Update on heart problems

[JP1952]

Thank you all for your input last week re my 2 leaky valves and pulmonary hypertension diagnosis. Forgot to mention also have very low heart beat, low 40s , of which I was already aware but thought that was healthy, however, bradycardia at my age is apparently not good.I did a lot of phoning around to my surgery and the hospital where I had the tests. Told by a receptionist that I had been referred urgently for a cardiologist appointment, waiting time would be 27 weeks.

So managed to get an appointment with my surgery to discuss my condition with a GP. He looked at my results and stated the valve leaks were mild, the left side of my heart was being affected and because the pumping chambers of the heart are on the right side I wasn't in imminent danger of a heart attack. What was going on in my heart was a very slow progression and I should be OK to wait for the NHS appointment.

He advised I could continue to live my life as normal because I should have quality of life. Even to run , moderate alcohol consumption, and a daily coffee.

So came away somewhat reassured but we are toying with the idea of a private consultation with a cardiologist. Before the chat with the GP I had made an effort to not exert myself and that has cut down the heart palpitations I experience, as I find the palpitations quite alarming and sometimes have to sit down I think I shall continue to be cautious.

[hunter5582]

Suggest that it would be prudent to consult with a cardiologist sooner rather than later. A wait of over 6 months is longer than optimal. The bradycardia is significant in the context of the other issues. Note that you will likely need to see two types of cardiologists. One needs to be an electrophysiologist. Cardiologists come in several types, including plumbers and electricians. Sometimes we need both.

It would be worth a private consult if that is the only way to get seen sooner. Suggest also consulting a MPN Specialist about prioritization.

Please do let us know how you get on.

[JP1952 in reply to hunter5582]

Thank you.

[saltmarsh]

I think this is something you should prioritize. I had an aortic valve replacement just over 5 years ago. The year before the surgery the leakage was rated severe and I wound up in the ER 3 times due to palpitations. It was not pleasant. I finally forced the issue and had the surgery which was successful. After that I have had zero issues and maintain a very active lifestyle. The following year I was diagnosed with PV. I have had no cardiac issues at all but still regret the year I basically lost. So please consider following up with a cardiologist. And get an echocardiogram and/or cardiac catheterization. Those tests would provide a comprehensive picture of your situation.

Trust me - the future is bright. I am 76, very active and heart is fine. Good luck. I'm truly sorry about the palpitations.

[JP1952 in reply to saltmarsh]

Thank you. It always helps to hear other people's experiences. Will have a week thinking on it and discussing it with my husband and children.

[Nickthedevil]

I would ask your MPN consultant to contact the cardiologist. Mine did this last year because she was concerned about the wait and the appointment was bought forward