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Experiences with
Gaucher disease type 3 (GD3)
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WHY WHY WHY
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Janith
in
Atrial Fibrillation Support
4 months ago
Cortisol Saliva test results
Hi, I’ve done the cortisol saliva test result shown in the photo below. it advises adrenaline fatigued stage 2. Has anyone been at this stage before and what did they do to help it heal? Thanks
Hi, I’ve done the cortisol saliva test result shown in the photo below. it advises adrenaline fatigued stage 2. Has anyone been at this stage before and what did they do to help it heal? Thanks
Denny39
in
Thyroid UK
7 months ago
CT scan instead of gastroscopy / colonoscopy with all PA tests normal
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
Applethorpe
in
Pernicious Anaemia Society
5 months ago
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Rheumatology consultant with specialist interest in Lupus
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Jenfy34
in
LUPUS UK
5 months ago
IBS and Coeliac
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
Mollydav
in
IBS Network
5 months ago
PSA At Very Low Levels But Starting to Rise
My PSA started to rise from undetectable up to about .36 in July 2021 after 9 years of treatment. My MO reviewed a PSMA and decided to have my largest tumor radiated. My PSA went below .05 once again shortly thereafter. My most recent PSA labs were : .05, .06, .06, and .09 last week. I am conferring
My PSA started to rise from undetectable up to about .36 in July 2021 after 9 years of treatment. My MO reviewed a PSMA and decided to have my largest tumor radiated. My PSA went below .05 once again shortly thereafter. My most recent PSA labs were : .05, .06, .06, and .09 last week. I am conferring
jfoesq
in
Advanced Prostate Cancer
7 months ago
A 47 year old recent heart attack survivor
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
Drakeywilson
in
Cholesterol Support
4 months ago
Afib Medication
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Jedburgh
in
AF Association
4 months ago
What constitutes low heart rate?
Recently prescribed bisoprolol 1.25, consultant did say if HR drops to low I should stop taking it. HR is 34/35 when I'm asleep. Should I be concerned about this? HR seems to be okay during the day but difficult to establish because it fluctuates because I have been in constant AFib for two days now
Recently prescribed bisoprolol 1.25, consultant did say if HR drops to low I should stop taking it. HR is 34/35 when I'm asleep. Should I be concerned about this? HR seems to be okay during the day but difficult to establish because it fluctuates because I have been in constant AFib for two days now
DizzyD
in
Atrial Fibrillation Support
4 months ago
My uncertain heart
After an hour of sitting and reading the paper online this morning, I noticed sensations in my chest similar to those that have previously indicated AF. My Wellue told me I was in sinus but the rhythm was irregular and there were PACs and PVCs. I have often noticed that PACs and PVCs in the mornings
After an hour of sitting and reading the paper online this morning, I noticed sensations in my chest similar to those that have previously indicated AF. My Wellue told me I was in sinus but the rhythm was irregular and there were PACs and PVCs. I have often noticed that PACs and PVCs in the mornings
Sambaqui
in
AF Association
4 months ago
Ablation
I have my new date (26th March) for my ablation at Glenfield Hospital, Leicester, under Professor Andre Ng.Does anyone have any positive experiences to share as I am getting really scared now reading some of the feedback after ablation which is making me doubt my decision. I have paroxysmal AF which
I have my new date (26th March) for my ablation at Glenfield Hospital, Leicester, under Professor Andre Ng.Does anyone have any positive experiences to share as I am getting really scared now reading some of the feedback after ablation which is making me doubt my decision. I have paroxysmal AF which
Karendeena
in
AF Association
4 months ago
Post RP/SRT Pelvic Mass?
RRP 2/02, SRT 7/16, BCR 9/23 Latest PSA .17 I recently retired and have been spending more time sitting on my ass in front of the computer [like right now] than I should. Over the last couple of months I have begun to feel/sense that I am sitting on something, very similar to what I felt pre-RP. At
RRP 2/02, SRT 7/16, BCR 9/23 Latest PSA .17 I recently retired and have been spending more time sitting on my ass in front of the computer [like right now] than I should. Over the last couple of months I have begun to feel/sense that I am sitting on something, very similar to what I felt pre-RP. At
bldn10
in
Advanced Prostate Cancer
7 months ago
EP consult
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
Desertflowerchild
in
Atrial Fibrillation Support
4 months ago
heart arteries heavily calcified
hi I’ve had PV and ET since August 2015 I recently started with chest pain after MRI and CT angiogram I was diagnosed with heavily calcified LAD artery and diagonal artery both severe They started me on high intensity statins and propanol My stress test didn’t achieve the required heart rate of 160
hi I’ve had PV and ET since August 2015 I recently started with chest pain after MRI and CT angiogram I was diagnosed with heavily calcified LAD artery and diagonal artery both severe They started me on high intensity statins and propanol My stress test didn’t achieve the required heart rate of 160
Phil1955
in
MPN Voice
4 months ago
Nuelasta shot after Jevtana and Carboplatin treatment
I get a nuelasta shot 24 hours after receiving my Jevtana and Carboplatin iinfusion. I'm having major body aches for 2 to 3 days after receiving the shot to boost my white blood counts. None of my various pain medications works. Anyone have this problem or have an answer to help with the pain? Believe
I get a nuelasta shot 24 hours after receiving my Jevtana and Carboplatin iinfusion. I'm having major body aches for 2 to 3 days after receiving the shot to boost my white blood counts. None of my various pain medications works. Anyone have this problem or have an answer to help with the pain? Believe
robert570
in
Advanced Prostate Cancer
7 months ago
Patients Day coming to New York, US, Saturday March 09
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
TracyAdmin
Partner
in
AF Association
4 months ago
Patients Day coming to New York, US, Saturday March 09
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
4 months ago
Patients Day coming to New York, US, Saturday March 09
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
4 months ago
Is it common to get laryngitis with aps?
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
Charts
in
Hughes Syndrome APS Forum
5 months ago
clotting whilst on warfarin for clots in lungs.
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
130396
in
MPN Voice
4 months ago
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