Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below.
For more information about the study, please take a look at the study web page on the NRAS website: bit.ly/3xh1lfy Survey link: bit.ly/3z2tho4
The survey takes a relatively long time to register that you have ticked a box so that I thought it was not working and nearly gave up.but it does work.
I contacted the admin as this study yet again doesn’t reflect the fact that yet again this is a study that doesn’t take into account how a lot like me take more than one medication so am withdrawing my consent and information as it is useless. How can my answers inform when they don’t take into account how I take or use medications. I’m annoyed that these studies appear to be a waste of time if they don’t explain things clearly or reflect how medications are prescribed. Sorry but this is not good.
I've completed this survey but did not find the forced-choice format very appropriate to the topic and questions, to be honest. I think there needed to be free-text boxes to allow meaningful answers to be given in many cases. Some required a choice between a number of options, none of which were accurate for me. The survey also appears to expect respondents to know what they would want such a 'tool' to include and how they would use it, but I think it would be more meaningful (and easier to give useful answers) if a prototype were presented and feedback sought. Just a few thoughts, in case useful for further iterations of the research.
Arthritis and Dietary Supplement Survey
Rheumatoid Arthritis Research Survey - incentive?
