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wet days
Just when you think you can manage with the pain, fatigue, dizzy spells and cramps, Fibro throws you a curve ball. Welcome to 2024, your new years gift is incontinence. I can be happily sitting at my desk typing when, oops! Or walking to the car and oops! Best one, sleeping in bed with my partner and
Just when you think you can manage with the pain, fatigue, dizzy spells and cramps, Fibro throws you a curve ball. Welcome to 2024, your new years gift is incontinence. I can be happily sitting at my desk typing when, oops! Or walking to the car and oops! Best one, sleeping in bed with my partner and
Frickle
in
Fibromyalgia Action UK
8 months ago
Runny eyes after virtual colonoscopy
I had a virtual CT scan on 2nd January. I was given intravenous buscopan and imaging fluid. Yesterday my eyes were watery and very slightly sore (they still are today). I was given an information sheet about going to A&E if I developed very red eyes and sight disturbance. My symptoms don’t match but
I had a virtual CT scan on 2nd January. I was given intravenous buscopan and imaging fluid. Yesterday my eyes were watery and very slightly sore (they still are today). I was given an information sheet about going to A&E if I developed very red eyes and sight disturbance. My symptoms don’t match but
Lclmlbls
in
IBS Network
9 months ago
Worried about withdrawing from DHC Continus
Due to a spinal injury some 20+ yrs ago, I was put on Dihydrocodeine Continus, 60mg tabs 3 times a day. GP has just been reissuing the prescription for the last 20 odd yrs without really discussing these meds with me, or about changing for another drug. Now after 20yrs they just suddenly stop the prescription
Due to a spinal injury some 20+ yrs ago, I was put on Dihydrocodeine Continus, 60mg tabs 3 times a day. GP has just been reissuing the prescription for the last 20 odd yrs without really discussing these meds with me, or about changing for another drug. Now after 20yrs they just suddenly stop the prescription
D95GAS
in
Pain Concern
9 months ago
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Tremor at the dentist
I have an embarrassing problem. My anxiety arcs up at the dentist and I cant stop the tremor in my left arm. Is there anything I could take before I go to ward off the tremor?
I have an embarrassing problem. My anxiety arcs up at the dentist and I cant stop the tremor in my left arm. Is there anything I could take before I go to ward off the tremor?
Frances24E
in
Cure Parkinson's
9 months ago
Really struggling with the fear that I'm going to have another fall while running
I had a nasty fall in May last year when I tripped on a gravel path while running. I messed my face up in a big way and damaged my shoulder. I've back running since the autumn and I'm pretty OK when I'm on the grass but when I'm running on a hard surface I get very nervous. It's been one of my ambitions
I had a nasty fall in May last year when I tripped on a gravel path while running. I messed my face up in a big way and damaged my shoulder. I've back running since the autumn and I'm pretty OK when I'm on the grass but when I'm running on a hard surface I get very nervous. It's been one of my ambitions
cornishgirl54
Graduate
in
Couch to 5K
9 months ago
Horizant tapering
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
JustVisiting23
in
Restless Legs Syndrome
9 months ago
spinal haematoma
hi there lovely people , was just wondering has anyone had bleeding on the spinal cord ? I am paralysed at the moment as I had a sharp pain in my back & everything then went numb from my chest down . I am wondered if this is caused by the lupus . They are saying if the clot reduces then I may get some
hi there lovely people , was just wondering has anyone had bleeding on the spinal cord ? I am paralysed at the moment as I had a sharp pain in my back & everything then went numb from my chest down . I am wondered if this is caused by the lupus . They are saying if the clot reduces then I may get some
tremarel
in
LUPUS UK
9 months ago
Imetelstat Users?
Hi All, I have Myelofibrosis and have been taking Jakavi for about 3 years, and it has been pretty successful in suppressing my symptoms. Unfortunately my symptoms are slowly returning, my spleen has enlarged to 215mm and a bone marrow biopsy has shown that the fibrosis is now pretty advanced. I
Hi All, I have Myelofibrosis and have been taking Jakavi for about 3 years, and it has been pretty successful in suppressing my symptoms. Unfortunately my symptoms are slowly returning, my spleen has enlarged to 215mm and a bone marrow biopsy has shown that the fibrosis is now pretty advanced. I
TimGS
in
MPN Voice
9 months ago
IBS, SIBO bad breath
Hi everyone, I have a quick question, since GIs here can't help me, I have come here to ask for a piece of advice from you. My IBS symptoms come and go, I am constantly on pro/prebiotics, and my GI keeps on changing the supplements, but my symptoms flare up whenever I have a stress( I started to notice
Hi everyone, I have a quick question, since GIs here can't help me, I have come here to ask for a piece of advice from you. My IBS symptoms come and go, I am constantly on pro/prebiotics, and my GI keeps on changing the supplements, but my symptoms flare up whenever I have a stress( I started to notice
Bella33355
in
IBS Network
9 months ago
results from spinal x-ray,:h:thoracic spine, :n:
there is a mild superior end-plate fracture at l1, otherwise normal vertebral alignment, vertebral body height and disc height maintained, the posterior elements appear intact as far as can be assessed on plain film.anyone any thoughts on that.
there is a mild superior end-plate fracture at l1, otherwise normal vertebral alignment, vertebral body height and disc height maintained, the posterior elements appear intact as far as can be assessed on plain film.anyone any thoughts on that.
Radars
in
Bone Health and Osteoporosis UK
9 months ago
Bleeding 3 weeks on desogesterel
I have been taking Desogesterel since March and at first it was fine, I still had a monthly bleed on it which was not painful. In July I discussed future conception with a GP who told me that i would be fine coming off the pill and ignored my endo diagnosis because i had it done privately.. I came off
I have been taking Desogesterel since March and at first it was fine, I still had a monthly bleed on it which was not painful. In July I discussed future conception with a GP who told me that i would be fine coming off the pill and ignored my endo diagnosis because i had it done privately.. I came off
Mushroom40
in
Endometriosis UK
9 months ago
PNT article on recent success in generating locus coeruleus (LC) norepinephrine (NE) neurons, to study their role in diseases such as PD.
"Nerve cells originating in the locus coeruleus extend throughout the brain and spinal cord via an extensive branching system, where they release norepinephrine to regulate heartbeat, blood pressure, arousal, memory, and attention." "In Parkinson’s, the locus coeruleus is one of the first brain regions
"Nerve cells originating in the locus coeruleus extend throughout the brain and spinal cord via an extensive branching system, where they release norepinephrine to regulate heartbeat, blood pressure, arousal, memory, and attention." "In Parkinson’s, the locus coeruleus is one of the first brain regions
jeffreyn
in
Cure Parkinson's
9 months ago
Steroid induced myopathy
I've been on Pred for 5 years for PMR albeit pretty low doses 2/3 mg for a long while. My rheumatologist seems to think the PMR might have burnt out and I possibly have steroid induced myopathy. The aches and stiffness is in similar areas to before. Does anyone have any experience in this?
I've been on Pred for 5 years for PMR albeit pretty low doses 2/3 mg for a long while. My rheumatologist seems to think the PMR might have burnt out and I possibly have steroid induced myopathy. The aches and stiffness is in similar areas to before. Does anyone have any experience in this?
ian1951
in
PMRGCAuk
9 months ago
Pregabalin and drowsiness
Hi there, My consultant put me on Pregabalin for RLS few weeks ago. He put me on 50mg for a week then on to 100mg from second week. As soon as I moved up to 100mg, I have experienced extreme drowsiness to the extent it has affected my work and made my jet lag worse. I have been on 100mg for nearly
Hi there, My consultant put me on Pregabalin for RLS few weeks ago. He put me on 50mg for a week then on to 100mg from second week. As soon as I moved up to 100mg, I have experienced extreme drowsiness to the extent it has affected my work and made my jet lag worse. I have been on 100mg for nearly
Hitsy
in
Restless Legs Syndrome
9 months ago
TROUBLE SLEEPING
I was diagnosed with PMR in July 2024 and am taking 12.5 mg prednisone as well as Kevzara. I have always been a poor sleeper but the steroids have made it even harder. The typical solutions such as Unisom, Tylenol PM, Melatonin etc just amp me up more. I occasionally take an Ambien just to sleep a
I was diagnosed with PMR in July 2024 and am taking 12.5 mg prednisone as well as Kevzara. I have always been a poor sleeper but the steroids have made it even harder. The typical solutions such as Unisom, Tylenol PM, Melatonin etc just amp me up more. I occasionally take an Ambien just to sleep a
SVLady
in
PMRGCAuk
8 days ago
Arrhythmias: Understanding your condition
Arrhythmias are heart rhythm disorders of your heart’s electrical system, whereby there is a change in the regular beat of your heart, causing it to beat irregularly. Sometimes if the conduction pathway is damaged or becomes blocked, or if an extra pathway exists, the heart’s rhythm changes. For more
Arrhythmias are heart rhythm disorders of your heart’s electrical system, whereby there is a change in the regular beat of your heart, causing it to beat irregularly. Sometimes if the conduction pathway is damaged or becomes blocked, or if an extra pathway exists, the heart’s rhythm changes. For more
SamAdmin
Administrator
in
Atrial Fibrillation Support
12 days ago
Totally distraught and worried!!!
Hi everyone, I’m so scared. I really need someone to tell me everything will be okay. I keep crying as I’m so distraught this has happened. My husband is amazing but can only do and say so much as this isn’t happening to him. I really need hope right now. I’m soon to be 42 and am 5 months postpartum
Hi everyone, I’m so scared. I really need someone to tell me everything will be okay. I keep crying as I’m so distraught this has happened. My husband is amazing but can only do and say so much as this isn’t happening to him. I really need hope right now. I’m soon to be 42 and am 5 months postpartum
monkee641
in
Pregnancy and Parenting Support
10 months ago
Bronchiectasis.. just had an ear operation.. finding pressure of using aerobika and chest clearance difficult .. any advice ??
Any advice for chest clearance after a lengthy operation out there please . Am home but Ear still bleeding a little I’ve not missed a days chest clearance in nearly 3 years and finding it difficult / worrying to put pressure into my aerobika & doing autogenic drainage for fear it may cause my ear
Any advice for chest clearance after a lengthy operation out there please . Am home but Ear still bleeding a little I’ve not missed a days chest clearance in nearly 3 years and finding it difficult / worrying to put pressure into my aerobika & doing autogenic drainage for fear it may cause my ear
Phill1
in
Lung Conditions Community Forum
10 months ago
Recent FIT test ‘worrying’
18 months of severe diarrhoea all the usual test NAD even after 2 accidents in a supermarket Told go away and live with it. Saw private Gastro thought it might be Crohns more tests inc Colonoscopy. Only result was raised Calprotectin but again discharged undiagnosed. That was February 2023. August
18 months of severe diarrhoea all the usual test NAD even after 2 accidents in a supermarket Told go away and live with it. Saw private Gastro thought it might be Crohns more tests inc Colonoscopy. Only result was raised Calprotectin but again discharged undiagnosed. That was February 2023. August
Nonameme
in
IBS Network
10 months ago
decades Later
I was married to a wonderful man. prior to our 20 yrs together, he was hit over the head with a full beer bottle. He lacked feeling emotions, never realizing it was part of the impact. One day he woke up and didn’t love anyone anymore.. divorced me, isolated himself from his kids, friends, family.
I was married to a wonderful man. prior to our 20 yrs together, he was hit over the head with a full beer bottle. He lacked feeling emotions, never realizing it was part of the impact. One day he woke up and didn’t love anyone anymore.. divorced me, isolated himself from his kids, friends, family.
Tidesinn
in
Headway
2 months ago
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