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Free ebook of 300 pages:"Parkinson's here and now. 27 years searching for a cure for Parkinson's disease (1994-2021)."
This coming Monday (if everything goes as planned) I will publish on my blog "Parkinson's here and now" the link to a free book of about 250-300 pages and in printable pdf format, which collects the most interesting of the book I published in 2015 (now translated into English) as a tribute to my father
This coming Monday (if everything goes as planned) I will publish on my blog "Parkinson's here and now" the link to a free book of about 250-300 pages and in printable pdf format, which collects the most interesting of the book I published in 2015 (now translated into English) as a tribute to my father
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Intrinsic factor
Had low b12 in 2014 seems to run in family,have had injections every 3 months since ,have not been diagnosed with PA .But have always been ok after my injection for three weeks then it down hill and have to take sublingualsalways take my folic acid Last year in middle of the 30 weeks that I never had
Had low b12 in 2014 seems to run in family,have had injections every 3 months since ,have not been diagnosed with PA .But have always been ok after my injection for three weeks then it down hill and have to take sublingualsalways take my folic acid Last year in middle of the 30 weeks that I never had
may61
in
Pernicious Anaemia Society
3 years ago
High Intrinsic Factor Result?
Question: trying to help my sister understand these results. What does a high intrinsic factor Abs result mean?
Question: trying to help my sister understand these results. What does a high intrinsic factor Abs result mean?
NJPoet
in
Pernicious Anaemia Society
3 years ago
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Should You Get the COVID-19 Vaccine If You Have a History of Allergic Reactions to Infused or Injectable Medications?
Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Biologic Infusions
Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Biologic Infusions
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
So many symptoms, does it sound like b12 😣
My last b12 bloods were 314 pretty much exactly 2 years ago. I've had so many scans, tests for what started out as extreme fatigue and frequent urination. Never had a solid diagnosis. Around 2 months ago the fatigue got worse and I noticed weakness/numbness tingling in my legs in a morning. I've not
My last b12 bloods were 314 pretty much exactly 2 years ago. I've had so many scans, tests for what started out as extreme fatigue and frequent urination. Never had a solid diagnosis. Around 2 months ago the fatigue got worse and I noticed weakness/numbness tingling in my legs in a morning. I've not
Kizzik
in
Pernicious Anaemia Society
3 years ago
Doctor not reinstating b12 injections
So been to doctors today to discuss my recent blood test and intrinsic factor antibody (came back negative)she’s happy with my b12 level of 532 so is not willing to reinstate my injections,she just told me to continue with my oral b12 supplement and have a blood test in a months time. Said to monitor
So been to doctors today to discuss my recent blood test and intrinsic factor antibody (came back negative)she’s happy with my b12 level of 532 so is not willing to reinstate my injections,she just told me to continue with my oral b12 supplement and have a blood test in a months time. Said to monitor
Dragon_mum
in
Pernicious Anaemia Society
3 years ago
Vaccine
Feeling apprehensive now about having the jab when I get the notice. I had covid back in march/,April. Reading some of your reactions. I have the flu jab each year with no symptoms apart from sore arms. Fingers cross the vaccine will be the same. I was told none have a live thing in? I'm also not allowed
Feeling apprehensive now about having the jab when I get the notice. I had covid back in march/,April. Reading some of your reactions. I have the flu jab each year with no symptoms apart from sore arms. Fingers cross the vaccine will be the same. I was told none have a live thing in? I'm also not allowed
Bull5160
in
LUPUS UK
3 years ago
High blood levels of B12
Hi everyone, Not new here but just a little background - I was diagnosed with B12 deficiency back in 2014, I managed to produce enough evidence to satisfy my GP that I could not manage on 2 - 3 monthly injections and so I am able (currently) to access enough B12 for my needs, but this could soon change
Hi everyone, Not new here but just a little background - I was diagnosed with B12 deficiency back in 2014, I managed to produce enough evidence to satisfy my GP that I could not manage on 2 - 3 monthly injections and so I am able (currently) to access enough B12 for my needs, but this could soon change
Wierdorwhat
in
Pernicious Anaemia Society
3 years ago
Need help!
So I have been struggling with quite a lot of symptoms for a while (since I was 17, I am 19 right now). My family doctor did a routine blood work and found out I am deficient in vitamin d, somewhat anemic (runs in the family) and my lymphocytes are 4.4xe9/L. I did a course of vitamin d supplements since
So I have been struggling with quite a lot of symptoms for a while (since I was 17, I am 19 right now). My family doctor did a routine blood work and found out I am deficient in vitamin d, somewhat anemic (runs in the family) and my lymphocytes are 4.4xe9/L. I did a course of vitamin d supplements since
simit
in
Thyroid UK
3 years ago
Confused!!! Please please help
So I have been struggling with quite a lot of symptoms for a while (since I was 17, I am 19 right now). My family doctor did a routine blood work and found out I am deficient in vitamin d, somewhat anemic (runs in the family) and my lymphocytes are 4.4xe9/L. I did a course of vitamin d supplements since
So I have been struggling with quite a lot of symptoms for a while (since I was 17, I am 19 right now). My family doctor did a routine blood work and found out I am deficient in vitamin d, somewhat anemic (runs in the family) and my lymphocytes are 4.4xe9/L. I did a course of vitamin d supplements since
simit
in
LUPUS UK
3 years ago
Does a lack of intrinsic factor prevent iron absorption?
Does a lack of intrinsic factor prevent the absorption of iron too or is it simply B12? If so what would be the best way to get iron into the body and does anyone know of any decent iron supplements that are readily absorbed? Thank you all for any help
Does a lack of intrinsic factor prevent the absorption of iron too or is it simply B12? If so what would be the best way to get iron into the body and does anyone know of any decent iron supplements that are readily absorbed? Thank you all for any help
WorkingProgress
in
Pernicious Anaemia Society
3 years ago
Rheumatoid Factor blood test
Hi all New to this, I have just seen my results and have this back, is it confirmation I have RA? Rheumatoid factor level (XE255) 20 iu/mL [0 - 15] Many thanks all
Hi all New to this, I have just seen my results and have this back, is it confirmation I have RA? Rheumatoid factor level (XE255) 20 iu/mL [0 - 15] Many thanks all
Gillybean129
in
NRAS
3 years ago
High thyroglobulin antibodies
Just an update and any advice would be appreciated. I sent off for some private blood tests as I am still experiencing pins and needles and STILL being ignored by my GP. However last week I did receive a call from an out of hours GP who listened to me and has referred me to a neurologist. So fingers
Just an update and any advice would be appreciated. I sent off for some private blood tests as I am still experiencing pins and needles and STILL being ignored by my GP. However last week I did receive a call from an out of hours GP who listened to me and has referred me to a neurologist. So fingers
Auto2
in
Thyroid UK
3 years ago
Confusing Blood Work/ Searching for Advice
Hi, I’m hoping someone can help me. I’m 27 and I have been battling many symptoms since I was about 18 years old. Most of my symptoms have been psychiatric (OCD, anxiety, phobia) but I have also had unexplainable skin rashes on my knuckles and elbows that spontaneously happen, a fainting episode, constipation
Hi, I’m hoping someone can help me. I’m 27 and I have been battling many symptoms since I was about 18 years old. Most of my symptoms have been psychiatric (OCD, anxiety, phobia) but I have also had unexplainable skin rashes on my knuckles and elbows that spontaneously happen, a fainting episode, constipation
WishingWell1
in
Pernicious Anaemia Society
3 years ago
Lupus?
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
Anniemari
in
Lupus Foundation of Florida
3 years ago
Do I have lupus
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
Anniemari
in
LUPUS UK
3 years ago
Bladder neck contracture
I have a bladder neck contracture that makes urinating difficult I was able to insert catheters with difficulty so I was not terribly concerned about being very far from competent medical care. It is a 4 hour drive to a hospital with a urologist on call and my local very good primary care doctor told
I have a bladder neck contracture that makes urinating difficult I was able to insert catheters with difficulty so I was not terribly concerned about being very far from competent medical care. It is a 4 hour drive to a hospital with a urologist on call and my local very good primary care doctor told
spencoid2
in
Prostate Cancer And Gay Men
3 years ago
WHAT NOW? FOUR ACES TO BEAT PARKINSON'S...
There is enough space on a sheet of paper to summarise the revolution that is taking place in the world of Parkinson's, even if the information does not reach 99% of sufferers and their families. A revolution on paper, but not yet in real life. What some brave and compassionate neurologists advise
There is enough space on a sheet of paper to summarise the revolution that is taking place in the world of Parkinson's, even if the information does not reach 99% of sufferers and their families. A revolution on paper, but not yet in real life. What some brave and compassionate neurologists advise
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Perfect eyesight only flashing in left eye
I was given a diagnosis first of all of PCNM then PCV I was given PDT treatment on Tuesday who straight away affected my middle vision eyesight of left eye, seen again on Friday and given an Anti Vegf injection I still have the middle vision blur etc My question is will my perfect eyesight return 😔
I was given a diagnosis first of all of PCNM then PCV I was given PDT treatment on Tuesday who straight away affected my middle vision eyesight of left eye, seen again on Friday and given an Anti Vegf injection I still have the middle vision blur etc My question is will my perfect eyesight return 😔
Pgoss
in
Macular Society
3 years ago
Medication query
I was diagnosed with fibromyalgia approx 8 months ago after a lengthy process of elimination. To date I've had 1 appointment with a rheumatologist who asked me a few questions, manipulated my knee joints and then confirmed I don't have rheumatoid arthritis at the moment although my rheumatoid factor
I was diagnosed with fibromyalgia approx 8 months ago after a lengthy process of elimination. To date I've had 1 appointment with a rheumatologist who asked me a few questions, manipulated my knee joints and then confirmed I don't have rheumatoid arthritis at the moment although my rheumatoid factor
Lizangellus
in
Fibromyalgia Action UK
3 years ago
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