BLUE SKY NEWS - AUGUST 2022

[marnieg46]

While some of the content of the August edition of the Blue Sky New’s publication from Prostate Cancer Foundation Australia (PCFA) is mainly relevant to readers from Oz, there are a number of general items that might be of interest to other readers.  Information and links to this edition and previous 2022 publications are also provided.

Mental Help Matters

This item acknowledges the launch of a project to create Australia’s first Prostate Cancer Survivorship Toolkit.   PCFA’s Chief of Mission and Head of Research, Professor Jeff Dunn AO, says the toolkit will give men the knowledge and strength they need to navigate prostate cancer “Importantly we want the web-based toolkit to provide men with a virtual clubhouse for connecting with other survivors and supporters” 

Epigenetics and Prostate Cancer: can the dance of your DNA Determine Cancer Survival

This article focuses on the research to be undertaken by Dr Pierre-Antonine Dugue exploring the connection between epigenetics and prostate cancer survival, progression and outcomes.  He describes his main objective as to “identify patients who are high risk or low risk of their cancer spreading, so we can make better decision about treating the disease and minimising invasive procedures or starting early with more powerful medicines.”

 In the Name of the Father

While the statistics in this item apply to Australia, the message is universal.  It raises awareness to the need for vigilance by those young men who have a family history of prostate cancer.  I found this item a good reminder and an issue of personal relevance for the men and boys in my family.  For our son, both his late grandfather and father have been affected and for four of our grandsons both grandfathers (maternal and paternal) and a great grandfather have been affected.  

Love, Live, Surf and Survivorship

Tim Baker, the world’s number one surf culture anthropologist and award-winning journalist, storyteller and author of nine books has recently released his first autobiography documenting his experience with prostate cancer.  Aptly named Patting the Shark is described in this article as “impossible to put down, telling of Tim’s efforts to navigate his way through the maze of treatment, meditation, diet, exercise, emotional support and counselling.   The book’s blurb states “This is a story about facing your mortality, staring down your fears, and working out what really matters in life, when so many elements of your identity are stripped away.  It offers hope comfort and empathy for anyone facing a cancer diagnosis and their loved ones.”  The book is published by Penguin.   

 Latest News on Prostate Cancer: Progress from Around the World

Distant-stage diagnosis doubles in the USA:

PSA testing under the spotlightTheraP 3-year follow up proves positive: LuPSMA effective against

prostate cancer

The double vs triple dilemma: Australian leaders advocating for new standards of care

Predicting prostate cancer prognosis could get easier:

Scientists discover a new biomarker 

New Medicine Listings

Darolutamide/NUBEQA - saving $A40 000

Apalutamide/Eryland  -  saving $A40 000O

Olaparib/Lynparza - saving $A45 000

PSMA PET/CT Scanning  -  saving $A1 200     

Link to August Edition of Blue Sky 

pcfa.org.au/media/791768/pc...

Previous Editions from 2022

Alert: While members of this forum, and those who are continually seeking new information on the development and trajectory of prostate cancer, will be familiar with much of the content from the 2022 past editions, the contents and links are provided in case they are of interest to others.  

Blue Sky News January

Contents:

New Nursing Services

PSMA Theranostics - A New Standard of Care that is Saving Lives

Facing the Tiger - Learning how to Pivot when Prostate Cancer Strikes

Understanding Erectile Dysfunction - an excerpt from a new book (4th Edition) by Professor Prem

Rashid - Your Guide to Prostate Cancer: the disease, treatment options and outcomes.

Genetic Risks - The Hereditary and Genetic Factors that can Influence Prostate Cancer Outcomes

Men at Work - Striving and Thriving after Prostrate Cancer

Research Breakthroughs

pcfa.org.au/media/791271/bl...

Blue Sky News March

Contents:

New Counselling Service

The New Age of Nuclear Medicine - Transforming Care and Saving Lives

Sex After Prostate Cancer - Overcoming Erectile Dysfunction

Research: Australia's Best and Brightest

Global News:

(i) Older Age may increase risks of high-grade prostate cancer

(ii) PSMA PET/CT may provide predictive biomarker for prostate cancer

(iii) Gut bacteria may help fight advanced prostate cancer

(iv) Exercise may slow disease progression in advanced prostate cancer

pcfa.org.au/media/791431/pc...

[NickJoy]

Thank you

[marnieg46 in reply to NickJoy]

My pleasure. Hope you found some parts of interest to you.

[NPfisherman]

Thanks Marnie,

I was not aware of Blue Sky News... This covers all aspects of living with PCa... new developments, help on chronic issues... It's enough to get me singing ,,"Waltzing Matilda", but maybe I better leave that for a K9 Vocalist... He sings like Frank Sinatra, but dances like Fred Astaire...

Dangerous 1

[cujoe in reply to NPfisherman]

Since you asked . . .

youtube.com/watch?v=V7cPcEa...(Not working as expected?)

and in Marnie's honor, there is this one . . .

youtube.com/watch?v=FXMaUnl...(Not working as expected?)

OZonian Blue Skies and Blue Seas as far as the DownUnder eye can see.

Ciao, Capt'n K9

[NPfisherman in reply to cujoe]

I was wrong...he sings like Willie Nelson... and dances like Michael Jackson...

D1

[marnieg46 in reply to NPfisherman]

Well Dave I'm glad you think it's OK...I was a bit worried that for many on this hub, at least, it might be a bit basic.

[NPfisherman in reply to marnieg46]

Lady Marnie,

I don't believe so...We are Fight Prostate Cancer forum and we have had people requesting information from initial treatment to advanced... So, everything goes here... at least IMHO...got your message, and will try and send a response soon... Hope things are well in Oz

DD

[CAMPSOUPS in reply to marnieg46]

I found your post interesting and of value.I joined the advanced PC category of HU/Malecare about 2 years ago.

Posts from "fight prostate cancer" show up in my posts. I don't know if I "clicked" caused that but definitely no complaints.

On top of that the back and forth between cujoe, npfisherman, yourself, et all is informative and at the same time warm.

Thanks.

[marnieg46 in reply to CAMPSOUPS]

npfisherman or cujoe will be able to explain to you why the posts show up in your stream of posts. I'm not sure and don't understand the 'mechanics' of it but it's something to do with FPC 'sitting on' a different 'hub'. so if I click on ' My hub' at the top.... the various ones I visit come up like APC and FPC but I think you need to have actioned something for this to happen...which you probably have done.

I'm really glad you found the post interesting. I like this publication as it's sort of straight forward and has a 'friendly' simple feel to it. Just general content though nothing earth shattering!

Nice feedback that you find this hub informative and it will give acknowledgement and encouragement to those men who post new developments in the area of research, and explanations of the various aspects of this condition as well as providing balanced and well informed advice to those who post on FPC - especially cujoe and npfisherman (Dave to me) and others too. I always find that they are a source of exceptionally well informed, sound, wise, practical advice as well as being positive and supportive. MateoBeach, similarly who has recently added his unique contributions.

Regards, Marnie.

[CAMPSOUPS in reply to marnieg46]

Thank you.

You're very kind and thoughtful.

Yes I assume somewhere in my fog ridden memory I would find that I had purposefully added FPC lol.

Yes it seems you here are a group or crew (npfisherman pun intended) that has known each other somewhat personally for awhile. Nice.

[marnieg46 in reply to CAMPSOUPS]

To be honest I can't remember how I added it either. Expect one of my 'mates' told me how to do it. Yes some of us have communicated over quite a while now...been through the bumps along the way. If you stick around you'll find, like I have, that it's a very positive, supportive, respectful group.

[MateoBeach]

Thanks Marnie. I’ll get that book Petting the Shark. Paul

[marnieg46 in reply to MateoBeach]

It has had a lot of coverage here Paul and very good reviews.

When I was reading the information in the link below, it brought back very pleasant memories of our day at Manly and watching the surfing competition. Hope all goes well for you.

penguin.com.au/books/pattin...

[cujoe in reply to marnieg46]

M - Your linked excerpt from the book is a riveting description of a dangerous encounter with a shark and a first encounter with the internal danger we come to know as PCa. Another book to add to my long reading list, but one that I'm sure will resonate with all those reading here.

Thanks, as always, for your thoughtful insights. Keep it Safe & Well in the Land of Great World-Class Surfers. Ciao - K9

***

PS - I just edited this reply to add a super review of the book that adds more depth to the journey of the author, Tim Baker, in embracing his cancer diagnosis and life thereafter. Good Stuff for all of us on our separately shared journeys with life & PCa.

swellnet.com/news/the-depth...

[marnieg46 in reply to cujoe]

A great find cujoe...expressed in the language of everyday and moved it from a review to a conversation...great find

[d3is4me in reply to marnieg46]

Hi Marnie I do not know how to attach links or videos but I am sure others do.I have just listened to Tim Baker audio only podcast on ABC Conversations

CANCER MANHOOD AND ME 18/August 2022 some is a little basic but very interesting about no support being offered on DX.

[marnieg46 in reply to d3is4me]

Hi Ross, Great find.

This is the link to the ABC episode. Not sure if those outside of Oz can access:

abc.net.au/radio/programs/c...

It's also on Apple Podcasts but will need to go through the App.

Not yet on YouTube but other ones of his are there so probably will be posted there at some stage.

Trust all continues to go well. Marnie

[d3is4me]

Marnie great posting as always Ross