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Experiences with
Gaucher disease type 3 (GD3)
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Sleep issues and melatonin
Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain autoimmune issues, although it doesn't mention PA or Hashimoto's specifically. Any advice would be helpful as my sleep or should I say lack of
Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain autoimmune issues, although it doesn't mention PA or Hashimoto's specifically. Any advice would be helpful as my sleep or should I say lack of
Helliborous
in
Pernicious Anaemia Society
16 days ago
Luteolin, ellagic acid and punicic acid and prostate cancer metastasis
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
85745
in
Advanced Prostate Cancer
6 months ago
Naproxen
morning!I have Rheumatoid Arthritis and I’m on 500 Naproxen twice daily I have been on this dose for nearly two years because my RA isn’t yet under control is anyone else on this dose and have been on it at long?I have regular blood monitoring and my consultant know Im on it. Any feedback would be greatly
morning!I have Rheumatoid Arthritis and I’m on 500 Naproxen twice daily I have been on this dose for nearly two years because my RA isn’t yet under control is anyone else on this dose and have been on it at long?I have regular blood monitoring and my consultant know Im on it. Any feedback would be greatly
Mybirthday1975
in
NRAS
16 days ago
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Inflammatory arthritis & worse circulation
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
hazelcats
in
NRAS
17 days ago
Maybe because of "careful" patient selection, but still great: PSA Undetectable in First Patient Cu-67 SAR-bisPSMA
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Maxone73
in
Advanced Prostate Cancer
6 months ago
Take part in the PLAN-HERACLES survey
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Aribah-NRAS
NRAS
in
NRAS
17 days ago
The Wren Project
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
TUKOffice
Thyroid UK
in
Thyroid UK
17 days ago
Thyroid antibodies
Hello everyone, Just asking for some advice or thoughts as I have the thyroid antibodies but ‘normal thyroid’. The thyroid antibodies were found when my first private endo ran tests for my hypoPARA. I have been confused about what they are going to do about it as all they have said it ‘your thyroid
Hello everyone, Just asking for some advice or thoughts as I have the thyroid antibodies but ‘normal thyroid’. The thyroid antibodies were found when my first private endo ran tests for my hypoPARA. I have been confused about what they are going to do about it as all they have said it ‘your thyroid
Owl84
in
Thyroid UK
18 days ago
I think I have Lupus but not diagnosed yet
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
Zephyrspurple
in
LUPUS UK
19 days ago
PSORIATIC ARTHRITIS
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
Cheylann
in
NRAS
19 days ago
nausea and vomiting
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
Matilda6146
in
Early CKD Support
6 months ago
How long does a coeliacs blood test take to come back?
Exactly that! I had bloods done on Friday lunch time, including a FBC, B12, folate, and ferritin. Also Coeliac screen (TTG). All the others are back but not the coeliac screen yet. Is that usual?
Exactly that! I had bloods done on Friday lunch time, including a FBC, B12, folate, and ferritin. Also Coeliac screen (TTG). All the others are back but not the coeliac screen yet. Is that usual?
WitchingHour2point0
in
Thyroid UK
22 days ago
Adding second line hormonal therapy?
Hello everyone. My father's treatment from diagnosis consisted of ADT (Zoladex, 3-month injections as of now) and 6 courses of Docetaxel chemotherapy. PSA nadir was 0.89 after 7 months of treatment but after that the last 3 PSA tests show increase (PSA 2.310 on 24 Oct. 2023, PSA 6.81 on 24 Nov. 2023
Hello everyone. My father's treatment from diagnosis consisted of ADT (Zoladex, 3-month injections as of now) and 6 courses of Docetaxel chemotherapy. PSA nadir was 0.89 after 7 months of treatment but after that the last 3 PSA tests show increase (PSA 2.310 on 24 Oct. 2023, PSA 6.81 on 24 Nov. 2023
gio2x
in
Advanced Prostate Cancer
6 months ago
Dumb Question about rising PSA after initial RT.
If you still have a prostate after RT treatment 7 years ago ( NO ADT), could a slowly rising PSA just be 'natural' as you age? Have always been curious, as when initial biopsy was ordered, the doctor said, "if you were a few months older (70), your PSA level would not have prompted further investigation
If you still have a prostate after RT treatment 7 years ago ( NO ADT), could a slowly rising PSA just be 'natural' as you age? Have always been curious, as when initial biopsy was ordered, the doctor said, "if you were a few months older (70), your PSA level would not have prompted further investigation
Researcher50
in
Advanced Prostate Cancer
6 months ago
Breakthrough with the cause of IBD - may lead to similar discoveries with other autoimmune diseases?
Just spotted this on my BBC News notifications. BBC News - Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo It's written in layman's language, but seems to say they have found that there is a genetic link and that they have drugs already that might treat
Just spotted this on my BBC News notifications. BBC News - Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo It's written in layman's language, but seems to say they have found that there is a genetic link and that they have drugs already that might treat
Broseley
in
PMRGCAuk
23 days ago
Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
michaellasmith
Administrator
in
LUPUS UK
23 days ago
Investigational MS Med Nearly Eliminates Disease Activity on MRI
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
BettysMom
in
My MSAA Community
23 days ago
How to monitor PCa after you stop ADT?
I've been on Zoladex implants for coming up to 4 years in February. I plan to stop ADT next time when it's due, as my PSA is always "undetectable" and it's been 4 years of physical and mental torment for me (the side effects). I think that enough is enough now. Does anyone have advice on the best ways
I've been on Zoladex implants for coming up to 4 years in February. I plan to stop ADT next time when it's due, as my PSA is always "undetectable" and it's been 4 years of physical and mental torment for me (the side effects). I think that enough is enough now. Does anyone have advice on the best ways
BluesmanNick
in
Advanced Prostate Cancer
6 months ago
Indapamide & Potassium
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
yewotc23
in
Thyroid UK
24 days ago
still anxious about pancreatic cancer
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
Megaaalee
in
British Liver Trust
24 days ago
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