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Factor Xa inhibitor
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GCA worries
Hi. I’ve been hiding in the wings here for a while, gleaning information. My GP has now been treating me for PMR and, according to her Temporal arteritis/GCA symptoms for about 3 weeks now but I’ve had symptoms on and off for some time. I’m almost 50 and have always been healthy apart from having Sjogren
Hi. I’ve been hiding in the wings here for a while, gleaning information. My GP has now been treating me for PMR and, according to her Temporal arteritis/GCA symptoms for about 3 weeks now but I’ve had symptoms on and off for some time. I’m almost 50 and have always been healthy apart from having Sjogren
JustKath
in
PMRGCAuk
4 years ago
B12 injections been stopped
Hoping for some advice please. My apologies for the length. I have hypothyroidism and B12 deficiency diagnosed in 2017. I also have IBS with a dairy sensitivity since I was 15. I have a healthy balanced diet but cannot digest red meat and have to monitor my dairy input daily. I have been having B12
Hoping for some advice please. My apologies for the length. I have hypothyroidism and B12 deficiency diagnosed in 2017. I also have IBS with a dairy sensitivity since I was 15. I have a healthy balanced diet but cannot digest red meat and have to monitor my dairy input daily. I have been having B12
puddings1
in
Pernicious Anaemia Society
4 years ago
Intrinsic factor test reliability
Would one of you very knowledgeable people please remind me why the anti parietal cell/intrinsic factor test isn’t to be relied upon please. I’m trying to prepare for tomorrow’s fight with GP. Thank you.
Would one of you very knowledgeable people please remind me why the anti parietal cell/intrinsic factor test isn’t to be relied upon please. I’m trying to prepare for tomorrow’s fight with GP. Thank you.
Parlay
in
Pernicious Anaemia Society
4 years ago
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Blood Test results - Please Advise...
Hi, I had a blood test at my GP surgery in September and my results were: Serum B12 level: 119 ng/L (150-900) Serum Folate level: 2.3 ug/L (3.1-19.9) I did a thriva blood test after supplementing 5mg folic acid for 4 weeks and 1000mcg Jarrows B12 for 3 weeks and my results are: Total B12: 352 pmol
Hi, I had a blood test at my GP surgery in September and my results were: Serum B12 level: 119 ng/L (150-900) Serum Folate level: 2.3 ug/L (3.1-19.9) I did a thriva blood test after supplementing 5mg folic acid for 4 weeks and 1000mcg Jarrows B12 for 3 weeks and my results are: Total B12: 352 pmol
Sarahlouise1980
in
Pernicious Anaemia Society
4 years ago
latest bloods
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
mandy72
in
Thyroid UK
4 years ago
Advice needed please
Hi, I have been experiencing various problems over the years but the last couple of months I seem to have crashed. I tested positive for Parietal cell and Intrinsic Factor antibodies about 5 years ago but I didn't think too much about it at the time and my GP dismissed it as not important. I suffer from
Hi, I have been experiencing various problems over the years but the last couple of months I seem to have crashed. I tested positive for Parietal cell and Intrinsic Factor antibodies about 5 years ago but I didn't think too much about it at the time and my GP dismissed it as not important. I suffer from
Fallingapart0627
in
Pernicious Anaemia Society
4 years ago
Tinnitus
It’s been a lot time since I posted anything . I have been feeling really sick for a long time thought it was my medication, Thyroxine, changed to Eltroxin, felt worse. Got high blood pressure, and bad tinnitus, tried every BP medication there is , arbs, ace inhibitors, vasilators, beta blockers .,
It’s been a lot time since I posted anything . I have been feeling really sick for a long time thought it was my medication, Thyroxine, changed to Eltroxin, felt worse. Got high blood pressure, and bad tinnitus, tried every BP medication there is , arbs, ace inhibitors, vasilators, beta blockers .,
Margjeans
in
Thyroid UK
4 years ago
B12 Deficient Newby - More Questions
So I recently posted about getting the intrinsic factor test and how long to stop injections before taking it. So had the test, and of course it has come back negative. Doctor originally was going to stop the injections, but after I protested and showed him current documentation he relented and is allowing
So I recently posted about getting the intrinsic factor test and how long to stop injections before taking it. So had the test, and of course it has come back negative. Doctor originally was going to stop the injections, but after I protested and showed him current documentation he relented and is allowing
Wolf79
in
Pernicious Anaemia Society
4 years ago
Help with a mystery needed
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
CW12
in
Pernicious Anaemia Society
4 years ago
Newly diagnosed
Hello All, I have been diagnosed with PA the one where my body attacks the intrinsic factor. This is all new to me. I am 35 and finally all of my symptoms seem to make sense. My b12 is a 309 which seems to be at the lower end yet according to my blood results isn’t low exactly. My doctor just said all
Hello All, I have been diagnosed with PA the one where my body attacks the intrinsic factor. This is all new to me. I am 35 and finally all of my symptoms seem to make sense. My b12 is a 309 which seems to be at the lower end yet according to my blood results isn’t low exactly. My doctor just said all
Drimmer
in
Pernicious Anaemia Society
4 years ago
Diagnosis
In July I was feeling unwell with extreme fatigue, dizziness, pins & needles, breathlessness & palpitations. Blood tests showed B12 137 n190 - 660 folate 3.7 n 3.9 - 26.8 24 hour ECG showed first degree heart block. I had to wait 3 months to have B12 rechecked & IF antibodies checked. In October the
In July I was feeling unwell with extreme fatigue, dizziness, pins & needles, breathlessness & palpitations. Blood tests showed B12 137 n190 - 660 folate 3.7 n 3.9 - 26.8 24 hour ECG showed first degree heart block. I had to wait 3 months to have B12 rechecked & IF antibodies checked. In October the
Sinclair12
in
Pernicious Anaemia Society
4 years ago
New test results are in
Family doctor - tested b12 with a result of <50 (undetectable?) and referred to neurologist due to neuropathy symptoms Neurologist - 2 more b12 related testing. All 3 of which normalized after 6 weekly shots. But found i had antibodies to parietal cells and intrinsic factor. Stopped injections and sent
Family doctor - tested b12 with a result of <50 (undetectable?) and referred to neurologist due to neuropathy symptoms Neurologist - 2 more b12 related testing. All 3 of which normalized after 6 weekly shots. But found i had antibodies to parietal cells and intrinsic factor. Stopped injections and sent
BethCam
in
Pernicious Anaemia Society
4 years ago
Intrinsic Factor
Hi, I have vitamin B12 injections every 8 weeks but started having to reduce the length of time in between as found the 2 weeks were neurologically symptomatic. I am now finding I’m hitting the 6 week mark and I am so fatigued and symptomatic it is getting me down. I had a blood test before my last injection
Hi, I have vitamin B12 injections every 8 weeks but started having to reduce the length of time in between as found the 2 weeks were neurologically symptomatic. I am now finding I’m hitting the 6 week mark and I am so fatigued and symptomatic it is getting me down. I had a blood test before my last injection
Gloucester12
in
Pernicious Anaemia Society
4 years ago
Absorption of B12
Hi everyone, This is my first post and I have a some questions regarding absorption of B12. I have had Crohn's since since I was 24 and now I am 47. I have had a terminal ileostomy for 15 years and 7 years ago I had another 9 inches of my small bowel removed due to the disease. I have had B12 injections
Hi everyone, This is my first post and I have a some questions regarding absorption of B12. I have had Crohn's since since I was 24 and now I am 47. I have had a terminal ileostomy for 15 years and 7 years ago I had another 9 inches of my small bowel removed due to the disease. I have had B12 injections
Darran1
in
Pernicious Anaemia Society
4 years ago
In what conditions (other than Hasimotos) are TG Antibodies raised (but TPO AB's are not)? Also results interpretation please.
In what conditions (other than Hasimoto's) are TG Antibodies raised please? I'm struggling to obtain a clear answer on this. Below are my MediChecks full thyroid panel results; the MediChecks GP stated that my results indicate Hasimoto's, although my TSH indicates my thyroid function is "fine" currently
In what conditions (other than Hasimoto's) are TG Antibodies raised please? I'm struggling to obtain a clear answer on this. Below are my MediChecks full thyroid panel results; the MediChecks GP stated that my results indicate Hasimoto's, although my TSH indicates my thyroid function is "fine" currently
tomranson85
in
Thyroid UK
4 years ago
Doctors app today
I’m seeing my daughters gp Today . I have the information re children and b12 deficiency off the pernicious anaemia society and stichting report . I will be asked for evidence based research as to why my child should receive more frequent injections than 3 monthly so have done my best to cover everything
I’m seeing my daughters gp Today . I have the information re children and b12 deficiency off the pernicious anaemia society and stichting report . I will be asked for evidence based research as to why my child should receive more frequent injections than 3 monthly so have done my best to cover everything
Andypandy30
in
Pernicious Anaemia Society
4 years ago
Newly diagnosed with RA
Hi all, I'm Dominic, I was recently diagnosed with seropositive RA, I am/was a keen Marathon/ultra marathon runner and competed in an off road ultra marathon as recently as July, I then developed a pain in one toe which I presumed was a stress fracture from said run, over the next few weeks, this spread
Hi all, I'm Dominic, I was recently diagnosed with seropositive RA, I am/was a keen Marathon/ultra marathon runner and competed in an off road ultra marathon as recently as July, I then developed a pain in one toe which I presumed was a stress fracture from said run, over the next few weeks, this spread
Dominicveal
in
NRAS
4 years ago
Could it still be B12/PA??
Following a spell in hospital pneumonia - something was found in my stomach. Intrinsic factor positive but B12 450 Folate 6.2. On coming home IF was retested and came back negative. Tomorrow I have an endoscopy as the suggestion is auto immune gastric atrophy. In short might it still mean I can have
Following a spell in hospital pneumonia - something was found in my stomach. Intrinsic factor positive but B12 450 Folate 6.2. On coming home IF was retested and came back negative. Tomorrow I have an endoscopy as the suggestion is auto immune gastric atrophy. In short might it still mean I can have
wenwake
in
Pernicious Anaemia Society
4 years ago
Intrinsic Factor test Negative :-(
Hi guys I'm hoping someone can advise me what to do now. I recently got my bloods back for the IF antibody test and it was negative. My symptoms got better when I had my b12 loading doses, I've looked back at past bloods and my b12 levels have always been low or on the low side for the last 10+ years
Hi guys I'm hoping someone can advise me what to do now. I recently got my bloods back for the IF antibody test and it was negative. My symptoms got better when I had my b12 loading doses, I've looked back at past bloods and my b12 levels have always been low or on the low side for the last 10+ years
Bekg2k
in
Pernicious Anaemia Society
4 years ago
How do I know if I have an absorption problem??
Hi, Im trying to decide between taking the 1000mcg Jarrows sublinguals or the 50mcg cyanocobalamin tablets. I’ve been taking the Jarrows for three weeks and have come out in an itchy acne type rash. How do I know if I have an absorption problem? I’m hypothyroid and tested negative for the intrinsic
Hi, Im trying to decide between taking the 1000mcg Jarrows sublinguals or the 50mcg cyanocobalamin tablets. I’ve been taking the Jarrows for three weeks and have come out in an itchy acne type rash. How do I know if I have an absorption problem? I’m hypothyroid and tested negative for the intrinsic
Sarahlouise1980
in
Pernicious Anaemia Society
4 years ago
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