Search
Search
About
Log in
Join
Experiences with
First Aid
Posts
Communities
39,267 public posts
Filter results
ASXL1 mutation 39% Worried about MF turning into leukemia
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
merlisa
in
Fight MPN
1 month ago
Severe reaction to Targinact - please help
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Claire_lc
in
Restless Legs Syndrome
7 months ago
probiotics stomach upset
Hi, I was interested in trying probiotics, namely Kefir to help restore gut microbiome since the Lanzoprazole destroys them. The dietitian recommended this too, as did my surgeon. I already eat lots of live yoghurt with no problems. However I’ve been getting a lot of wind and diarrhoea since I started
Hi, I was interested in trying probiotics, namely Kefir to help restore gut microbiome since the Lanzoprazole destroys them. The dietitian recommended this too, as did my surgeon. I already eat lots of live yoghurt with no problems. However I’ve been getting a lot of wind and diarrhoea since I started
PopandMo
in
Oesophageal & Gastric Cancer
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
B12 deficiency
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
Michbell45
in
Pernicious Anaemia Society
7 months ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
9 months ago
Wheat Diet may Exacerbate Multiple Sclerosis Severity
Wheat diet may exacerbate multiple sclerosis severity, research finds - Jan 2024
by Natkritta Hüppe, Universitätsmedizin der Johannes Gutenberg-Universität Mainz https://medicalxpress.com/news/2024-01-wheat-diet-exacerbate-multiple-sclerosis.html
Highlights:
A research team at the University
Wheat diet may exacerbate multiple sclerosis severity, research finds - Jan 2024
by Natkritta Hüppe, Universitätsmedizin der Johannes Gutenberg-Universität Mainz https://medicalxpress.com/news/2024-01-wheat-diet-exacerbate-multiple-sclerosis.html
Highlights:
A research team at the University
Bolt_Upright
in
Cure Parkinson's
7 months ago
worried and anxious
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
Sally789
in
The Roy Castle Lung Cancer Foundation
9 months ago
Anyone else have severe daily heartburn?
Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe heartburn? I’ve cut out acidic and spicy. It seems to happen mostly on an empty stomach right before lunch. Sometimes Pepsid Complete works and
Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe heartburn? I’ve cut out acidic and spicy. It seems to happen mostly on an empty stomach right before lunch. Sometimes Pepsid Complete works and
ReallyWondering
in
Pernicious Anaemia Society
7 months ago
🤖 ChatGPT on Cancer-Fighting Exercise💪 vs PCa
ChatGPT, the free AI research tool provided by OpenAI, is surprisingly good at summarizing some topic of interest that one might be interested in. I submitted a long question this evening on "
exercise against metastatic prostate cancer progression
". My goal is understanding exercise in an environment
ChatGPT, the free AI research tool provided by OpenAI, is surprisingly good at summarizing some topic of interest that one might be interested in. I submitted a long question this evening on "
exercise against metastatic prostate cancer progression
". My goal is understanding exercise in an environment
JohnInTheMiddle
in
Advanced Prostate Cancer
9 months ago
New to world of IBS - How do you balance your diet and still enjoy life?
Hi everyone, I am new to this network and I look forward to sharing experiences with my fellow community😀 I have always loved bread, especially craft-baked / slow fermented / sourdough types but have moved away from even these until I better understand the gremlin in my gut 👿 Before IBS said "Hello
Hi everyone, I am new to this network and I look forward to sharing experiences with my fellow community😀 I have always loved bread, especially craft-baked / slow fermented / sourdough types but have moved away from even these until I better understand the gremlin in my gut 👿 Before IBS said "Hello
Nomorewheat
in
IBS Network
7 months ago
Having panic attacks almost daily
why is this happening ! I’ve had Panic attacks in the past but nothing like this! It’s been a week and I wake up with Hot flashes and Then Boom panic attack! I’ve been to the ER got EKG ECG you name it! Everything BACK NORMAL including my blood work! What’s wrong with me?!?!
why is this happening ! I’ve had Panic attacks in the past but nothing like this! It’s been a week and I wake up with Hot flashes and Then Boom panic attack! I’ve been to the ER got EKG ECG you name it! Everything BACK NORMAL including my blood work! What’s wrong with me?!?!
Mindfulnessxo
in
Anxiety and Depression Support
5 months ago
Ct scan with contrast
Just had a ct scan with contrast. It sent my heart into a really erratic state for 1/2 hrs afterwards . Should I take my thyroid s as normal or wait 24 hrs for the stuff to clear out of my system? Any help please.
Just had a ct scan with contrast. It sent my heart into a really erratic state for 1/2 hrs afterwards . Should I take my thyroid s as normal or wait 24 hrs for the stuff to clear out of my system? Any help please.
Catlover3
in
Thyroid UK
7 months ago
uMRD 6
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
skipro
in
CLL Support
5 months ago
Got a job interview. Plus my top 3 choice for therapists in my homecity. Overthinking the decisions
Okay so yesterday was a mayhem. Mom decided to clean while she's off work and got the house upside down, before that the night before that telling sis over and over again to drink water and telling me to tell her. Sis was avoiding me, asked me to stay in the car instead in the café with her, yelled at
Okay so yesterday was a mayhem. Mom decided to clean while she's off work and got the house upside down, before that the night before that telling sis over and over again to drink water and telling me to tell her. Sis was avoiding me, asked me to stay in the car instead in the café with her, yelled at
Against_the_current
in
Anxiety and Depression Support
2 months ago
Afinitor +ESR1 mutation for the hive mind.
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Pbsoup
in
SHARE Metastatic Breast Cancer
9 months ago
Please may I get your thoughts on 2nd round of thyroid tests?
Hello 😊 Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Hello 😊 Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Bertiepuss
in
Thyroid UK
7 months ago
Post Rheumatology Appointment
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Paulx222
in
PMRGCAuk
9 months ago
Tests
Can anyone tell me what tests you have to prove its IBS as I haven't as yet but assuming I have this condition? ......constant gut ache and nausea but no diarrhoea or constipation as such.
Can anyone tell me what tests you have to prove its IBS as I haven't as yet but assuming I have this condition? ......constant gut ache and nausea but no diarrhoea or constipation as such.
Poshy
in
IBS Network
7 months ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
2 months ago
colitis
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
Bluegirl1948
in
Crohn's and Colitis Support
7 months ago
1
...
97
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3448 results
My Ovacome
2927 results
Thyroid UK
2818 results
View top 10 communities
Sort by
Most Relevant
Newest