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Gaucher disease type 1 (GD1)
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CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
reasons for bad balance/dizzziness
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
pmmargo
in
Cure Parkinson's
5 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
5 months ago
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Is a Liquid biopsy of ctDNA with PSA = 6 and 4 bone mets, useful?
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Manilo
in
Advanced Prostate Cancer
5 months ago
adrenal crisis?
i have been on pred for almost 3 years trying to wean myself off. i never seem to get below 8mgs until the symptoms return. i found that having half my dosage early in the morning really helped so thanks for that advice. i now have managed to reduce to 6mgs. and was beginning to congratulate myself.
i have been on pred for almost 3 years trying to wean myself off. i never seem to get below 8mgs until the symptoms return. i found that having half my dosage early in the morning really helped so thanks for that advice. i now have managed to reduce to 6mgs. and was beginning to congratulate myself.
Reclus
in
PMRGCAuk
5 months ago
Specialist appointment
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Oasisman
in
British Liver Trust
5 months ago
New diagnosis - what to expect/demand from GP
I had my second child in August 2022 and to be honest I've not felt right since. Since going back to work in June last year I've been permanently exhausted but it's just got worse and worse. Totally mental fog, can't focus, constantly yawning my head off. My body aches constantly but all the while I
I had my second child in August 2022 and to be honest I've not felt right since. Since going back to work in June last year I've been permanently exhausted but it's just got worse and worse. Totally mental fog, can't focus, constantly yawning my head off. My body aches constantly but all the while I
Whatdidyousay
in
Thyroid UK
9 hours ago
Thyroid disease link with lupus and fibromyalgia
Hello I need to try to understand about my current situation I have underactive thyroid for which I’m prescribed levothyroxine But I have told my drs about feeling so wiped out so tired it hurts falling asleep during the day but not sleeping through the night I have been diagnosed with atrial
Hello I need to try to understand about my current situation I have underactive thyroid for which I’m prescribed levothyroxine But I have told my drs about feeling so wiped out so tired it hurts falling asleep during the day but not sleeping through the night I have been diagnosed with atrial
Dogsareangels
in
Thyroid UK
3 days ago
PMR/GCA and Sjogrens disease
Does anyone have Sjogren’s disease along with PMR/CGA? For months I’ve been struggling with worsening vision in my left eye, and trying to figure out if I was having a flare. The left eye vision is like it was before cataract surgery, worse some times than others, especially after reading. Opthomologist
Does anyone have Sjogren’s disease along with PMR/CGA? For months I’ve been struggling with worsening vision in my left eye, and trying to figure out if I was having a flare. The left eye vision is like it was before cataract surgery, worse some times than others, especially after reading. Opthomologist
Mstiles
in
PMRGCAuk
3 days ago
Gluten and B12 deficiency
Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved since I started self injecting regularly but I’ve noticed it returns slightly after eating bread, pasta or other foods containing gluten. Alcohol has an effect too I think. Trying to put the pieces of
Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved since I started self injecting regularly but I’ve noticed it returns slightly after eating bread, pasta or other foods containing gluten. Alcohol has an effect too I think. Trying to put the pieces of
Alilev
in
Pernicious Anaemia Society
3 days ago
Hello, any help welcome
Hi all,I've been told I have an underactive thyroid recently after feeling very tired and achy for a few months, and having a blood test. No treatment as yet, seems more tests are to follow. I've become much more tired, a bit weepy ( not like me at all😔). And, horror of horrors, I'm gaining weight
Hi all,I've been told I have an underactive thyroid recently after feeling very tired and achy for a few months, and having a blood test. No treatment as yet, seems more tests are to follow. I've become much more tired, a bit weepy ( not like me at all😔). And, horror of horrors, I'm gaining weight
cheeseandonioncrisps
in
Thyroid UK
3 days ago
Sarcoidosis
Hi I have Lupus and a few other auto diseases , just a quick question is Sarcoidosis any relation and do any of you have it , 💕
Hi I have Lupus and a few other auto diseases , just a quick question is Sarcoidosis any relation and do any of you have it , 💕
whatsit
in
LUPUS UK
3 days ago
who also has fibromyalgia and then lupus?
I was diagnosed with fibromyalgia in 2009 and then lupus last year. I think it was harder to get the diagnosis because a lot of syptoms overlap.
I was diagnosed with fibromyalgia in 2009 and then lupus last year. I think it was harder to get the diagnosis because a lot of syptoms overlap.
Cazpurple
in
LUPUS UK
4 days ago
New to the scene
Hello, I’ve just signed up after probably a year of avoiding doing so, really hoping to connect with some people who understand rheumatoid arthritis and how to navigate it alongside the health system 🦓🐘🦒
Hello, I’ve just signed up after probably a year of avoiding doing so, really hoping to connect with some people who understand rheumatoid arthritis and how to navigate it alongside the health system 🦓🐘🦒
LoveIslandFan
in
NRAS
5 days ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
5 months ago
Another amazing research 💪🏼
🧐Scientists discover a cause of lupus and a possible way to reverse it😯❗ I recommend listening to the podcast that appears in the article, which sums it up very well: https://news.northwestern.edu/stories/2024/july/lupus-immune-response-reversal/ Mxx 💜💚
🧐Scientists discover a cause of lupus and a possible way to reverse it😯❗ I recommend listening to the podcast that appears in the article, which sums it up very well: https://news.northwestern.edu/stories/2024/july/lupus-immune-response-reversal/ Mxx 💜💚
Naladog
in
LUPUS UK
7 days ago
Creating a Framework for Treating Autoimmune Gastritis—The Case for Replacing Lost Acid
A paper from Bruce Wolffenbuttel and colleagues, released last February https://www.mdpi.com/2072-6643/16/5/662 Conclusion: [i]"Autoimmune gastritis is not a gastritis that needs acid suppression; rather, it may benefit from acid supplementation. The loss of stomach acid in AIG precedes nutrient deficiencies
A paper from Bruce Wolffenbuttel and colleagues, released last February https://www.mdpi.com/2072-6643/16/5/662 Conclusion: [i]"Autoimmune gastritis is not a gastritis that needs acid suppression; rather, it may benefit from acid supplementation. The loss of stomach acid in AIG precedes nutrient deficiencies
Technoid
in
Pernicious Anaemia Society
8 days ago
🐺New Lupus Research: Mechanism of lupus pathogenesis unveiled🦋
📚👩🏼🔬Professor Yoontae Lee’s team identifies target protein regulating autoimmune disease lupus: https://www.postech.ac.kr/eng/mechanism-of-lupus-pathogenesis-unveiled/ Happy reading 🧐 Xxx
📚👩🏼🔬Professor Yoontae Lee’s team identifies target protein regulating autoimmune disease lupus: https://www.postech.ac.kr/eng/mechanism-of-lupus-pathogenesis-unveiled/ Happy reading 🧐 Xxx
Naladog
in
LUPUS UK
9 days ago
What to expect, medication etc - First appointment since Systemic Sclerosis diagnosis
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Jules1821
in
Scleroderma & Raynaud's UK (SRUK)
9 days ago
just diagnosed with lupus
hi I’ve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given at the moment as I don’t have any other symptoms? Is there medication for this sun allergy ??? Thank you for any help !!!
hi I’ve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given at the moment as I don’t have any other symptoms? Is there medication for this sun allergy ??? Thank you for any help !!!
Edm174
in
LUPUS UK
9 days ago
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