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Low B12, TPO antibodies but doctors insisting it's MS
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was
Mirandarr
in
Pernicious Anaemia Society
5 years ago
TPO antibodies, Low B12 but doctors still insisting MS
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was without
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was without
Mirandarr
in
Thyroid UK
5 years ago
4 months of treatment and no better off, is it really PA?
I am debating with my doctor whether my neuropsychiatric symptoms are truly the result of Pernicious Anemia (I have tested "abnormal high" for Intrinsic Factor antibodies). After 4 months I am not responding well to B12 treatment (after an initial few months of perceiving improvement), so she seems
I am debating with my doctor whether my neuropsychiatric symptoms are truly the result of Pernicious Anemia (I have tested "abnormal high" for Intrinsic Factor antibodies). After 4 months I am not responding well to B12 treatment (after an initial few months of perceiving improvement), so she seems
teebeevee
in
Pernicious Anaemia Society
5 years ago
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PA with no antibodies?
Hi all. My b12 level was tested back in May 2018 and was 197 (180 was classed as low so wasn’t treated at the time) and when I had it rechecked last month it had dropped to 150. My GP then checked for intrinsic factor and parietal cell antibodies and then put me on the loading doses of b12 injections
Hi all. My b12 level was tested back in May 2018 and was 197 (180 was classed as low so wasn’t treated at the time) and when I had it rechecked last month it had dropped to 150. My GP then checked for intrinsic factor and parietal cell antibodies and then put me on the loading doses of b12 injections
Katier92
in
Pernicious Anaemia Society
5 years ago
Graves’ disease, in remission since May 2018 but in lots of pain
In the spring of 2016, I started to feel unwell and to display various of the symptoms of hyperthyroidism. The first symptom I experienced was physical pain. In May 2017, I was diagnosed with Graves hyperthyroidism and started taking medication. By the autumn of 2017, my thyroid levels were back within
In the spring of 2016, I started to feel unwell and to display various of the symptoms of hyperthyroidism. The first symptom I experienced was physical pain. In May 2017, I was diagnosed with Graves hyperthyroidism and started taking medication. By the autumn of 2017, my thyroid levels were back within
SolSun
in
Thyroid UK
5 years ago
B12 defficient can it cause palpitations
Hi all I have had a low B12 result, 127 after symptoms of pins and needles in hands and feet, heart palpitations tight chest, periods of vertigo when walking. Can these symptoms realy be B12 deficiency? They say i dont have anemia as my red blood count is normal but have not had any other blood test
Hi all I have had a low B12 result, 127 after symptoms of pins and needles in hands and feet, heart palpitations tight chest, periods of vertigo when walking. Can these symptoms realy be B12 deficiency? They say i dont have anemia as my red blood count is normal but have not had any other blood test
Suzie0505
in
Pernicious Anaemia Society
5 years ago
Any suggestions to manage orthostatic hypotension?
My Dad has been diagnosed with PD - 4 years ago. He is on lc and that controls his tremors and relieves rigidity. When he reduced his lc recently those symptoms were significantly worse. Mostly he manages pretty well in his new home environment, but suffers increasingly with fainting / dizzy spells
My Dad has been diagnosed with PD - 4 years ago. He is on lc and that controls his tremors and relieves rigidity. When he reduced his lc recently those symptoms were significantly worse. Mostly he manages pretty well in his new home environment, but suffers increasingly with fainting / dizzy spells
WinnieThePoo
in
Cure Parkinson's
5 years ago
Help re B12 and folate treatment please...
i am here supporting my daughter who has been struggling with low B12 and folate for about 18 months. She was, before diagnosis, very poorly and ended up in hospital age 17 years. Her B12 levels were about 180 and her folate about 1.8. Despite this she was not treated for the condition until we moved
i am here supporting my daughter who has been struggling with low B12 and folate for about 18 months. She was, before diagnosis, very poorly and ended up in hospital age 17 years. Her B12 levels were about 180 and her folate about 1.8. Despite this she was not treated for the condition until we moved
hhelen
in
Pernicious Anaemia Society
5 years ago
Persistent penis bumps
Hello, I was with a woman for 6 months. So, naturally unprotected sex ensued. 8 Mo after having sex (she was nuts and I decided my hand was safer for a while) I developed these bumps. I treat with acv (Apple cider vinegar) and they form deep trenches in the side of my Wang. So, I let it heal (treating
Hello, I was with a woman for 6 months. So, naturally unprotected sex ensued. 8 Mo after having sex (she was nuts and I decided my hand was safer for a while) I developed these bumps. I treat with acv (Apple cider vinegar) and they form deep trenches in the side of my Wang. So, I let it heal (treating
Somedude3000
in
BASHH
5 years ago
Confused with my Intrinsic Factor Antibody test results
Hi lovely members! I was told that my B12 was normal, and my Intrinsic Factor antibodies were normal. So I was relieved. But reading into the results, I am less confident in their opinion. In short my antibody level is 1.9 u/mL. Is this just "unit per mililitre"? I have read that anything above 1.53
Hi lovely members! I was told that my B12 was normal, and my Intrinsic Factor antibodies were normal. So I was relieved. But reading into the results, I am less confident in their opinion. In short my antibody level is 1.9 u/mL. Is this just "unit per mililitre"? I have read that anything above 1.53
emvj
in
Pernicious Anaemia Society
5 years ago
Blood test results needing help with please......
So as an update I had hemithyroidectomy 12th October, really struggled to feel myself since. I have had symptoms for 2 years when we decovered I had a lump on left side of thyroid. Confirmed after operation as multinoduler goitre. I have already been for blood after my operation as was feeling so poorly
So as an update I had hemithyroidectomy 12th October, really struggled to feel myself since. I have had symptoms for 2 years when we decovered I had a lump on left side of thyroid. Confirmed after operation as multinoduler goitre. I have already been for blood after my operation as was feeling so poorly
Df92rt
in
Thyroid UK
5 years ago
Do the oral B12 sprays definitely work for patients with positive anti-body for intrinsic factor?
Hi All Super quick question to see if anyone has been using the B12 oral spray's and its resulted in absorption and health/symptom benefits? I am definitely not planning to switch from the injections but if its an effective way to supplement then I will happily stock up. Thanks in advance.
Hi All Super quick question to see if anyone has been using the B12 oral spray's and its resulted in absorption and health/symptom benefits? I am definitely not planning to switch from the injections but if its an effective way to supplement then I will happily stock up. Thanks in advance.
Katyluisa
in
Pernicious Anaemia Society
5 years ago
No PA or B12 deficiency but I am still going to supplement with oral B12 - should i get any other tests before this to rule out for sure?
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
GoingthruTreacle
in
Pernicious Anaemia Society
5 years ago
My Tips
1) I am consistent with her treatment. Always on top of her to make sure she has taken the medicine. She is on an ace inhibitor to help protect the kidneys and minimize spilling of protein. We check urine daily and weight every couple of days. Also try to stay under 1500mg of sodium a day. 2) Get
1) I am consistent with her treatment. Always on top of her to make sure she has taken the medicine. She is on an ace inhibitor to help protect the kidneys and minimize spilling of protein. We check urine daily and weight every couple of days. Also try to stay under 1500mg of sodium a day. 2) Get
Pinky4
in
Parents of Children with Kidney Disease
5 years ago
Follow up from Dr Hughes appointment
Well I must say I had a very successful appointment yesterday with Rod Hughes. A long way to travel from Edinburgh but well worth it. Summarised my symptoms to date and he explained in comprehensible language where he thinks I am at and suggested a plan for me to hopefully move forward. He noted my regularly
Well I must say I had a very successful appointment yesterday with Rod Hughes. A long way to travel from Edinburgh but well worth it. Summarised my symptoms to date and he explained in comprehensible language where he thinks I am at and suggested a plan for me to hopefully move forward. He noted my regularly
Lochy
in
PMRGCAuk
5 years ago
Blood Pressure and Kidney Disease
My blood pressure has been hovering 130/80 to 140/95, in last five weeks. My most recent blood work: eGFR = 106, electrolytes well-balanced. My most recent urine check: 0.3g/L Proteinuria, no Hematuria, no Sediments. Is this renal hypertension? I need help, a little scared. How can I drop my BP without
My blood pressure has been hovering 130/80 to 140/95, in last five weeks. My most recent blood work: eGFR = 106, electrolytes well-balanced. My most recent urine check: 0.3g/L Proteinuria, no Hematuria, no Sediments. Is this renal hypertension? I need help, a little scared. How can I drop my BP without
SamuelChin
in
Early CKD Support
6 years ago
Blood test results and some folate advice needed!
Hello! I've got some blood test results and I'm hoping you guys can make some suggestions on the direction I should be looking to go in now. I'm currently taking 100mcg and 75mcg Levothyroxine on alternate days. I take 20,000 D3 once a week, magnesium oil every night and for the last month have been
Hello! I've got some blood test results and I'm hoping you guys can make some suggestions on the direction I should be looking to go in now. I'm currently taking 100mcg and 75mcg Levothyroxine on alternate days. I take 20,000 D3 once a week, magnesium oil every night and for the last month have been
Sick-and-Tired
in
Thyroid UK
5 years ago
ACE inhibitors are linked to increased lung cancer risk, study finds
From British Medical Journal https://www.bmj.com/content/363/bmj.k4471
From British Medical Journal https://www.bmj.com/content/363/bmj.k4471
seasider18
in
High Blood Pressure Support
6 years ago
Severe Calf Pain after loading B12
Hi I'm new here (posting) reading for months. Back in June I was tested for B12 due to extreme fatigue and tiredness. Results were as follows. B12 : 90 ng/L Folate: 3.6 ng/L Ferritin: 112 ng/L Intrinsic factor: negative I was put on loading doses of b12 injections and have had
Hi I'm new here (posting) reading for months. Back in June I was tested for B12 due to extreme fatigue and tiredness. Results were as follows. B12 : 90 ng/L Folate: 3.6 ng/L Ferritin: 112 ng/L Intrinsic factor: negative I was put on loading doses of b12 injections and have had
dda123
in
Pernicious Anaemia Society
5 years ago
Does low b12 mean I have Pernicious Anemia ?
Hi everyone, I visited my GP after suffering for along time with symptoms of constant Nausea , fatigue , swollen fingers and weight loss (10lb in 6 weeks) I had put all this down to IBS / Psoriasis but after a blood test was told my b12 was 154 even though I have a good diet and have taken b12 in
Hi everyone, I visited my GP after suffering for along time with symptoms of constant Nausea , fatigue , swollen fingers and weight loss (10lb in 6 weeks) I had put all this down to IBS / Psoriasis but after a blood test was told my b12 was 154 even though I have a good diet and have taken b12 in
Angelic82
in
Pernicious Anaemia Society
5 years ago
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