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gallstones?
I am 68 year old lady. Lots of digestive issues over the years, including perforated bowel from diverticulitis5 years ago . I am currently experiencing a pain on my bra line, right hand side, , almost feel like this area swells up , tender to touch, , bloating, upset tummy , and nausea. My doc thinks
I am 68 year old lady. Lots of digestive issues over the years, including perforated bowel from diverticulitis5 years ago . I am currently experiencing a pain on my bra line, right hand side, , almost feel like this area swells up , tender to touch, , bloating, upset tummy , and nausea. My doc thinks
Gardeningbuff
in
British Liver Trust
6 months ago
Fatigue
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Hightower62
in
NRAS
11 months ago
splashsplash
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
splashsplash
in
CLL Support
5 months ago
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Açai powder
Açai Has anyone taken Açai powder for a supplement I have PV and take 90 micrograms of peg interferon a week and a blood thinner . It's know has the Açai berry but is technically a drupe not a berry . It suppose to be really good for blood cancers ? I just wanted to know before I start using
Açai Has anyone taken Açai powder for a supplement I have PV and take 90 micrograms of peg interferon a week and a blood thinner . It's know has the Açai berry but is technically a drupe not a berry . It suppose to be really good for blood cancers ? I just wanted to know before I start using
Blonde25
in
MPN Voice
9 months ago
supplemental pbc treatments
Does anyone have diet and supplement experience and advice to help bring fibroses down? Resist temptation to say you don’t know any other than Ursodoil, obeticholic acid, Fenofibrate and clinical trial Setanix I’m looking for supplemental treatments to practice along with these treatments western
Does anyone have diet and supplement experience and advice to help bring fibroses down? Resist temptation to say you don’t know any other than Ursodoil, obeticholic acid, Fenofibrate and clinical trial Setanix I’m looking for supplemental treatments to practice along with these treatments western
Jlruggie
in
PBC Foundation
11 months ago
Avastin following taxol/carbo
Hi , I have 1 more session of taxol/carbo left and my oncologist wants to discuss going onto avastin however, I'm not sure whether that is needed at this stage. I have ovarian 4b and have been debunked. My ca125 levels were 7 before the last chemo 3 weeks ago. I feel very fit and healthy.I've not had
Hi , I have 1 more session of taxol/carbo left and my oncologist wants to discuss going onto avastin however, I'm not sure whether that is needed at this stage. I have ovarian 4b and have been debunked. My ca125 levels were 7 before the last chemo 3 weeks ago. I feel very fit and healthy.I've not had
Bendywendy1
in
My Ovacome
8 months ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
13 days ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
13 days ago
TBill
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
TBill
in
Advanced Prostate Cancer
9 months ago
has anyone had a lumpectomy with MBC?
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Georgelila
in
SHARE Metastatic Breast Cancer
9 months ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
16 days ago
Stomach symptoms with your IBS?
Do you have symptoms in your stomach? Besides perhaps the intestinal symptoms (constipation, diarrhea, gas)...do you also have symptoms in your stomach/upper abdomen? I have like a gnawing sensation almost feels like you are hungry but you aren't.... Does anyone experience this or any other upper
Do you have symptoms in your stomach? Besides perhaps the intestinal symptoms (constipation, diarrhea, gas)...do you also have symptoms in your stomach/upper abdomen? I have like a gnawing sensation almost feels like you are hungry but you aren't.... Does anyone experience this or any other upper
Catsandsunsets
in
IBS Network
7 months ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
18 days ago
Inherited aggressive pc
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
pd63
in
Prostate Cancer Network
9 months ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
21 days ago
IBS or Redundant colon
So my symptoms started over ten years ago after a period of stress. I was later diagnosed with IBS with constipation, flatulence and abdominal pain -lower left side. The pain is only severe following a bowel movement. So I have a cycle of feeling fine until I have a bowel movement in the morning. It
So my symptoms started over ten years ago after a period of stress. I was later diagnosed with IBS with constipation, flatulence and abdominal pain -lower left side. The pain is only severe following a bowel movement. So I have a cycle of feeling fine until I have a bowel movement in the morning. It
Nico36
in
IBS Network
7 months ago
Newly diagnosed
So I have had chronic lymphatic leukaemia for 6 years and recently diagnosed with prostate cancer.Father died from it and brother also has just had his prostate removed. .I’ve scored3/3 on Gleason, MRI showed a small area of shadow from which they took 17 and 2 active from that. Appointment on Tuesday
So I have had chronic lymphatic leukaemia for 6 years and recently diagnosed with prostate cancer.Father died from it and brother also has just had his prostate removed. .I’ve scored3/3 on Gleason, MRI showed a small area of shadow from which they took 17 and 2 active from that. Appointment on Tuesday
Stacky66
in
Prostate Cancer Network
9 months ago
Thank you
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
PWT1
in
My Ovacome
24 days ago
I'm Back....
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Woolybluecurl
in
Anxiety and Depression Support
24 days ago
Biopsies and confusion
Here is my wifes Biopsys from Nov of 2020 STEATOHEPATITIS (SEE COMMENT), 'There are 9 portal tracts represented. A trichrome stain shows extensive pericellular fibrosis and bridging fibrosis. A PAS with diastase is negative for alpha-1-antitiypsin inclusions. A reticulin stain shows a maintained architecture
Here is my wifes Biopsys from Nov of 2020 STEATOHEPATITIS (SEE COMMENT), 'There are 9 portal tracts represented. A trichrome stain shows extensive pericellular fibrosis and bridging fibrosis. A PAS with diastase is negative for alpha-1-antitiypsin inclusions. A reticulin stain shows a maintained architecture
ceward204
in
British Liver Trust
5 months ago
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