0.1 12/22/2020 PSA <0.1 10/30/2020 The specimen met all input requirements. The sequencing data passed all quality control
01/28/2021 Message body: I have already done genetic studies on your tumor and I will look into germline testing next week. Your PSA remains undetectable PSA <0.1 01/21/2021 PSA <0.1 12/22/2020 PSA <0.1 10/30/2020 The specimen met all input requirements. The sequencing data passed all quality control
5_plus_4
in
Advanced Prostate Cancer
4 years ago
Finding it hard to cope with my friends traumatic brain injury moods.
Hi all, My friend collapsed into the road outside his flat in April 2019 and it caused a traumatic brain injury. After 2 weeks in ICU and 2 weeks in hospital he came back to his flat. He is 70 now and it has changed him a lot in ways I can understand from what I've learnt on this site. Moodwise and
Hi all, My friend collapsed into the road outside his flat in April 2019 and it caused a traumatic brain injury. After 2 weeks in ICU and 2 weeks in hospital he came back to his flat. He is 70 now and it has changed him a lot in ways I can understand from what I've learnt on this site. Moodwise and
guitarlady
in
Headway
4 years ago
What do you do to get yourself back up?
I have been struggling with depression for almost 20 years now. I have my ups and downs, but I am usually able to pull myself up after being down. I have been stuck in a "down" for months now and have tried so many things to bring myself back up, but they are not working. I just feel alone and sad most
I have been struggling with depression for almost 20 years now. I have my ups and downs, but I am usually able to pull myself up after being down. I have been stuck in a "down" for months now and have tried so many things to bring myself back up, but they are not working. I just feel alone and sad most
GrayFlower21
in
Anxiety and Depression Support
4 years ago
How Chronic Illness Patients Can Cope with Seasonal Affective Disorder and Depression During COVID-19
This winter, we’re facing an intersection of several potential mental health risks — all of which may be exacerbated if you’re living with chronic illness. COVID-19 Seasonal Affective Disorder Chronic Illness There’s no doubt that the COVID-19 pandemic has triggered an uptick in mental health issues
This winter, we’re facing an intersection of several potential mental health risks — all of which may be exacerbated if you’re living with chronic illness. COVID-19 Seasonal Affective Disorder Chronic Illness There’s no doubt that the COVID-19 pandemic has triggered an uptick in mental health issues
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Support spotlight: Relationship service
Looking after your relationships: Access free relationship counselling support, whether you are in a couple and want to attend together or alone, or single and struggling with relationships, there's dedicated support available through our partnership with Relate - https://www.thebraintumourcharity.org
Looking after your relationships: Access free relationship counselling support, whether you are in a couple and want to attend together or alone, or single and struggling with relationships, there's dedicated support available through our partnership with Relate - https://www.thebraintumourcharity.org
Jane_TBTC
Volunteer
in
Acoustic Neuroma Support
4 years ago
Support spotlight: Relationship service
Looking after your relationships: Access free relationship counselling support, whether you are in a couple and want to attend together or alone, or single and struggling with relationships, there's dedicated support available through our partnership with Relate - https://www.thebraintumourcharity.org
Looking after your relationships: Access free relationship counselling support, whether you are in a couple and want to attend together or alone, or single and struggling with relationships, there's dedicated support available through our partnership with Relate - https://www.thebraintumourcharity.org
Jane_TBTC
Volunteer
in
The Brain Tumour Charity
4 years ago
Free online support??
Hi, im a teenager and Im convinced I have ADHD, but even If I talked my mum about it and she called the neuropsychiatry department of the hospital there's no space left in there until next week and Im in a sort of a crisis since yesterday and I really need to talk with someone that can tell me what's
Hi, im a teenager and Im convinced I have ADHD, but even If I talked my mum about it and she called the neuropsychiatry department of the hospital there's no space left in there until next week and Im in a sort of a crisis since yesterday and I really need to talk with someone that can tell me what's
bebabea
in
CHADD's Adult ADHD Support
4 years ago
Self Care and Self Confidence
I started my counseling internship back up again last week. I was only there for 2 days, but I had some pretty heavy clients. With one client I felt like I could have done things a little differently. Then, I wasn’t able to go in on Thursday because I had a minor medical procedure which was kind of traumatizing
I started my counseling internship back up again last week. I was only there for 2 days, but I had some pretty heavy clients. With one client I felt like I could have done things a little differently. Then, I wasn’t able to go in on Thursday because I had a minor medical procedure which was kind of traumatizing
NewBeginnings2018
in
Anxiety and Depression Support
4 years ago
Diagnosis
I have grade 2 invasive ductal breast cancer. I have 2 cancers, both in the right breast. Both are progesterone and oestrogen receptor positive, but one also has the HER2 protein marker. Because of that I get the entire gold package; surgery, reconstruction, chemo for 6-12 months with hair loss counselling
I have grade 2 invasive ductal breast cancer. I have 2 cancers, both in the right breast. Both are progesterone and oestrogen receptor positive, but one also has the HER2 protein marker. Because of that I get the entire gold package; surgery, reconstruction, chemo for 6-12 months with hair loss counselling
AirIsUnderrated
in
SHARE Breast Cancer Support
4 years ago
The spouse in this marriage repulses me.
I can’t even say “my” spouse; he isn’t “my” anything. Not even remotely attracted to him, never really was. His degrading and bullying way of talking to me most of the time erased any sort of desire to work on the marriage. He would NEVER go to counseling. Now I am not interested anymore. Is this
I can’t even say “my” spouse; he isn’t “my” anything. Not even remotely attracted to him, never really was. His degrading and bullying way of talking to me most of the time erased any sort of desire to work on the marriage. He would NEVER go to counseling. Now I am not interested anymore. Is this
Kangaroo_Alice
in
Anxiety and Depression Support
4 years ago
Muscle spasticity and FND
Does anyone have any experience of episodic spasticity in their legs? I've been diagnosed with FND but I'm not convinced as it was diagnosed after a ten minute phone conversation and a video I sent in of my gait. I've had an MRI of my head and cervical spine which were normal. However, the rest of my
Does anyone have any experience of episodic spasticity in their legs? I've been diagnosed with FND but I'm not convinced as it was diagnosed after a ten minute phone conversation and a video I sent in of my gait. I've had an MRI of my head and cervical spine which were normal. However, the rest of my
unamariececilia
in
Functional Neurological Disorder - FND Hope
4 years ago
Considering IVF with sperm donor as partner doesn't want children
Hey ladies So you never know where the endo journey is going to take you. I wondered if you might have any experience in this area... My current and relatively new partner is a lot younger than me. I'm 31 and he is 24. Though in a lot of ways he is wise beyond his years, the fact remains that he is not
Hey ladies So you never know where the endo journey is going to take you. I wondered if you might have any experience in this area... My current and relatively new partner is a lot younger than me. I'm 31 and he is 24. Though in a lot of ways he is wise beyond his years, the fact remains that he is not
Meriel_Owen
in
Endometriosis UK
4 years ago
i'm new here, please help
hi, i have suffered with anxiety and depression symptoms for over 2 years. A few months ago I finished CBT but have recently been feeling in such a low mood, so much worse than before CBT. I have never been diagnosed as i was never sure how to go about it, but now that i'm of an age where my parents
hi, i have suffered with anxiety and depression symptoms for over 2 years. A few months ago I finished CBT but have recently been feeling in such a low mood, so much worse than before CBT. I have never been diagnosed as i was never sure how to go about it, but now that i'm of an age where my parents
kiran01
in
Mental Health Support
4 years ago
Help getting adhd kid 504/IEP
Nothing like having the school principal calling you with an angry attitude since you called the county board of education. Seriously how long does it take to put an iep or 504 in place? I've been at this since the 4th grade. And most aggressively just before the beginning of the 7th grade school year
Nothing like having the school principal calling you with an angry attitude since you called the county board of education. Seriously how long does it take to put an iep or 504 in place? I've been at this since the 4th grade. And most aggressively just before the beginning of the 7th grade school year
Nitaraeg
in
CHADD's ADHD Parents Together
4 years ago
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