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colitis
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
Bluegirl1948
in
Crohn's and Colitis Support
7 months ago
Cutie Woolly Jumpers
Hello EveryoneJust thought I'd post these lovely lambs in their woolly's . Much needed aren't they as its gone so chilly?. I thought they looked really cute and i hope you do too. Thank you all so much for your kind messages of support for my gallbladder surgery. I've been really touched at them all
Hello EveryoneJust thought I'd post these lovely lambs in their woolly's . Much needed aren't they as its gone so chilly?. I thought they looked really cute and i hope you do too. Thank you all so much for your kind messages of support for my gallbladder surgery. I've been really touched at them all
misty14
in
LUPUS UK
5 months ago
Ex is going to the Netherlands next week. I'm stuck in what help i should get. I have dissosiated and headache
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Against_the_current
in
Anxiety and Depression Support
2 months ago
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Took the wrong meds Help
I have been taking cetrotide for 6 days now at 7am and I accidentally, for some unbeknown reason, took it again at 7pm this evening instead of my Bemfola… I rang the clinic out of hours and they said to take Bemfola tonight and cetrotide again in the morning and not to panic, however I will now be an
I have been taking cetrotide for 6 days now at 7am and I accidentally, for some unbeknown reason, took it again at 7pm this evening instead of my Bemfola… I rang the clinic out of hours and they said to take Bemfola tonight and cetrotide again in the morning and not to panic, however I will now be an
Ralphlola
in
Fertility Network UK
7 months ago
new MBC drug for PIK3CA mutation in Hr+HER- breast cancer survivors
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
Dragonfly2
in
SHARE Metastatic Breast Cancer
9 months ago
panic attacks
I have panic attacks every morning. I lie down for hours. It has gotten to be a habit. they say to face the fear but I’m not able to. I feel anxious all day. I have tried many medications but none have helped. Clonazepam helps a little and mirtazapine for sleep
I have panic attacks every morning. I lie down for hours. It has gotten to be a habit. they say to face the fear but I’m not able to. I feel anxious all day. I have tried many medications but none have helped. Clonazepam helps a little and mirtazapine for sleep
TaliaTalia5
in
Anxiety Support
5 months ago
Forstair Next
Hi, I've been on combi forstair Next inhaler and my symptoms has greatly improved! However I have 2 horrible side effects . 1 . Bouts of oral thrush and 2 . What I can only describe as a plug of mucus every morning which leads me to cough and clear my throat, does anybody have any tips? I regularly
Hi, I've been on combi forstair Next inhaler and my symptoms has greatly improved! However I have 2 horrible side effects . 1 . Bouts of oral thrush and 2 . What I can only describe as a plug of mucus every morning which leads me to cough and clear my throat, does anybody have any tips? I regularly
Mini2020
in
Asthma Community Forum
5 months ago
Enemas
Wow 😯. That’s a title eh?! Straight to your imagination I reckon. DON’T read this post whilst having your dinner. I went to the gym this afternoon. I had very little energy and had a strong sense that my meds hadn’t really hit the spot? I reflected on this and observed that I hadn’t had a bowel movement
Wow 😯. That’s a title eh?! Straight to your imagination I reckon. DON’T read this post whilst having your dinner. I went to the gym this afternoon. I had very little energy and had a strong sense that my meds hadn’t really hit the spot? I reflected on this and observed that I hadn’t had a bowel movement
jeeves19
in
Cure Parkinson's
7 months ago
Does anyone have CtDna blood test added In their monitoring routine?
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
KimberlyB40
in
SHARE Metastatic Breast Cancer
9 months ago
Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
ReallyWondering
in
Pernicious Anaemia Society
7 months ago
Tumour marker
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
Gramat
in
SHARE Metastatic Breast Cancer
9 months ago
Experiences with urso, ocaliva and bezafibrate
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
5 months ago
Continued Journey
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
FiArt12X
in
CLL Support
2 months ago
Airing Pain 141: Living with Childhood and Young Adult Cancer
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
PainConcernProjects
Pain Concern
in
Pain Concern
8 months ago
Gazyva and Ventalox
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
CityL
in
CLL Support
9 months ago
Myelofibrosis- GVHD graft, versus, host, disease.
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
2 months ago
Nausea & Buprenorphine
I am waiting for my doctor to advise on an alternative anti nausea drug and to get him to prescribe sublingual Zofran. I have completed, without any success, the prescription the GP gave me for 5 days of Zofran and I am currently really struggling with the nausea 24 hours a day (milder during day though
I am waiting for my doctor to advise on an alternative anti nausea drug and to get him to prescribe sublingual Zofran. I have completed, without any success, the prescription the GP gave me for 5 days of Zofran and I am currently really struggling with the nausea 24 hours a day (milder during day though
davchar23
in
Restless Legs Syndrome
5 months ago
Myelofibrosis - GVHD - graft, versus, host, disease
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
2 months ago
solaraze for actinic keratosis
I’ve been suffering from what’s known as solar keratosis which is sun damaged skin on my scalp. The effects include scabs on the scalp as well as slightly inflamed spots. Anyway doctor has given me solaraze to clear it. I’ve been on it for around four weeks of a twelve week course and have found that
I’ve been suffering from what’s known as solar keratosis which is sun damaged skin on my scalp. The effects include scabs on the scalp as well as slightly inflamed spots. Anyway doctor has given me solaraze to clear it. I’ve been on it for around four weeks of a twelve week course and have found that
Profound15
in
Atrial Fibrillation Support
9 months ago
Let’s Talk Intrusive Thoughts
Happy Thursday everyone! Has anyone else been diagnosed with having obsessive/intrusive thoughts? I am working with my therapist on this, but it is so hard to hear that this is what’s going on. I know we’ll work on regaining control of my thoughts, but I feel like I have no control right now and I feel
Happy Thursday everyone! Has anyone else been diagnosed with having obsessive/intrusive thoughts? I am working with my therapist on this, but it is so hard to hear that this is what’s going on. I know we’ll work on regaining control of my thoughts, but I feel like I have no control right now and I feel
Itmewithanxiety
in
Anxiety and Depression Support
5 months ago
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