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Gaucher disease type 1 (GD1)
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cortisol test
hi, I have had a thyroid test done by blue horizon, the morning cortisol has come back at 310. I have read that they investigate anything lower than 450, is this the case? What should I do? It was finger prick, I have not done a 4 point Saliva test thanks matty
hi, I have had a thyroid test done by blue horizon, the morning cortisol has come back at 310. I have read that they investigate anything lower than 450, is this the case? What should I do? It was finger prick, I have not done a 4 point Saliva test thanks matty
Mattydonald
in
PMRGCAuk
5 months ago
PSA update
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
wolverine11
in
Advanced Prostate Cancer
5 months ago
Stabbing pains
I’m in the middle of all my tests - looks like I have (perhaps) fibrosis F2/F3 and severe fatty liver. And some mild portal gastropathy. However it’s a pain in the upper abdomen that’s confusing me. It’s mostly a stabbing sharp pain and sometimes it actually makes me itch - not like on the skin, but
I’m in the middle of all my tests - looks like I have (perhaps) fibrosis F2/F3 and severe fatty liver. And some mild portal gastropathy. However it’s a pain in the upper abdomen that’s confusing me. It’s mostly a stabbing sharp pain and sometimes it actually makes me itch - not like on the skin, but
Jaxxy8
in
British Liver Trust
5 months ago
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Pluvicto still working well
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Miccoman
in
Advanced Prostate Cancer
5 months ago
Humorous/informative videos on prostate cancer
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
Caldonia
in
Advanced Prostate Cancer
5 months ago
Symptoms of advanced liver disease
Hi Everyone, after long waiting period, I have finally got my first hepatologist appointment after 8 months from now. After this appointment he will refer me for a fibro scan. I am afraid if I have advanced liver disease it will be worst. I do have itchy palms and feet. dull ache in abdomen and I am
Hi Everyone, after long waiting period, I have finally got my first hepatologist appointment after 8 months from now. After this appointment he will refer me for a fibro scan. I am afraid if I have advanced liver disease it will be worst. I do have itchy palms and feet. dull ache in abdomen and I am
SShally
in
British Liver Trust
5 months ago
Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
5 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
5 months ago
Taking antihistamine with cirrhosis
I am suffering from pet allergy and would like to take antihistamines.. which over the counter are safe with cirrhosis? Are there any other suggestions to relieve the symptoms. All blood work are within normal range and living a normal healthy life, obviously no alcohol.
I am suffering from pet allergy and would like to take antihistamines.. which over the counter are safe with cirrhosis? Are there any other suggestions to relieve the symptoms. All blood work are within normal range and living a normal healthy life, obviously no alcohol.
Male47
in
British Liver Trust
5 months ago
cranberry powder?
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
RT18
in
PMRGCAuk
5 months ago
Echinacea
Does anyone know if its safe to take Echinacea tablets when taking Rivoraxaban .I've had cold after cold and a very annoying cough on and off for a few weeks now and thought this might boost my immunity. TIA
Does anyone know if its safe to take Echinacea tablets when taking Rivoraxaban .I've had cold after cold and a very annoying cough on and off for a few weeks now and thought this might boost my immunity. TIA
Ladypaula
in
AF Association
5 months ago
NHS Targeted Lung Check
Hi folks . . . those smokers or ex smokers on here may be aware of this screening programme currently being rolled out. Apparently the scan can ID a number of incidental issues including Liver Lesions which I believe are not usually related to alcohol consumption. However, might they also detect Fatty
Hi folks . . . those smokers or ex smokers on here may be aware of this screening programme currently being rolled out. Apparently the scan can ID a number of incidental issues including Liver Lesions which I believe are not usually related to alcohol consumption. However, might they also detect Fatty
HouseHead
in
British Liver Trust
5 months ago
My anxiety
last year I have started smoking but noticed some changes in mouth doctor told me its smokers palate and immediately i switched smoking but now its been 1 month i feel very anxious that may be something is wrong with me i am feeling rough patches in my cheecks skin while touching with tongue and also
last year I have started smoking but noticed some changes in mouth doctor told me its smokers palate and immediately i switched smoking but now its been 1 month i feel very anxious that may be something is wrong with me i am feeling rough patches in my cheecks skin while touching with tongue and also
Curious_brat
in
Anxiety Support
5 months ago
Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Graves in couples
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
Kari55
in
Thyroid UK
5 months ago
CAP score of 299, diagnosed with Cirrhosis
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
Carblover8
in
British Liver Trust
5 months ago
Ultrasound
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Chicob29
in
British Liver Trust
5 months ago
"Impact of REM Sleep Behavior and Sleep Talking on Mortality in Parkinson's Disease" Rapid Eye Movement Behavior Disorder (RBD) & PD
Published January 19, 2024: "According to our study, frequent sleep talking (talking while asleep at least one night per week) is a risk factor for early mortality in PD. RBD with sleep talking (ST) was associated with increased mortality, while RBD without sleep talking was not. This too hints at the
Published January 19, 2024: "According to our study, frequent sleep talking (talking while asleep at least one night per week) is a risk factor for early mortality in PD. RBD with sleep talking (ST) was associated with increased mortality, while RBD without sleep talking was not. This too hints at the
JackBruce2024
in
Cure Parkinson's
5 months ago
Is a false-positive biopsy possible?
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
CBRD
in
Advanced Prostate Cancer
5 months ago
High cholesterol
I have recently signed up the Our Future Health programme. I was invited along for a blood test and a finger prick cholesterol test. The cholesterol result came back as 10.14 and I was told to go to my GP. I had a cholesterol blood test at my doctors surgery in July and it came back as 6.1. I thought
I have recently signed up the Our Future Health programme. I was invited along for a blood test and a finger prick cholesterol test. The cholesterol result came back as 10.14 and I was told to go to my GP. I had a cholesterol blood test at my doctors surgery in July and it came back as 6.1. I thought
Suziscrews
in
Thyroid UK
9 months ago
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