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Gaucher disease type 3 (GD3)
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Cryo ablation 6 days ago..am I back in AF?
I've been for an ECG this afternoon the results of which are being passed to the arrhythmia nurse team at the JR in Oxford, where I had a cryo ablation last Friday. AF symptoms of breathlessness and feeling faint and then some for a couple of days and now a bit more settled but irregular and fast pulse
I've been for an ECG this afternoon the results of which are being passed to the arrhythmia nurse team at the JR in Oxford, where I had a cryo ablation last Friday. AF symptoms of breathlessness and feeling faint and then some for a couple of days and now a bit more settled but irregular and fast pulse
JoDogBlue
in
Atrial Fibrillation Support
4 months ago
New Developments in My Husband's PCA Journey
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
103532
in
Advanced Prostate Cancer
8 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
5 months ago
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To Thyroidectomy or Not to Thyroidectomy
Hi there! Hoping for some guidance, advice and possibly real life results from some members. I was diagnosed with Graves' Disease this time last year. I had every possible symptom you can imagine. I started on Methimazole almost immediately. My numbers have gotten better but are still not controlled.
Hi there! Hoping for some guidance, advice and possibly real life results from some members. I was diagnosed with Graves' Disease this time last year. I had every possible symptom you can imagine. I started on Methimazole almost immediately. My numbers have gotten better but are still not controlled.
TeahM602
in
Thyroid UK
8 months ago
10 year PMR anniversary! A new drug for me called Etanercept being advised.
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
MC60
in
PMRGCAuk
5 months ago
Update on heart problems
Thank you all for your input last week re my 2 leaky valves and pulmonary hypertension diagnosis. Forgot to mention also have very low heart beat, low 40s , of which I was already aware but thought that was healthy, however, bradycardia at my age is apparently not good.I did a lot of phoning around
Thank you all for your input last week re my 2 leaky valves and pulmonary hypertension diagnosis. Forgot to mention also have very low heart beat, low 40s , of which I was already aware but thought that was healthy, however, bradycardia at my age is apparently not good.I did a lot of phoning around
JP1952
in
MPN Voice
4 months ago
Lupus and Fibromyalgia with Sjogren syndrome
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
Denise1219
in
LUpus Patients Understanding and Support
5 months ago
IPX203 shows sustained safety, efficacy in RISE-PD extension trial
Using IPX203, an extended-release formulation of carbidopa/levodopa (CD/LD), was associated with a sustained control of symptoms for Parkinson’s disease patients who participated in the open-label extension of the RISE-PD Phase 3 trial. Final results from the nine-month extension study (NCT03877510
Using IPX203, an extended-release formulation of carbidopa/levodopa (CD/LD), was associated with a sustained control of symptoms for Parkinson’s disease patients who participated in the open-label extension of the RISE-PD Phase 3 trial. Final results from the nine-month extension study (NCT03877510
Farooqji
in
Cure Parkinson's
8 months ago
JAK2 V617F Allele Burden and Thrombotic Events in Patients w/ JAK2 V617F Positive PCV/ET @ High Risk of Thrombosis
Background
: The goal of therapy of polycythemia vera (PV) and essential thrombocythemia (ET) is primarily to prevent vascular events that are the leading cause of morbidity and mortality. Patients older than 60 years or with a previous history of thrombotic complications are considered at high
Background
: The goal of therapy of polycythemia vera (PV) and essential thrombocythemia (ET) is primarily to prevent vascular events that are the leading cause of morbidity and mortality. Patients older than 60 years or with a previous history of thrombotic complications are considered at high
PhysAssist
in
MPN Voice
4 months ago
5 Days Post Ablation and getting an ECG
After three days of being extremely breathless and light headed following a cryo ablation at the JR last Friday I'm now feeling more settled, my pulse still fast and irregular but not as extreme. I had a call from an arrhythmia nurse (at last) at the JR who was very helpful. The next step is an ECG
After three days of being extremely breathless and light headed following a cryo ablation at the JR last Friday I'm now feeling more settled, my pulse still fast and irregular but not as extreme. I had a call from an arrhythmia nurse (at last) at the JR who was very helpful. The next step is an ECG
JoDogBlue
in
Atrial Fibrillation Support
4 months ago
No one died from A F
I posted earlier today . I am not now being negative , I am trying to be pragmatic . On this brilliant forum we are constantly told “ no one dies of AF “. I was wondering what actually brought on the first bout of A F to people here. Mine came on years after Mitral Valve repair . 2 long ablations
I posted earlier today . I am not now being negative , I am trying to be pragmatic . On this brilliant forum we are constantly told “ no one dies of AF “. I was wondering what actually brought on the first bout of A F to people here. Mine came on years after Mitral Valve repair . 2 long ablations
Luludean
in
Atrial Fibrillation Support
4 months ago
What is a cardioversion?
If you have AF you may have been offered a cardioversion, but may be unsure of what to expect? A
cardioversion
is a procedure to convert your heart from AF back into normal (sinus) rhythm. This is achieved by administering a rhythm control medication (antiarrhythmic drug) by mouth or through
If you have AF you may have been offered a cardioversion, but may be unsure of what to expect? A
cardioversion
is a procedure to convert your heart from AF back into normal (sinus) rhythm. This is achieved by administering a rhythm control medication (antiarrhythmic drug) by mouth or through
TracyAdmin
Partner
in
Atrial Fibrillation Support
4 months ago
Lopressor dose titration
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
farewelltoarms
in
Atrial Fibrillation Support
4 months ago
Parkinson's disease breakthrough
The following article claims that the majority of "Parkinson's Disease" is started by just a simple bacteria called Desulfovibrio, and the rest about 10 percent is caused by individual genes. Parkinson's disease could be prevented in the future after scientists discovered that a certain strain of bacteria
The following article claims that the majority of "Parkinson's Disease" is started by just a simple bacteria called Desulfovibrio, and the rest about 10 percent is caused by individual genes. Parkinson's disease could be prevented in the future after scientists discovered that a certain strain of bacteria
Baron1
in
Cure Parkinson's
8 months ago
Lupus participants needed for a study with The University of Edinburgh!
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
michaellasmith
Administrator
in
LUPUS UK
5 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Hughes Syndrome APS Forum
5 months ago
Happy but not really
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
EliezerCan2
in
Pain Concern
4 months ago
new immune therapy phase 1-2 trial: targeting NK cells
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
Maxone73
in
Advanced Prostate Cancer
8 months ago
Update On Eclipse Trial-another failure. Has LU-177 worked for anyone?
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
SViking
in
Advanced Prostate Cancer
8 months ago
Fitbit versus Apple watch
Thank you to everyone who replied to my post re Apple watch and Kardia. I decided on the Kardia 6 as part of the kit mainly because cardiologists seem to think they are accurate. I am still not decided on the watch yet. I havnt been diag with AF yet as some may remember , Ectopics yes , and they are
Thank you to everyone who replied to my post re Apple watch and Kardia. I decided on the Kardia 6 as part of the kit mainly because cardiologists seem to think they are accurate. I am still not decided on the watch yet. I havnt been diag with AF yet as some may remember , Ectopics yes , and they are
ainslie
in
Atrial Fibrillation Support
4 months ago
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