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Diagnosis for RF positive + anti-CCP positive + ANCA positive + Positive MPO .
Hi, I wondered if anyone here had RF positive + anti-CCP positive + ANCA positive + Positive MPO . I am struggling to get a formal diagnosis. I have Autoimmune Hepatitis and migrating pain, the pains are not always in my joints they sometimes feel like they are in my arteries, muscles, veins - it's
Hi, I wondered if anyone here had RF positive + anti-CCP positive + ANCA positive + Positive MPO . I am struggling to get a formal diagnosis. I have Autoimmune Hepatitis and migrating pain, the pains are not always in my joints they sometimes feel like they are in my arteries, muscles, veins - it's
Lisam19
in
NRAS
7 years ago
Dragging my feet on starting ocaliva
I was diagnosed in March 2017 (caught by a random blood test during my annual checkup, I’m 49). While i showed initial improvement on Urso, it’s plateau’ed. I feel great, my fibroscan said that my liver was in perfect shape (4.4), my biopsy showed some early damage to my bile ducts consistent with PBC
I was diagnosed in March 2017 (caught by a random blood test during my annual checkup, I’m 49). While i showed initial improvement on Urso, it’s plateau’ed. I feel great, my fibroscan said that my liver was in perfect shape (4.4), my biopsy showed some early damage to my bile ducts consistent with PBC
Ottley3
in
PBC Foundation
7 years ago
Drinking alcohol with nodular regenerative hyperplasia
Is ok to drink alcohol, half a glass of beer for example, if diagnosed with liver nodular regenerative hyperplasia?
Is ok to drink alcohol, half a glass of beer for example, if diagnosed with liver nodular regenerative hyperplasia?
krufinwe
in
British Liver Trust
7 years ago
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Anyone had ovary removal keyhole or similar at wexham park hospital bucks?
Hi ladies any personal recommendations of surgeons at wexham park where op is being proposed on nhs. Thanks
Hi ladies any personal recommendations of surgeons at wexham park where op is being proposed on nhs. Thanks
Shelly6
in
My Ovacome
7 years ago
Primary Biliary Cholangitis
Hello, I was originally told I have Autoimmune Hepatitis by my GP because of high enzyme counts. I just had a liver biopsy and found out I have stage 2 PBC instead. I see the internist in two weeks to determine a course of action. I would really like to hear from others who have this and what to expect
Hello, I was originally told I have Autoimmune Hepatitis by my GP because of high enzyme counts. I just had a liver biopsy and found out I have stage 2 PBC instead. I see the internist in two weeks to determine a course of action. I would really like to hear from others who have this and what to expect
Carly92
in
British Liver Trust
7 years ago
Any post-polyp success stories?
My illusive polyp is finally gone and I'm very pleased! It was spotted 8 months ago just as we were about to start our first cycle. 2 months later I had a hysteroscopy with local anasthetic but they couldn't find it so assumed it had gone by itself. And then just before our first FET it was seen on
My illusive polyp is finally gone and I'm very pleased! It was spotted 8 months ago just as we were about to start our first cycle. 2 months later I had a hysteroscopy with local anasthetic but they couldn't find it so assumed it had gone by itself. And then just before our first FET it was seen on
Llama1
in
Fertility Network UK
7 years ago
Akaline phosfates almost normal
I'm soooo happy. Just for today my alt is 117. And the rest are within normal range Most of you know I was diagnosed stage one 22 years ago by accident when the enzymes where 600 and was immediately given a liver biopsy and urso forte Stage one for 22 years and very compliant. I guess I am lucky but
I'm soooo happy. Just for today my alt is 117. And the rest are within normal range Most of you know I was diagnosed stage one 22 years ago by accident when the enzymes where 600 and was immediately given a liver biopsy and urso forte Stage one for 22 years and very compliant. I guess I am lucky but
Bonnieanne54
in
PBC Foundation
7 years ago
Hello -- I am Tracey and I am a 47 year old want to be world traveler!
I was originally diagnosed with Stage 3B Breast Cancer at 40 and with MBC to the Liver at age 45. I have have had so many surgeries including Double Mastectomy, Ovary removal, Targeted Radiation to the Liver. Yet I am still feeling pretty strong and just living life with sucky cancer.
I was originally diagnosed with Stage 3B Breast Cancer at 40 and with MBC to the Liver at age 45. I have have had so many surgeries including Double Mastectomy, Ovary removal, Targeted Radiation to the Liver. Yet I am still feeling pretty strong and just living life with sucky cancer.
Tja1970
in
SHARE Metastatic Breast Cancer
7 years ago
To build or not to build
I am really confused (again) should I be improving my immune system as I thought that part of the PBC problem was immune system being too active and attacking Bile Ducts thus causing problems eventually to the liver, or should it be calmed to avoid further damage,
I am really confused (again) should I be improving my immune system as I thought that part of the PBC problem was immune system being too active and attacking Bile Ducts thus causing problems eventually to the liver, or should it be calmed to avoid further damage,
Biddyb
in
PBC Foundation
7 years ago
Urso-responsive cholestasis?
Hello! I've been poked and prodded for 6 years. Long story short, I've had every test available (in two different cities) and my GI Dr. told me that because I tested negative for AMA, that he is very hesitant to call it PBC. So he labeled it urso-responsive cholestasis BECAUSE, my enzymes are normal
Hello! I've been poked and prodded for 6 years. Long story short, I've had every test available (in two different cities) and my GI Dr. told me that because I tested negative for AMA, that he is very hesitant to call it PBC. So he labeled it urso-responsive cholestasis BECAUSE, my enzymes are normal
emilyellafaye
in
PBC Foundation
7 years ago
Flare? But 'normal' CRP? Sick of feeling so sick!
Me again...... bit of an essay... 13 years RA on hydroxychloroquine, and approx 12 weeks on methotrexate/folic acid. In the last few months I've had steroid injection twice on advice from rheumatoid advice line at hospital as been feeling so rough, but gp yesterday said my crp is normal as is esr, although
Me again...... bit of an essay... 13 years RA on hydroxychloroquine, and approx 12 weeks on methotrexate/folic acid. In the last few months I've had steroid injection twice on advice from rheumatoid advice line at hospital as been feeling so rough, but gp yesterday said my crp is normal as is esr, although
girli1111
in
NRAS
7 years ago
7 months post op - HRT
Hi everyone. I had a TLH +BSO back in march for endometriosis, and also had excision from my bowel/bladder/ureter at the same time. I had 9 weeks on prostap without HRT prior to the surgery, then 13 weeks post op with no HRT before being started on tibolone which I have now been taking for just over
Hi everyone. I had a TLH +BSO back in march for endometriosis, and also had excision from my bowel/bladder/ureter at the same time. I had 9 weeks on prostap without HRT prior to the surgery, then 13 weeks post op with no HRT before being started on tibolone which I have now been taking for just over
Hidden
in
Healthy Happy Woman
7 years ago
are decapeptyl injection side effects of menopause the same as a real menopause?
Hello my friends, Does anyone have the answer to my question please... are decapeptyl injection side effects of menopause the same as a real menopause? I've been awake since 3am it is now 6.18....I'm on my third and final injection as I'm having a total hysterectomy inc ovaries/cervix out this coming
Hello my friends, Does anyone have the answer to my question please... are decapeptyl injection side effects of menopause the same as a real menopause? I've been awake since 3am it is now 6.18....I'm on my third and final injection as I'm having a total hysterectomy inc ovaries/cervix out this coming
Windancer05
in
Healthy Happy Woman
7 years ago
are decapeptyl injection side effects of menopause the same as a real menopause
Hello my friends, Does anyone have the answer to my question please... are decapeptyl injection side effects of menopause the same as a real menopause? I've been awake since 3am it is now 6.18....I'm on my third and final injection as I'm having a total hysterectomy inc ovaries/cervix out this coming
Hello my friends, Does anyone have the answer to my question please... are decapeptyl injection side effects of menopause the same as a real menopause? I've been awake since 3am it is now 6.18....I'm on my third and final injection as I'm having a total hysterectomy inc ovaries/cervix out this coming
Windancer05
in
Endometriosis UK
7 years ago
Urso is working
Hi. Its been a while since i have posted. I recently had my labs drawn and my ultasound labs are back to normal and ultasound is pretty normal with subtle changes to the bile duct. With that being said i stil feel fatigued and have pain in my joints and stomach. Just wish i didnt feel bad so much. Thanks
Hi. Its been a while since i have posted. I recently had my labs drawn and my ultasound labs are back to normal and ultasound is pretty normal with subtle changes to the bile duct. With that being said i stil feel fatigued and have pain in my joints and stomach. Just wish i didnt feel bad so much. Thanks
Bakerc
in
PBC Foundation
7 years ago
Ppi and urso
Hi all I am sure it has been asked before but ny acid indigestion has got worse. I have had pbc for about 5 years and take 1000 mg ursofalk capsules daily. Is it okay to take 20 mg pantoprazole daily and if so, when is best time to take it.
Hi all I am sure it has been asked before but ny acid indigestion has got worse. I have had pbc for about 5 years and take 1000 mg ursofalk capsules daily. Is it okay to take 20 mg pantoprazole daily and if so, when is best time to take it.
mel16
in
PBC Foundation
7 years ago
Steroids and facial hair
Hi all, I have AIH and Cirrhosis. I have just been weaned off steroids and trying to see if I can manage taking azathoprine by itself. The steroids gave me a few side affects one being facial hair. I was wondering if anyone else has had the same problem and if so, does the hair clear away after finishing
Hi all, I have AIH and Cirrhosis. I have just been weaned off steroids and trying to see if I can manage taking azathoprine by itself. The steroids gave me a few side affects one being facial hair. I was wondering if anyone else has had the same problem and if so, does the hair clear away after finishing
Suzyq0391
in
British Liver Trust
7 years ago
Alk phos level and ezetimibe
I have just been told that at 285 my alk phos is too high and I should start another drug called ezetimibe on top of the urso. I have to stop breastfeeding my 15 week old as a result so I just wanted any thoughts on this prior to taking this step which I'm quite upset about.
I have just been told that at 285 my alk phos is too high and I should start another drug called ezetimibe on top of the urso. I have to stop breastfeeding my 15 week old as a result so I just wanted any thoughts on this prior to taking this step which I'm quite upset about.
rubyrose15415
in
PBC Foundation
7 years ago
Bile Duct Cancer
Mug husband had now had his biopsy results back and has been diagnosed with bile duct cancer. It has gone into his liver but knowwhere else.
Mug husband had now had his biopsy results back and has been diagnosed with bile duct cancer. It has gone into his liver but knowwhere else.
Joannakat
in
British Liver Trust
7 years ago
Ultrsound
Ultrasound showed, gall bladder, kidneys, pancreas, spleen and liver normal in size. No dilatation of the common bile duct. Liver has coarsening of the echo texture. Probable fatty infiltration of the liver.
Ultrasound showed, gall bladder, kidneys, pancreas, spleen and liver normal in size. No dilatation of the common bile duct. Liver has coarsening of the echo texture. Probable fatty infiltration of the liver.
iceman77
in
Liver4Life
7 years ago
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