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Factor Xa inhibitor
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B9 Folic acid
Hi All From reading blogs on the site, I understand that b12, b9 and iron have to be in balance with intrinsic factor to enable b12 to be absorbed in the ileum. If this is the case, why, on the NHS site does it have a list of symptoms for b9 deficiency that differ from those for b12? Wouldn’t b12 deficiency
Hi All From reading blogs on the site, I understand that b12, b9 and iron have to be in balance with intrinsic factor to enable b12 to be absorbed in the ileum. If this is the case, why, on the NHS site does it have a list of symptoms for b9 deficiency that differ from those for b12? Wouldn’t b12 deficiency
Alfabeta
in
Pernicious Anaemia Society
5 years ago
Confused! Do i have a real b12 deficiancy?
Hi all, Im new here and just looking for some advice please. Back last October I went for some bloods as I was feeling out of sorts and was pregnant at the time. The results showed that i had low levels of b12 and iron. I was prescribed iron tablets and had to have 6 loading injections of B12 to begin
Hi all, Im new here and just looking for some advice please. Back last October I went for some bloods as I was feeling out of sorts and was pregnant at the time. The results showed that i had low levels of b12 and iron. I was prescribed iron tablets and had to have 6 loading injections of B12 to begin
Aly2
in
Pernicious Anaemia Society
5 years ago
GP questioning why serum b12 above range if body gets rid of excess b12.
Went to gp yesterday with my daughter to have her 12 weekly jab. Her last blood test ( meant to be checking ferritin but did b12 even though she’d emailed saying not to check it). Showed b12> 1500 - this test was 2 wks after an injection at the gps (but she SI anyway which they don’t know as would
Went to gp yesterday with my daughter to have her 12 weekly jab. Her last blood test ( meant to be checking ferritin but did b12 even though she’d emailed saying not to check it). Showed b12> 1500 - this test was 2 wks after an injection at the gps (but she SI anyway which they don’t know as would
Vicky2822
in
Pernicious Anaemia Society
5 years ago
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Feel like the life is slowly being sucked out of me, and I’m treading in quick sand! Please help!?
Hi, I know I only posted my results recently, but when I saw the GP, it was a different one than last time, as the original didn’t have any appointments and I needed to see someone sooner for another reason. The upshot of my consult was that I ended up in tears begging to be treated as an individual
Hi, I know I only posted my results recently, but when I saw the GP, it was a different one than last time, as the original didn’t have any appointments and I needed to see someone sooner for another reason. The upshot of my consult was that I ended up in tears begging to be treated as an individual
LuluCops
in
Thyroid UK
5 years ago
Has anyone had their diagnosis taken away?
I have just made another post about my reduced mobility so apologies for that. I was diagnosed with SLE in January 2018. In the time from diagnosis until now I have had the following antibodies: ANA, dsDNA, Mi2b, Ro52, Rheumatoid Factor and anti-cardiolipin. For some reason UCTD was the diagnosis put
I have just made another post about my reduced mobility so apologies for that. I was diagnosed with SLE in January 2018. In the time from diagnosis until now I have had the following antibodies: ANA, dsDNA, Mi2b, Ro52, Rheumatoid Factor and anti-cardiolipin. For some reason UCTD was the diagnosis put
eescvc
in
LUPUS UK
5 years ago
Understanding the Role of Polyautoimmunity in Rheumatic Diseases
Understanding the Role of Polyautoimmunity in Rheumatic Diseases Linda Peckel July 16, 2019 An estimated 5 percent of the world’s population is diagnosed with one of a group of heterogeneous autoimmune rheumatic diseases (ARDs) including systemic lupus erythematosus (SLE), rheumatoid arthritis (RA)
Understanding the Role of Polyautoimmunity in Rheumatic Diseases Linda Peckel July 16, 2019 An estimated 5 percent of the world’s population is diagnosed with one of a group of heterogeneous autoimmune rheumatic diseases (ARDs) including systemic lupus erythematosus (SLE), rheumatoid arthritis (RA)
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
State of the art testing for PA?
I've been pursuing PA as a possible explanation for my numerous long term health issues, beginning injections on 6/3. As many here report, results have been mixed; apparent initial improvement followed by some issues worsening. I understand the mechanism of PA is presence of an antibody against Intrinsic
I've been pursuing PA as a possible explanation for my numerous long term health issues, beginning injections on 6/3. As many here report, results have been mixed; apparent initial improvement followed by some issues worsening. I understand the mechanism of PA is presence of an antibody against Intrinsic
SouthSounder
in
Pernicious Anaemia Society
5 years ago
Thyroid blood tests
I had my thyroid removed 3 years ago but have never managed to have satisfactory results since and it was found I needed T3 which I was given but taken off last September because it costs too much. I had tests which proved I needed it and was given it back in April. I have consistently had a suppressed
I had my thyroid removed 3 years ago but have never managed to have satisfactory results since and it was found I needed T3 which I was given but taken off last September because it costs too much. I had tests which proved I needed it and was given it back in April. I have consistently had a suppressed
Baggieswidow
in
Thyroid UK
5 years ago
My results for Hashimotos- would I benefit from NDT over Levo?
My results for Hashimotos- would i benefit from NDT over Levo? Note this would be my first ever thyroid replacement hormone.
THYROID STIMULATING HORMONE
* 16.30 mIU/L 0.27 - 4.2
FREE THYROXINE
* 10.6 pmol/l 12.0 - 22.0
25 OH Vitamin D
* 44 nmol/L 50 - 200 [i]Interpretation
My results for Hashimotos- would i benefit from NDT over Levo? Note this would be my first ever thyroid replacement hormone.
THYROID STIMULATING HORMONE
* 16.30 mIU/L 0.27 - 4.2
FREE THYROXINE
* 10.6 pmol/l 12.0 - 22.0
25 OH Vitamin D
* 44 nmol/L 50 - 200 [i]Interpretation
HashiDaz
in
Thyroid UK
5 years ago
Diagnosis of B12d or PA ?
How is a diagnosis achieved does it have to include Intrinsic factor antibodies test to be positive?
How is a diagnosis achieved does it have to include Intrinsic factor antibodies test to be positive?
Damseltree
in
Pernicious Anaemia Society
5 years ago
PA and Epilepsy and intrinsic factor
I have had Epilepsy for over 40 years, I was pretty much controlled, then I started falling over indoors, ok I'm used to that, but this was no fit, I thought it was my balance, after a couple of blood tests, I was told I had PA, one of the doctors in the practice, not my Dr, she wouldn't bother, she
I have had Epilepsy for over 40 years, I was pretty much controlled, then I started falling over indoors, ok I'm used to that, but this was no fit, I thought it was my balance, after a couple of blood tests, I was told I had PA, one of the doctors in the practice, not my Dr, she wouldn't bother, she
music501
in
Pernicious Anaemia Society
5 years ago
Question regarding Injections.
Hello Everyone, I am having heart palpitations and loose stools for the last few months. Had 3 ECGS and couple blood test but everything is fine. Requested my GP to check my b12 levels which were low for couple of years (around 170 to 205 ng/L each year). The results came today and my b12 level is
Hello Everyone, I am having heart palpitations and loose stools for the last few months. Had 3 ECGS and couple blood test but everything is fine. Requested my GP to check my b12 levels which were low for couple of years (around 170 to 205 ng/L each year). The results came today and my b12 level is
ShaneWarne
in
Pernicious Anaemia Society
5 years ago
Overdue
Hi I am overdue with my first baby by five days. I was recommended this Castor oil! The only place they sell is Holland and Barrett but on the back it says do not drink , so I’m not sure if it’s the correct one or not I have attached a picture. Hot curry I had for tea last night did not work any advice
Hi I am overdue with my first baby by five days. I was recommended this Castor oil! The only place they sell is Holland and Barrett but on the back it says do not drink , so I’m not sure if it’s the correct one or not I have attached a picture. Hot curry I had for tea last night did not work any advice
Emma200
in
Pregnancy and Parenting Support
5 years ago
confused but mostly about intrinsic factor antibodies.
I am a little confused about intrinsic factor antibodies. How do they test for these? when I was diagnosed with b12 def they did not find antibodies. can they look for them now?
I am a little confused about intrinsic factor antibodies. How do they test for these? when I was diagnosed with b12 def they did not find antibodies. can they look for them now?
lesbud1
in
Pernicious Anaemia Society
5 years ago
Sebaceous cysts? Anyone know how to shrink them?
I removed a cyst on my head when I was a child and it simply grew back within one year. I find them so difficult to get rid of and I'm not sure how to; I can't keep having surgery. Does anyone know how to get rid of them naturally? I've tried castor oil and aloe vera with no success.
I removed a cyst on my head when I was a child and it simply grew back within one year. I find them so difficult to get rid of and I'm not sure how to; I can't keep having surgery. Does anyone know how to get rid of them naturally? I've tried castor oil and aloe vera with no success.
Wewillgetbetter
in
Pelvic Pain Support Network
5 years ago
Slightly prominent temporal artery, do I have PMR/GCA?
Hello, I was wondering if anyone can give me answers and reassure me. I have health anxiety and it is worrying me so much. I'm 20 yrs old, and back in Feburary this year after having an "anxiety attack", I noticed a slightly bulging vein on the top right side of my forehead which goes to my temple. I
Hello, I was wondering if anyone can give me answers and reassure me. I have health anxiety and it is worrying me so much. I'm 20 yrs old, and back in Feburary this year after having an "anxiety attack", I noticed a slightly bulging vein on the top right side of my forehead which goes to my temple. I
borahae
in
PMRGCAuk
5 years ago
New GP seen today
Well I had my appointment with my new GP this morning and she said they had been told that they needed to put patients on oral b12 if they could absorb it from the gut. I took all the paper work and asked if she could read these BJH, NICE, PAS information sometime and that they stated about the intrinsic
Well I had my appointment with my new GP this morning and she said they had been told that they needed to put patients on oral b12 if they could absorb it from the gut. I took all the paper work and asked if she could read these BJH, NICE, PAS information sometime and that they stated about the intrinsic
lesbud1
in
Pernicious Anaemia Society
5 years ago
New GP suggesting I don't meet criteria for B12 injections
I have just moved and my new GP tells me that I do not meet the criteria for b12 injections even though I have had them for over 9yrs every 2 months as I had neuro problems. She said as I did not have intrinsic factor I did not meet the criteria for injections. I had numerous symptoms for many years
I have just moved and my new GP tells me that I do not meet the criteria for b12 injections even though I have had them for over 9yrs every 2 months as I had neuro problems. She said as I did not have intrinsic factor I did not meet the criteria for injections. I had numerous symptoms for many years
lesbud1
in
Pernicious Anaemia Society
5 years ago
Further update - GP agreed to give me injections!
Hi everyone! Hope you don't mind my continual posting I hope that my experience might help others who also come searching! I managed to get a face to face with the GP from last week and my mum wanted to come to as back up. She initially repeated that I didn't have it and that she could say "categorically
Hi everyone! Hope you don't mind my continual posting I hope that my experience might help others who also come searching! I managed to get a face to face with the GP from last week and my mum wanted to come to as back up. She initially repeated that I didn't have it and that she could say "categorically
liaratsoni
in
Pernicious Anaemia Society
5 years ago
Doctors refusing to listen
Hi everyone, I made a post recently about my issues and waiting for my intrinsic factor test to come back and thought I would make the updated info into a new post. The intrinsic factor test came back negative (0) and I have now spoken to two doctors over the phone and my hematologist who say I don't
Hi everyone, I made a post recently about my issues and waiting for my intrinsic factor test to come back and thought I would make the updated info into a new post. The intrinsic factor test came back negative (0) and I have now spoken to two doctors over the phone and my hematologist who say I don't
liaratsoni
in
Pernicious Anaemia Society
5 years ago
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