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Being passed from pillar to post, feeling ignored and dismissed.
After years of severe pain with periods, I finally gave in and saw the gp, told twas normal and to get on with it. I kept returning to the gp who finally sent me to gynaecology, told i had cysts and was normal and they wouldnt cause that much pain. Off I go again, then pains return and i go back to
After years of severe pain with periods, I finally gave in and saw the gp, told twas normal and to get on with it. I kept returning to the gp who finally sent me to gynaecology, told i had cysts and was normal and they wouldnt cause that much pain. Off I go again, then pains return and i go back to
rubine7521
in
Pelvic Pain Support Network
2 years ago
feeling a bit lost
I finally got my medical records from the consultant who performed my laparscopy and diagnosed me with endometriosis in 2018 and feeling so lost. it plainly confirmed that since the laparscopy he did in early 2018 he'd found I have endometriosis on the bladder and rectum and tubes were removed
I finally got my medical records from the consultant who performed my laparscopy and diagnosed me with endometriosis in 2018 and feeling so lost. it plainly confirmed that since the laparscopy he did in early 2018 he'd found I have endometriosis on the bladder and rectum and tubes were removed
Escapologygirl
in
Endometriosis UK
2 years ago
Mirena IUD for Endo/Adeno
Hi lovely people, I have a question around the Mirena IUD. I hope this is the right forum for this. I had an operative laparoscopy two months ago, and I had the IUD fitted at the same time for management of adenomyosis and endometriosis. I have experienced a number of persistent side effects of
Hi lovely people, I have a question around the Mirena IUD. I hope this is the right forum for this. I had an operative laparoscopy two months ago, and I had the IUD fitted at the same time for management of adenomyosis and endometriosis. I have experienced a number of persistent side effects of
isabellala
in
Endometriosis UK
2 years ago
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Kyleena IUD
Hi, I'm just looking for some advice regarding my IUD. I had it inserted over two years ago and I've being having on going issues with painful cramps in my lower abdomen. It like a stabbing unbearable pain. There's also been occasions where I have bled after intercourse too. I'm unsure whether I should
Hi, I'm just looking for some advice regarding my IUD. I had it inserted over two years ago and I've being having on going issues with painful cramps in my lower abdomen. It like a stabbing unbearable pain. There's also been occasions where I have bled after intercourse too. I'm unsure whether I should
1AB2C3
in
BASHH
2 years ago
Periods getting heavier again!!!
i had a laparoscopy 6 monthsa go. My left ovary had to be removed as it was demolished my a 6cm chocolate cyst. Other bits had to be unstuck from each other. I had the coil fitted at the same time.... It was meant to stop My periods and the pain. Well 6 months on and I'm bleeding more again and the
i had a laparoscopy 6 monthsa go. My left ovary had to be removed as it was demolished my a 6cm chocolate cyst. Other bits had to be unstuck from each other. I had the coil fitted at the same time.... It was meant to stop My periods and the pain. Well 6 months on and I'm bleeding more again and the
Bubble41
in
Endometriosis UK
2 years ago
Frustrated and hopeless....
I just wanted to vent and share with people who might be going through something similar. I am nearly 35 and have been waiting for a date for my excision surgery since November. They think my endo is now stage 4 and in my bowels, bladder and ureters. Despite being at the top of this waiting list
I just wanted to vent and share with people who might be going through something similar. I am nearly 35 and have been waiting for a date for my excision surgery since November. They think my endo is now stage 4 and in my bowels, bladder and ureters. Despite being at the top of this waiting list
Hungry_armadillo
in
Endometriosis UK
2 years ago
Periods stopped with mirena coil
Hello, I wanted to ask if anyone's periods stopped after having the mirena coil inserted? If so, how long after insertion did the periods stop? I had my coil fitted after a laparoscopy last year where endometriosis tissue was removed. I had the coil for a year and 4 months with periods every month and
Hello, I wanted to ask if anyone's periods stopped after having the mirena coil inserted? If so, how long after insertion did the periods stop? I had my coil fitted after a laparoscopy last year where endometriosis tissue was removed. I had the coil for a year and 4 months with periods every month and
Kayla_a4
in
Endometriosis UK
2 years ago
Contraception methods used with Lupus
Hi all A rather personal question today but if I can't ask it here then I'm not sure where I can. I currently have m=Merina coil fitted that is coming up to its 5 year life. I wondered what other medications etc Lupus patients have been recommended please. Thanks.
Hi all A rather personal question today but if I can't ask it here then I'm not sure where I can. I currently have m=Merina coil fitted that is coming up to its 5 year life. I wondered what other medications etc Lupus patients have been recommended please. Thanks.
SunshineFarm
in
LUPUS UK
2 years ago
PD Dialysis - Week 5 - Training Day 2
Today, my PD nurse hooked me up and filled me with 1200ml of PD solution 2.5 today and I was to "Dwell" for 4 hours. She checked the TB test she did yesterday and it is looking ok. She also had me to bring my vaccination and immunization records that I keep on a card at home as well as my Covid immunization
Today, my PD nurse hooked me up and filled me with 1200ml of PD solution 2.5 today and I was to "Dwell" for 4 hours. She checked the TB test she did yesterday and it is looking ok. She also had me to bring my vaccination and immunization records that I keep on a card at home as well as my Covid immunization
RonZone
in
Kidney Dialysis
2 years ago
struggling with Adenomyosis
Long post sorry in advance, I’m just struggling today and need some advice. Can anyone recommend an adenomyosis specialist? My consultant was a BSGE endo specialist so I had high hopes but since I was diagnosed in November after my laparoscopy he discharged me. He’s told me my adeno isn’t responsible
Long post sorry in advance, I’m just struggling today and need some advice. Can anyone recommend an adenomyosis specialist? My consultant was a BSGE endo specialist so I had high hopes but since I was diagnosed in November after my laparoscopy he discharged me. He’s told me my adeno isn’t responsible
Dartmouth93
in
Endometriosis UK
2 years ago
mirena coil threads
I have the mirena coil inserted at the end of July for the first time (approx 3 weeks ago) at first all was fine and I could feel 2 threads quite high up. I am currently on day 14 of a very light period (lighter but longer than usual) and I can only feel one thread which is quite low down. The other
I have the mirena coil inserted at the end of July for the first time (approx 3 weeks ago) at first all was fine and I could feel 2 threads quite high up. I am currently on day 14 of a very light period (lighter but longer than usual) and I can only feel one thread which is quite low down. The other
Hetty177
in
BASHH
2 years ago
Mirena and pain!
Ended up in A and E this morning with severe stabbing pain in my uterus/ ovaries and colon. I was diaognoised with endometriosis back in february this year via a laparoscopy. I had my left ovary removed and my uterus unstuck from my colon. The surgeon said he had to leave some tissue near my colon
Ended up in A and E this morning with severe stabbing pain in my uterus/ ovaries and colon. I was diaognoised with endometriosis back in february this year via a laparoscopy. I had my left ovary removed and my uterus unstuck from my colon. The surgeon said he had to leave some tissue near my colon
Bubble41
in
Endometriosis UK
2 years ago
Having mirena coil fitted
Hello! I’m 23, I’ve had endo for 10 years now. I had a mirena coil fitted when I was 18 but it was during my laparoscopy so I obviously wasn’t aware of it being inserted. Some complications and changes, it ended up ‘falling’ down. Then tried the implant and then the pill. Due to me having my symptoms
Hello! I’m 23, I’ve had endo for 10 years now. I had a mirena coil fitted when I was 18 but it was during my laparoscopy so I obviously wasn’t aware of it being inserted. Some complications and changes, it ended up ‘falling’ down. Then tried the implant and then the pill. Due to me having my symptoms
AshF1234
in
Endometriosis UK
2 years ago
looking for advice/support - newly diagnosed and struggling.
I was taken to theatre in April for lap surgery (they only drained my cysts and sorted an intestinal adhesion) and following this was diagnosed with endometriosis. I wasn’t aware of the condition until this happened. Following this I have felt so isolated and have had no support. I saw a gynae 9 weeks
I was taken to theatre in April for lap surgery (they only drained my cysts and sorted an intestinal adhesion) and following this was diagnosed with endometriosis. I wasn’t aware of the condition until this happened. Following this I have felt so isolated and have had no support. I saw a gynae 9 weeks
GemmaK27
in
Endometriosis UK
2 years ago
mirena coil
hi, i har my laparoscopy in april was diagnosed with endo then got the mirena coil. I havr had the copper coil since i was 15 with two changes. I know the mirena is hormonal. I keep getting brown/ black discharge so im wondering when this will end?
hi, i har my laparoscopy in april was diagnosed with endo then got the mirena coil. I havr had the copper coil since i was 15 with two changes. I know the mirena is hormonal. I keep getting brown/ black discharge so im wondering when this will end?
MelRoe
in
Endometriosis UK
2 years ago
Ongoing problems 8 months since surgery
I noticed a horrible, recurring shoulder/chest pain a couple of years ago which I initially put down to a possible injury. I realised something was wrong when it started getting worse, affecting my breathing and making me not want to talk when the pain was at it's worst. I called the GP who put me on
I noticed a horrible, recurring shoulder/chest pain a couple of years ago which I initially put down to a possible injury. I realised something was wrong when it started getting worse, affecting my breathing and making me not want to talk when the pain was at it's worst. I called the GP who put me on
Ljames01
in
Endometriosis UK
2 years ago
IUD after 1st lap advice
Hi all, Apologies if it is too much info, but just want advice about my IUD. I had my first lap nearly two months ago and had an IUD put in whilst I was under. All went fine and had bleeding afterwards, as expected, and everything seemed like it all was healed and settled down afterwards, however
Hi all, Apologies if it is too much info, but just want advice about my IUD. I had my first lap nearly two months ago and had an IUD put in whilst I was under. All went fine and had bleeding afterwards, as expected, and everything seemed like it all was healed and settled down afterwards, however
Chester29
in
Endometriosis UK
2 years ago
I just bought this PEMF therapy mat (pulsed electromagnetic frequency) after learning it treats PD
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PDWarrior1900
in
Cure Parkinson's
2 years ago
Merina coil and menopause
I had a merina coil fitted 2 years ago because of fibroids. After a few months my periods settled and and have only had 3 lights periods in the past year. How will I know if it’s menopause or the coil causing my few periods I’m 51.
I had a merina coil fitted 2 years ago because of fibroids. After a few months my periods settled and and have only had 3 lights periods in the past year. How will I know if it’s menopause or the coil causing my few periods I’m 51.
Toddyboy12
in
Menopause and Perimenopause Support
2 years ago
New diagnosis how to cope? General advice
Hi everyone, I have only just been diagnosed with endometresiosis last week after having to pay private for a laporoscopy due to the long nhs list and debilitating pain. Plus the usual painful heavy periods normalised when I used to see my GP. I had severe pelvic pain about 6 weeks ago which had made
Hi everyone, I have only just been diagnosed with endometresiosis last week after having to pay private for a laporoscopy due to the long nhs list and debilitating pain. Plus the usual painful heavy periods normalised when I used to see my GP. I had severe pelvic pain about 6 weeks ago which had made
Sabrinacolada
in
Endometriosis UK
2 years ago
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