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Psychological and counselling support
My family has just had a very impactful experience, my son who is 22, had open heart surgery twice in the same month and we nearly lost him the second time around. He was in the hospital for 9 weeks all in total, but within that 9 weeks what he went through and what he saw day in day out, was patients
My family has just had a very impactful experience, my son who is 22, had open heart surgery twice in the same month and we nearly lost him the second time around. He was in the hospital for 9 weeks all in total, but within that 9 weeks what he went through and what he saw day in day out, was patients
Never-give-up22
in
British Heart Foundation
2 years ago
Chronic pain and family
Family can be a life jacket in the stormy sea of life..!!..
Talking about our problems is at greatest addiction. Break the habit. Talk about your joys…. famous quote by Rita schiano I, personally agreed to this to some extent, but in case of chronic illness ( I read this in context to chronic
Family can be a life jacket in the stormy sea of life..!!..
Talking about our problems is at greatest addiction. Break the habit. Talk about your joys…. famous quote by Rita schiano I, personally agreed to this to some extent, but in case of chronic illness ( I read this in context to chronic
pratyaya_23
in
My Fibro Community
2 years ago
Chronic pain and family
Family can be a life jacket in the stormy sea of life..!!..
Talking about our problems is at greatest addiction. Break the habit. Talk about your joys…. famous quote by Rita schiano I, personally agreed to this to some extent, but in case of chronic illness ( I read this in context to chronic
Family can be a life jacket in the stormy sea of life..!!..
Talking about our problems is at greatest addiction. Break the habit. Talk about your joys…. famous quote by Rita schiano I, personally agreed to this to some extent, but in case of chronic illness ( I read this in context to chronic
pratyaya_23
in
Anxiety and Depression Support
2 years ago
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Chronic pain and family
Family can be a life jacket in the stormy sea of life..!!..
Talking about our problems is at greatest addiction. Break the habit. Talk about your joys…. famous quote by Rita schiano I, personally agreed to this to some extent, but in case of chronic illness ( I read this in context to chronic
Family can be a life jacket in the stormy sea of life..!!..
Talking about our problems is at greatest addiction. Break the habit. Talk about your joys…. famous quote by Rita schiano I, personally agreed to this to some extent, but in case of chronic illness ( I read this in context to chronic
pratyaya_23
in
Mental Health Support
2 years ago
Side Effects of Niraparib (ZEJULA)?
While I await the results of my genetic test to see if I have the DNA repair defect to allow me to participate in the AMPLITUDE clinical trial, I have been looking at the SEs for Niraparib and they don’t look very pleasant, so I wondered if anyone has used it and has personal experience to share?
While I await the results of my genetic test to see if I have the DNA repair defect to allow me to participate in the AMPLITUDE clinical trial, I have been looking at the SEs for Niraparib and they don’t look very pleasant, so I wondered if anyone has used it and has personal experience to share?
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Genetic test result question
This is my first post to the group after closely following for the past couple of years. In June 2021 I had my my tumor genetic tested by Foundation for mutations. The results came back saying that no significant mutations had been detected. Fast forward to today when I received the results back from
This is my first post to the group after closely following for the past couple of years. In June 2021 I had my my tumor genetic tested by Foundation for mutations. The results came back saying that no significant mutations had been detected. Fast forward to today when I received the results back from
Bears_fan
in
Advanced Prostate Cancer
2 years ago
Genetic tests
What can genetic testing find, beyond mutations? I believe they are looking at the megakaryocytes but not totally sure if I heard correctly. What information can the test give? Anyone?
What can genetic testing find, beyond mutations? I believe they are looking at the megakaryocytes but not totally sure if I heard correctly. What information can the test give? Anyone?
artydutch
in
MPN Voice
2 years ago
16-yo Daughter just diagnosed with ADHD
We now have the ADHD diagnosis I had suspected for some time. But the ADHD is alongside Depression. I'm feeling discouraged because over the years she has always resisted counseling, which we've tried several times (she struggles more than our other kids when things don't go her way), resists medication
We now have the ADHD diagnosis I had suspected for some time. But the ADHD is alongside Depression. I'm feeling discouraged because over the years she has always resisted counseling, which we've tried several times (she struggles more than our other kids when things don't go her way), resists medication
longhorn9
in
CHADD's ADHD Parents Together
2 years ago
BLUE SKY NEWS - AUGUST 2022
While some of the content of the August edition of the [i]Blue Sky New[/i]’s publication from Prostate Cancer Foundation Australia (PCFA) is mainly relevant to readers from Oz, there are a number of general items that might be of interest to other readers. Information and links to this edition
While some of the content of the August edition of the [i]Blue Sky New[/i]’s publication from Prostate Cancer Foundation Australia (PCFA) is mainly relevant to readers from Oz, there are a number of general items that might be of interest to other readers. Information and links to this edition
marnieg46
in
Fight Prostate Cancer
2 years ago
heart defect
Hi everyone, I’m new to this group as I’m 28 weeks pregnant and it’s been discovered my baby has a heart defect that she’s inherited from me and I never knew I had, its causing her to have mild bradycardia and an abnormal heart rhythm which they think is caused by the heart’s electrical nodes. the genetic
Hi everyone, I’m new to this group as I’m 28 weeks pregnant and it’s been discovered my baby has a heart defect that she’s inherited from me and I never knew I had, its causing her to have mild bradycardia and an abnormal heart rhythm which they think is caused by the heart’s electrical nodes. the genetic
Katy_x
in
British Heart Foundation
2 years ago
there is just way too much pan
first thanks for everyone's concern for me. Here's where im at.I'm going to be honest, I'm not that ok. I'm in so much pain I can't stand it. I just sob all day. My wife and son have been away this week and every day Stefen who's 12 send me texts how much he misses me and loves me and another just
first thanks for everyone's concern for me. Here's where im at.I'm going to be honest, I'm not that ok. I'm in so much pain I can't stand it. I just sob all day. My wife and son have been away this week and every day Stefen who's 12 send me texts how much he misses me and loves me and another just
Joshgw
in
Anxiety and Depression Support
2 years ago
ADHD support group in / near Coeur d'Alene, Idaho?
Hi all. My partner may have undiagnosed adult ADHD. I'm looking for resources and support groups near Coeur d'Alene (CDA). Ideally I'd like to meet and chat with people who might be able to share their insights and experiences. E.g. where can I find a good counseling service near CDA? Thanks!
Hi all. My partner may have undiagnosed adult ADHD. I'm looking for resources and support groups near Coeur d'Alene (CDA). Ideally I'd like to meet and chat with people who might be able to share their insights and experiences. E.g. where can I find a good counseling service near CDA? Thanks!
macaco89
in
CHADD's Adult ADHD Support
2 years ago
How important is genetic testing
Should I get a genetic test done to confirm the type of cancer I have. Thanks
Should I get a genetic test done to confirm the type of cancer I have. Thanks
Islandboy2021
in
Advanced Prostate Cancer
2 years ago
struggling with Adenomyosis
Long post sorry in advance, I’m just struggling today and need some advice. Can anyone recommend an adenomyosis specialist? My consultant was a BSGE endo specialist so I had high hopes but since I was diagnosed in November after my laparoscopy he discharged me. He’s told me my adeno isn’t responsible
Long post sorry in advance, I’m just struggling today and need some advice. Can anyone recommend an adenomyosis specialist? My consultant was a BSGE endo specialist so I had high hopes but since I was diagnosed in November after my laparoscopy he discharged me. He’s told me my adeno isn’t responsible
Dartmouth93
in
Endometriosis UK
2 years ago
Genetic test results
ugh my genetic test results are in and I have to wait 2 weeks for the results why?? Ugg
ugh my genetic test results are in and I have to wait 2 weeks for the results why?? Ugg
Sfqueen
in
Anxiety Support
2 years ago
It is what it is but good news for my brother and nephew I think
It is what it is but would appreciate views. I participated in a research study at RMH in the U.K. entitled “Precision Medicine in the prostate cancer care pathway: An evaluation of integrating germline genetic testing into the management at risk of/living with prostate cancer”. They tested DNA with
It is what it is but would appreciate views. I participated in a research study at RMH in the U.K. entitled “Precision Medicine in the prostate cancer care pathway: An evaluation of integrating germline genetic testing into the management at risk of/living with prostate cancer”. They tested DNA with
GreenStreet
in
Advanced Prostate Cancer
2 years ago
Lu-177 update
Hello all, just wanted to give an update on my experience with Lutetium. Although I have not had any chemo I decided to take a chance and traveled to India for Lutetium treatments. I started my first treatment last August with a PSA of 3.11 and a good amount of expression found by my PSMA scans. I traveled
Hello all, just wanted to give an update on my experience with Lutetium. Although I have not had any chemo I decided to take a chance and traveled to India for Lutetium treatments. I started my first treatment last August with a PSA of 3.11 and a good amount of expression found by my PSMA scans. I traveled
Eugmn
in
Advanced Prostate Cancer
2 years ago
Isolated
Dear all, Im sorry to post again,but I feel so isolated. I've found the summer holidays and the last month (without medication)really hard and isolating. I just feel like nobody around me understands. I think my husband is fed up of hearing how I feel and since I'm 18months postpartum just
Dear all, Im sorry to post again,but I feel so isolated. I've found the summer holidays and the last month (without medication)really hard and isolating. I just feel like nobody around me understands. I think my husband is fed up of hearing how I feel and since I'm 18months postpartum just
Dolly292
in
Action on Postpartum Psychosis
2 years ago
Input on Treatment
After my MRI showed a PIRADS 5 lesion, my biopsy came back with a Gleason 4+3 in 5/13 cores. PSA measures 7.5, but would be 15 without my daily Finasteride. ECE was suspected, but my PSMA PET confirmed no spread outside the prostate. That’s a relief. Graded as unfavorable intermediate. I‘ve decided
After my MRI showed a PIRADS 5 lesion, my biopsy came back with a Gleason 4+3 in 5/13 cores. PSA measures 7.5, but would be 15 without my daily Finasteride. ECE was suspected, but my PSMA PET confirmed no spread outside the prostate. That’s a relief. Graded as unfavorable intermediate. I‘ve decided
Mike404
in
Prostate Cancer Network
2 years ago
How to get T3?
I’ve posted a lot on my ongoing struggle with fatigue and muscle problems I have b12 deficiency now injecting, vitamin D deficiency now corrected, low normal levels of folate, ferritin. I’ve been given pancreatic enzymes as they are low, taking daily iron. I’ve just checked my recent thyroid panel
I’ve posted a lot on my ongoing struggle with fatigue and muscle problems I have b12 deficiency now injecting, vitamin D deficiency now corrected, low normal levels of folate, ferritin. I’ve been given pancreatic enzymes as they are low, taking daily iron. I’ve just checked my recent thyroid panel
Mag999
in
Thyroid UK
2 years ago
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