On reading posts it seems to be common that doctors don't give us reasons for B12 defiency. I understand about absorption problems.
I've been told I've not got megoblastic aneamia Hb 13 folate 9 ferriton level 60.
No antibody to intrinsic factor . Thyroid ok. Not got celilac disease. When I asked for more frequent injections I was refused on the above grounds. As in the NICE guidelines . I'm confused though as the test is only 50% accurate. It was the neurologist that stated I am to have 2 monthly injections. So how apart from the few who have antibodies how do you know why they are B12 defient or indeed have pernicious aneamia?
Also is it safe to take a multi vitamin with iron in if you don't think you need the iron?
Thanks if you can help with this confusion
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Nackapan
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Hi Nackapan.. Been reading your posts and I am so sorry to read of your problems just wish I could help you. Someone more experienced and knowledgeable will be along soon I'm sure and I hope you get answers and the treatment you need. j x
3) Antibody Negative Pernicious Anaemia is mentioned in the book "What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper. I gave a copy of this to my GPs.
If you are a PAS member, you could ring and ask them about Antibody Negative Pernicious Anaemia.
Okay thanks. I did go back to the gp to ask for another injection. He convinced me I dud not need it as there was plenty in my body already. Also as I reacted badly to the injection to wait. So hard getting an appointment too
Oh Nackapan I am so concerned for you but this B12/PA business is so confusing for me so I'm not much help.
Isn't the fact your B12 is 'normal' because you had injections and it is just serum B12 NHS tests?
Can't your GP see how unwell you are and something certainly isn't right?
Surely others will be along with better info. I understand you aren't comfortable with self injecting - but I'm sure someone posted about an almost automatic process injection system - a press and click thing that took away all the worry about SI ?
With all the Bank Holidays causing difficulties with medical care coming up you need support.
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