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Gaucher disease type 3 (GD3)
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Prednisolone for Lupus Flare
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Chris5530
in
LUPUS UK
5 months ago
hydroxychloroquine and stuffy itchy nose with occasional bleeding.
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
Apm2626
in
NRAS
5 months ago
B12 stored in liver ?
Hi I'm getting a little confused and trying to understand what is actually measured with blood tests... Does a serum Total B12 reflect what is or isn't stored in the liver at the time of the test or just what is circulating ? Does an Active B12 test measure the store differently, is the store in
Hi I'm getting a little confused and trying to understand what is actually measured with blood tests... Does a serum Total B12 reflect what is or isn't stored in the liver at the time of the test or just what is circulating ? Does an Active B12 test measure the store differently, is the store in
Spritze
in
Thyroid UK
8 months ago
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Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
5 months ago
What dosage are Carvedilol users on?
Afternoon, I've switched off bisoprolol onto Carvedilol and am still getting some episodes of Afib/ flutter with a high heart rate during exercise. I started on 3.25mg Carvedilol twice daily, now on 6.5mg twice daily, the next logical step is to jump to 12.5 mg twice daily. Just trying to see what
Afternoon, I've switched off bisoprolol onto Carvedilol and am still getting some episodes of Afib/ flutter with a high heart rate during exercise. I started on 3.25mg Carvedilol twice daily, now on 6.5mg twice daily, the next logical step is to jump to 12.5 mg twice daily. Just trying to see what
kitenski
in
Atrial Fibrillation Support
4 months ago
cutaneous lupus
Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my scalp. Have you tried dermovate hair and scalp liquid? My consultant prescribed it to me and it’s actually worked really well. It even worked on my skin. i really hope this helps you.
Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my scalp. Have you tried dermovate hair and scalp liquid? My consultant prescribed it to me and it’s actually worked really well. It even worked on my skin. i really hope this helps you.
Beryl2485
in
LUPUS UK
5 months ago
Health Anxiety over liver damage
Hello, I’m 34 year old female who has definitely over indulged in wine the last few years. my husband and I were living the expat life prior to 2020 and drank a lot with friends and at home. i have had a few breaks since 2020 which was about 10 months in 2020 and nearly 12 months in 2022. Since
Hello, I’m 34 year old female who has definitely over indulged in wine the last few years. my husband and I were living the expat life prior to 2020 and drank a lot with friends and at home. i have had a few breaks since 2020 which was about 10 months in 2020 and nearly 12 months in 2022. Since
Santababy89
in
British Liver Trust
8 months ago
Do Sulforaphane, Melatonin, and Cayenne Pepper work?
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
SisuMike
in
Advanced Prostate Cancer
8 months ago
can i have it??
i’ve stopped having donner since being diagnosed with celiac disease. i never used to have the wrap just the donner. today after chatting to family some glutens said they have it with no problems and it’s gluten free. i’m confused 🤷🏻♀️
i’ve stopped having donner since being diagnosed with celiac disease. i never used to have the wrap just the donner. today after chatting to family some glutens said they have it with no problems and it’s gluten free. i’m confused 🤷🏻♀️
Junny123
in
Gluten Free Guerrillas
8 months ago
Statins
I have AF but it’s controlled so far with daily flecainide and bisoprolol. I get a three monthly blood test for iron overload but this week the doctor advised me to get a cholesterol blood test as well. All of my results for cholesterol were within the ranges but my doc advised that it’s recommended
I have AF but it’s controlled so far with daily flecainide and bisoprolol. I get a three monthly blood test for iron overload but this week the doctor advised me to get a cholesterol blood test as well. All of my results for cholesterol were within the ranges but my doc advised that it’s recommended
Profound15
in
Atrial Fibrillation Support
4 months ago
psoriatic arthritis
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Beata0102
in
NRAS
5 months ago
Desperately trying to save my partner.
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a liver transplant. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse. He had an assessment at the
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a liver transplant. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse. He had an assessment at the
Ffof6
in
British Liver Trust
8 months ago
bicalutamide no longer as effective?
After more than two years of bicalutamide monotherapy and repeated PSA<0.1 I just received a 0.6. Before the bicalutamide my PSMA scan showed activity in only the seminal vesicle region. PSA was 2.5 at that time. Lupron had ceased being effective. Bicalutamide had a terrific response. I don’t think PSMA
After more than two years of bicalutamide monotherapy and repeated PSA<0.1 I just received a 0.6. Before the bicalutamide my PSMA scan showed activity in only the seminal vesicle region. PSA was 2.5 at that time. Lupron had ceased being effective. Bicalutamide had a terrific response. I don’t think PSMA
kreg001
in
Advanced Prostate Cancer
8 months ago
Still no treatment. After nearly 2 years of tests and consultations
Previous posts: https://healthunlocked.com/thyroiduk/posts/149434676/next-steps-in-diagnosis-and-coeliac-disease. https://healthunlocked.com/thyroiduk/posts/149295601/undate-after-endocrinologist-appointment https://healthunlocked.com/thyroiduk/posts/149288239/hypothyroidism-confusing-test-results
Previous posts: https://healthunlocked.com/thyroiduk/posts/149434676/next-steps-in-diagnosis-and-coeliac-disease. https://healthunlocked.com/thyroiduk/posts/149295601/undate-after-endocrinologist-appointment https://healthunlocked.com/thyroiduk/posts/149288239/hypothyroidism-confusing-test-results
Moviegeek7
in
Thyroid UK
10 months ago
Elevated PSA 8 weeks after Robotic Prostatectomy
At the age of 70 my most recent treatment was a Robotic Prostatectomy after which pathology report was Gl 3+4 prostate cancer, pT3a (EPE and bladder neck invasion), N1 (1/15 nodes positive), multiple positive margins.( Prior to that I underwent Cryotherapy for prostate cancer in Mar 2012.) My PSA level
At the age of 70 my most recent treatment was a Robotic Prostatectomy after which pathology report was Gl 3+4 prostate cancer, pT3a (EPE and bladder neck invasion), N1 (1/15 nodes positive), multiple positive margins.( Prior to that I underwent Cryotherapy for prostate cancer in Mar 2012.) My PSA level
OLDSALTY2008
in
Advanced Prostate Cancer
8 months ago
Very low blood sugar - anyone had anything similar ?
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Sleepman
in
Thyroid UK
5 months ago
Proteolysis-Targeting Chimeras (PROTACs): targeting cancer by deleting deleterious proteins?
There seem to be a kind of superiority of PROTACs over conventional inhibitors in treating prostate cancer. The article examines various targets for PROTACs in prostate cancer, including the androgen receptor and other critical oncoproteins, while addressing future prospects and challenges in this
There seem to be a kind of superiority of PROTACs over conventional inhibitors in treating prostate cancer. The article examines various targets for PROTACs in prostate cancer, including the androgen receptor and other critical oncoproteins, while addressing future prospects and challenges in this
Maxone73
in
Advanced Prostate Cancer
8 months ago
High Cholesterol
Hi everyone, this is my first post. I have been experiencing symptoms of underactive thyroid and requested a blood test to look into it (this was done 2 days ago). I got a text message last night saying my routine blood test shows I have high cholesterol and advise going on statins. No mention of my
Hi everyone, this is my first post. I have been experiencing symptoms of underactive thyroid and requested a blood test to look into it (this was done 2 days ago). I got a text message last night saying my routine blood test shows I have high cholesterol and advise going on statins. No mention of my
RedorBed
in
Thyroid UK
5 months ago
kidney stones
The doctor has said I could have kidney stones but because the pain is very mild it’s not an immediate concern as it’s the weekend. I should try and ride it out until my blood tests and scan next week unless it gets severe.
The doctor has said I could have kidney stones but because the pain is very mild it’s not an immediate concern as it’s the weekend. I should try and ride it out until my blood tests and scan next week unless it gets severe.
Kimbad1990
in
Early CKD Support
8 months ago
Cardioversion with amiodarone or straight to ablation?
CV 24/2 failed after 1 week. Heart function team suggest course of amiodarone combined with further CV after a few months of this medication. They have left it with me to consider what I would prefer to do. Either proceed with the above ( with a list of potential side effects which are impossible
CV 24/2 failed after 1 week. Heart function team suggest course of amiodarone combined with further CV after a few months of this medication. They have left it with me to consider what I would prefer to do. Either proceed with the above ( with a list of potential side effects which are impossible
Hallane
in
Atrial Fibrillation Support
4 months ago
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