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Officially undiagnosed, awaiting insurance and in a bad way pls help..
Hi, I'm female 39 yrs old and very unwell. I can not go to a doctors at this point as I live abroad and need insurance which is currently processing. I have been to a sympathetic doctor under another name who has agreed with me after seeing a full CBC panel that I likely have PA. ( anemia through the
Hi, I'm female 39 yrs old and very unwell. I can not go to a doctors at this point as I live abroad and need insurance which is currently processing. I have been to a sympathetic doctor under another name who has agreed with me after seeing a full CBC panel that I likely have PA. ( anemia through the
0SK780
in
Pernicious Anaemia Society
7 years ago
Cough
My husband has had a pacemaker fitted with a defibrillator a couple of weeks ago. He had a bit of a cough whilst in hospital but since got home his cough has worsened. The doctor said his chest was clear but the caught is wearing him out. Does anyone else have this? He's not on ace inhibitors as he's
My husband has had a pacemaker fitted with a defibrillator a couple of weeks ago. He had a bit of a cough whilst in hospital but since got home his cough has worsened. The doctor said his chest was clear but the caught is wearing him out. Does anyone else have this? He's not on ace inhibitors as he's
colh123
in
AF Association
7 years ago
21 year old's test results with no answers from doctors.
Hi everyone, I decided to join the society after my doctor initially said she felt I had pernicious anaemia but following my Intrinsic Factor Antibody test coming back Ok, she said it couldn't be PA. Test results that seem to be slightly off are: Serum Folate - 3.1 ug/L Serum Vitamin B12 - 144 ng/L MCV
Hi everyone, I decided to join the society after my doctor initially said she felt I had pernicious anaemia but following my Intrinsic Factor Antibody test coming back Ok, she said it couldn't be PA. Test results that seem to be slightly off are: Serum Folate - 3.1 ug/L Serum Vitamin B12 - 144 ng/L MCV
LaurenDH123
in
Pernicious Anaemia Society
7 years ago
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Blood results..hashimotoa and possible rheumatoid!
Thank u for letting me join! My daughter 24 was diagnosed hashi. Age 15 and has been on LEVO. Since. However she now finally admitted to serious and increasing joint pain and stiffness building g up over past 2 years. She had a critical time a year ago and was tested for meningitis etc for iflammation
Thank u for letting me join! My daughter 24 was diagnosed hashi. Age 15 and has been on LEVO. Since. However she now finally admitted to serious and increasing joint pain and stiffness building g up over past 2 years. She had a critical time a year ago and was tested for meningitis etc for iflammation
MySpirit
in
Thyroid UK
7 years ago
Ferritin up and b12 up - translation of blood tests, please?
Please could someone advise as to what these iron tests show? My ferritin level has gone up. B12 level has gone up and as I do not take any b12 supplements ( my last 3-monthly injection was 31/5) how can my levels go up when it is now longer since my last dose?? Concentration is still a main problem
Please could someone advise as to what these iron tests show? My ferritin level has gone up. B12 level has gone up and as I do not take any b12 supplements ( my last 3-monthly injection was 31/5) how can my levels go up when it is now longer since my last dose?? Concentration is still a main problem
Doubleblank
in
Pernicious Anaemia Society
7 years ago
need help with results please
my gp did a intrinsic factor antibody test after he started me on a loading dose of b12 injections. the results say negative the markers are (0 - 24) and my result was 3. not sure what this means. thank you for reading
my gp did a intrinsic factor antibody test after he started me on a loading dose of b12 injections. the results say negative the markers are (0 - 24) and my result was 3. not sure what this means. thank you for reading
crinkle28
in
Pernicious Anaemia Society
7 years ago
Parietal cell antibodies and ifa testing questions
I recently received the book "what you need to know about pernicious anemia and vitamin B12 deficiency". I have managed to read through chapter 4 which discusses problems in diagnosing pernicious anemia. I am confused. I am in the United States and therefore trying to determine which test to request
I recently received the book "what you need to know about pernicious anemia and vitamin B12 deficiency". I have managed to read through chapter 4 which discusses problems in diagnosing pernicious anemia. I am confused. I am in the United States and therefore trying to determine which test to request
KimberinUS
in
Pernicious Anaemia Society
7 years ago
Rheumatoid Factor!
Advise needed please. In 2003 I was tested for rheumatoid factor (RF) and it was 51. Saw Respiratory Consultant about my 'cough' and they 'briefly' mentioned 'hypersensitive lungs'. Got an inhaler but only needed it a very short period of time. No signs of it in joints. The doctor wasn't bothered.
Advise needed please. In 2003 I was tested for rheumatoid factor (RF) and it was 51. Saw Respiratory Consultant about my 'cough' and they 'briefly' mentioned 'hypersensitive lungs'. Got an inhaler but only needed it a very short period of time. No signs of it in joints. The doctor wasn't bothered.
GeorginaS
in
Lung Conditions Community Forum
7 years ago
Will intrinsic antibodies show up even if b12 normal due to taking b12 tablets?
Hi all, I just wanted to get some advice if possible. I have hashimotos for the last ten years but never felt right despite my thyroxine apparently correcting this. I've now discovered I have 22 symptoms on the pernicious anaemia symptom checker and yet whenever I go to my gp I get told it's down to
Hi all, I just wanted to get some advice if possible. I have hashimotos for the last ten years but never felt right despite my thyroxine apparently correcting this. I've now discovered I have 22 symptoms on the pernicious anaemia symptom checker and yet whenever I go to my gp I get told it's down to
Cathyjw
in
Pernicious Anaemia Society
7 years ago
pernicious anemia?? but high b12
hi there I'm rather embarrassed but don't know where else to turn to but social media. I'm a registered nurse but I find myself confounded by my ongoing symptoms. Basically I will tell you in short what has been happening in the past 10 weeks. first I want to tell you that 10 years ago I had similar
hi there I'm rather embarrassed but don't know where else to turn to but social media. I'm a registered nurse but I find myself confounded by my ongoing symptoms. Basically I will tell you in short what has been happening in the past 10 weeks. first I want to tell you that 10 years ago I had similar
Hidden
in
Pernicious Anaemia Society
7 years ago
GP appointment update
Hi so I have come back from GP and it has been a really promising appointment. He has upped my thyroxine from 100mcg to 125mcg with a repeat test in 6-8 weeks time. He has accepted I have Hashimotos and that it is a confusing illness that can cause fluctuations in hormone levels and symptoms. He told
Hi so I have come back from GP and it has been a really promising appointment. He has upped my thyroxine from 100mcg to 125mcg with a repeat test in 6-8 weeks time. He has accepted I have Hashimotos and that it is a confusing illness that can cause fluctuations in hormone levels and symptoms. He told
j345
in
Thyroid UK
7 years ago
DYSPHAGIA - Medications that can cause Swallowing Problems
Here is a list of the medications that can impact swallowing and why this happens: Dysphagia as a side effect of medication Medications that affect the smooth and striated muscles of the esophagus which are involved in swallowing may cause dysphagia. Medications with anticholinergic or antimuscarinic
Here is a list of the medications that can impact swallowing and why this happens: Dysphagia as a side effect of medication Medications that affect the smooth and striated muscles of the esophagus which are involved in swallowing may cause dysphagia. Medications with anticholinergic or antimuscarinic
gutlesswonder
in
Oesophageal & Gastric Cancer
7 years ago
Acute gastrointestinal event,”
Acute gastrointestinal event,” What to Blame for Your Stomach Bug? Not Always the Last Thing You Ate It happens like a bolt out of the blue. One minute you’re fine, and the next you begin to sweat as crippling cramps move wavelike through your belly. You vomit or have diarrhea, or both, fearing you
Acute gastrointestinal event,” What to Blame for Your Stomach Bug? Not Always the Last Thing You Ate It happens like a bolt out of the blue. One minute you’re fine, and the next you begin to sweat as crippling cramps move wavelike through your belly. You vomit or have diarrhea, or both, fearing you
rvmasalvad
in
Healthy Eating
7 years ago
B12 blood tests after supplementing?
About 18 months ago after developing neurological symptoms and other symptoms (such as breathlessness) and being told that my serum B12 level was "in range" (224) by my GP, I started to supplement using daily 5000mcg Methylcobalamin tablets and later with a spray also, along with a good B complex with
About 18 months ago after developing neurological symptoms and other symptoms (such as breathlessness) and being told that my serum B12 level was "in range" (224) by my GP, I started to supplement using daily 5000mcg Methylcobalamin tablets and later with a spray also, along with a good B complex with
seamail57
in
Pernicious Anaemia Society
7 years ago
my blood test results
Following on from my first post I am now able to access my blood test results on line. they were as follows:- Erythrocyte sedimentation rate: 25.000 mm/hr (raised) Plasma C reactive protein: 16.000 mg/L (raised) Rheumatoid Factor: 20.000 iu/ml ( its say normal) so what does all this mean
Following on from my first post I am now able to access my blood test results on line. they were as follows:- Erythrocyte sedimentation rate: 25.000 mm/hr (raised) Plasma C reactive protein: 16.000 mg/L (raised) Rheumatoid Factor: 20.000 iu/ml ( its say normal) so what does all this mean
am64
in
PMRGCAuk
7 years ago
Typical Sunday
I have had a lovely day. Egg and ham for breakfast with a slice of fried brown bread. I took my metformin my glipizide and actos. Always this dreadful crash happens. I had to go to bed. 10am. Slept til 12.30 i had to shower and dress and leave at 1pm for church at 1.30 hampton court bridge was dreadful
I have had a lovely day. Egg and ham for breakfast with a slice of fried brown bread. I took my metformin my glipizide and actos. Always this dreadful crash happens. I had to go to bed. 10am. Slept til 12.30 i had to shower and dress and leave at 1pm for church at 1.30 hampton court bridge was dreadful
VonnyM
in
Fibromyalgia Action UK
7 years ago
Switching from NDT to T4 and suffering...
Backstory: Near Total Thyroidectomy in 2004 due to Graves. Was put on 125mcg T4 to start with. Introduced T3 at some point. Was made to come off T3 when I got pregnant with my son in 2009. Stayed on T4 only through that pregnancy and my next pregnancy too. Was bouncing around 175mcg and 150mcg at that
Backstory: Near Total Thyroidectomy in 2004 due to Graves. Was put on 125mcg T4 to start with. Introduced T3 at some point. Was made to come off T3 when I got pregnant with my son in 2009. Stayed on T4 only through that pregnancy and my next pregnancy too. Was bouncing around 175mcg and 150mcg at that
brighter84
in
Thyroid UK
7 years ago
Please can I ask for your opinions on my blood results and symptoms
I was diagnosed about 10 months ago with CFSME. My main symptoms were brain fog, exhaustion, joint and muscle pain. My symptoms are increasing and worsening; I have hard lymph nodes in my neck, a hard vein also, a persistent eye twitch, chest discomfort, shortness of breath, weakness, anxiety, dizziness
I was diagnosed about 10 months ago with CFSME. My main symptoms were brain fog, exhaustion, joint and muscle pain. My symptoms are increasing and worsening; I have hard lymph nodes in my neck, a hard vein also, a persistent eye twitch, chest discomfort, shortness of breath, weakness, anxiety, dizziness
Tangawizi
in
Pernicious Anaemia Society
7 years ago
Any thoughts/advice on my results?
Main symptoms are Fatigue, weight gain, lack of concentration & drive. Nearly all bloods are “in range” so for docs nothing wrong with me, so went back for more detailed bloods to research myself and ask for help and advice from others who have more of a clue! Not on any thyroid meds as doctors all
Main symptoms are Fatigue, weight gain, lack of concentration & drive. Nearly all bloods are “in range” so for docs nothing wrong with me, so went back for more detailed bloods to research myself and ask for help and advice from others who have more of a clue! Not on any thyroid meds as doctors all
Geminichica
in
Thyroid UK
7 years ago
All symptoms of PA, not showing in bloodwork
Hi, I've been tested twice for intrinsic factor, it has come back negative both times. I was told that was normal, and I am absorbing B12. I have been getting B12 injections 1,000mcg every two weeks. My B12 is now 1602. (200-1000) One week after injection so I figured it would be high. I still have
Hi, I've been tested twice for intrinsic factor, it has come back negative both times. I was told that was normal, and I am absorbing B12. I have been getting B12 injections 1,000mcg every two weeks. My B12 is now 1602. (200-1000) One week after injection so I figured it would be high. I still have
Crzygirl
in
Pernicious Anaemia Society
7 years ago
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