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What is classed as a flare?
Hi, I was diagnosed in November, had a steroid injection and started on MTX, once the steroid started wearing off the pain and swelling in my knees returned straight away but not in my hands, they have been great. Had a load of fluid sucked out of my knee and another steroid injection about 6 weeks ago
Hi, I was diagnosed in November, had a steroid injection and started on MTX, once the steroid started wearing off the pain and swelling in my knees returned straight away but not in my hands, they have been great. Had a load of fluid sucked out of my knee and another steroid injection about 6 weeks ago
Cat-E
in
NRAS
4 months ago
New results…
Hi everyone, just a bit of background info: These are my NHS test results from Nov 2023: t4 13.8 (7-17) tsh 0.10 (0.20 - 4.50) although the TSH came back slightly under range at that time, thankfully the GP said “no action” so I have carried on with 75mcg (have been having my usual brands - no
Hi everyone, just a bit of background info: These are my NHS test results from Nov 2023: t4 13.8 (7-17) tsh 0.10 (0.20 - 4.50) although the TSH came back slightly under range at that time, thankfully the GP said “no action” so I have carried on with 75mcg (have been having my usual brands - no
JoJoloveschocolate
in
Thyroid UK
4 months ago
Side effects?
Good Afternoon, I just wanted to ask if anyone else who has been on Dienogest or is on Dienogest has had bleeding in between their menstrual cycles as well? I know it’s in the patient information leaflet but I was slightly startled when I saw significant bleeding yesterday that was accompanied by agonising
Good Afternoon, I just wanted to ask if anyone else who has been on Dienogest or is on Dienogest has had bleeding in between their menstrual cycles as well? I know it’s in the patient information leaflet but I was slightly startled when I saw significant bleeding yesterday that was accompanied by agonising
Vee2508
in
Endometriosis UK
4 months ago
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GP visit!
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
Chickens44
in
Pernicious Anaemia Society
4 months ago
Could BAT be our last chance?
My husband (on Lupron, castration resistant and tried every treatment) checked into the hospital 10 days ago for intense bone pain that requires heavy morphine. He has weakened bone marrow with low platelets and low red blood cells. He's getting palliative radiation for pain in a few places. Can't walk
My husband (on Lupron, castration resistant and tried every treatment) checked into the hospital 10 days ago for intense bone pain that requires heavy morphine. He has weakened bone marrow with low platelets and low red blood cells. He's getting palliative radiation for pain in a few places. Can't walk
Chris_Ali
in
Advanced Prostate Cancer
4 months ago
Leg pain.
My balance isn't very good. But the pain in my left leg is really bad. Keeps me awake at night, and hinders me during the day. Leg hurts all around at hip level, my knee seems to be swollen and the leg swells by the night. have had bone scan but still waiting for results. ( 4. To 5 months.now. ) Taking
My balance isn't very good. But the pain in my left leg is really bad. Keeps me awake at night, and hinders me during the day. Leg hurts all around at hip level, my knee seems to be swollen and the leg swells by the night. have had bone scan but still waiting for results. ( 4. To 5 months.now. ) Taking
mag123ben
in
MPN Voice
4 months ago
Moving the right way
Ralph was good this morning, not out of bed because he'd already had some work done, they changed the tracheotomy tube for a smaller one. Drs did their rounds and are going to tell SALT to not do the other tube through the nose and shock as they think in a few days it may not be necessary. His secretions
Ralph was good this morning, not out of bed because he'd already had some work done, they changed the tracheotomy tube for a smaller one. Drs did their rounds and are going to tell SALT to not do the other tube through the nose and shock as they think in a few days it may not be necessary. His secretions
Hidden
in
British Heart Foundation
4 months ago
Gabapentin and pain meds which one to go for?
I'm taking gabapentin 900 all day for periodic limb movement disorder however I have a very painful arthritic shoulder and torn rotator cuff. The Dr has tried me on codeine but it made me very ill. Does anyone know what pain medication can be taken with gabapentin (I've tried paracetamol, co-codamol,
I'm taking gabapentin 900 all day for periodic limb movement disorder however I have a very painful arthritic shoulder and torn rotator cuff. The Dr has tried me on codeine but it made me very ill. Does anyone know what pain medication can be taken with gabapentin (I've tried paracetamol, co-codamol,
Speedbuggy
in
Restless Legs Syndrome
4 months ago
Anti thyroglobulin Antibody High
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
TOTTY1
in
Thyroid UK
4 months ago
ablation
Hello, my husband suffers with AF and after 3 failed cardioversions last year, he had an ablation yesterday though the chest. He was in theatre for a few hours and he is still in absolute agony in his chest, shoulders and back and can not move. Hes in hospital and they’re giving him painkillers, but
Hello, my husband suffers with AF and after 3 failed cardioversions last year, he had an ablation yesterday though the chest. He was in theatre for a few hours and he is still in absolute agony in his chest, shoulders and back and can not move. Hes in hospital and they’re giving him painkillers, but
Bexmm
in
British Heart Foundation
4 months ago
Not sure what to do....
Advice, personal experiences, and comments most welcome.... Apologies for the long post, but it covers my story so far to provide context. So.... probably the same story as many of you here: I have probably had endo for a very very long time, frequent visits to doctors re bleeding and pain etc. to be
Advice, personal experiences, and comments most welcome.... Apologies for the long post, but it covers my story so far to provide context. So.... probably the same story as many of you here: I have probably had endo for a very very long time, frequent visits to doctors re bleeding and pain etc. to be
fed_up_of_endo
in
Endometriosis UK
4 months ago
Diagnosed with new non-invasive procedure: Relieved but I feel emotional
I have now been formally diagnosed- I scored 0.90008 out of 1 on my test which means I have a very high After many Gp visits, countless prescriptions of high painkillers, doctors saying it is period pain (no 💩) and my referral pushed for key hole …. I finally have an answer and closer to some physical
I have now been formally diagnosed- I scored 0.90008 out of 1 on my test which means I have a very high After many Gp visits, countless prescriptions of high painkillers, doctors saying it is period pain (no 💩) and my referral pushed for key hole …. I finally have an answer and closer to some physical
Butterfly0509
in
Endometriosis UK
5 months ago
SOS From Across The Pond
How does this read? I'm reaching out on a couple of message boards where old folks suffer with advanced osteoporosis: "I'm in bad shape, can’t stand erect, in pain all the time, compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3
How does this read? I'm reaching out on a couple of message boards where old folks suffer with advanced osteoporosis: "I'm in bad shape, can’t stand erect, in pain all the time, compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3
Lisannn
in
Bone Health and Osteoporosis UK
5 months ago
SOS for advice please
In in bad shape can’t stand erect pain all the time compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3 Kyphoplasty’s but have refused any of the pharmaceutical treatments prescribed for bone density issues; tried and can’t/don’t
In in bad shape can’t stand erect pain all the time compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3 Kyphoplasty’s but have refused any of the pharmaceutical treatments prescribed for bone density issues; tried and can’t/don’t
Lisannn
in
Osteoporosis Support
5 months ago
How to cope
I need to know why doctors are so afraid to prescribe effective pain medication to patients with no history of drug abuse when the patients pain is interfering with daily living needs such as bathing.
I need to know why doctors are so afraid to prescribe effective pain medication to patients with no history of drug abuse when the patients pain is interfering with daily living needs such as bathing.
Downinil
in
Pain Concern
5 months ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
5 months ago
Am I right to suspect endometriosis and ask to see a private specialist?
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
pinkie25
in
Endometriosis UK
5 months ago
Why don’t my Family understand what Fibro does to me?
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Tisme72
in
Fibromyalgia Action UK
5 months ago
Pain Relief that isn’t opiate based. Help!
My stage 4 HGOC with mets on bowel (miliary disease) among other places and has now become painful. I was given morphine but it put me into bowel obstruction so I am now too scared to have any opiate based painkillers. Has anyone found any other pain relief that works and doesn’t slow the bowel?
My stage 4 HGOC with mets on bowel (miliary disease) among other places and has now become painful. I was given morphine but it put me into bowel obstruction so I am now too scared to have any opiate based painkillers. Has anyone found any other pain relief that works and doesn’t slow the bowel?
Littlefluffycloud
in
My Ovacome
5 months ago
Advice please
Hello, I am new to the group and have joined PMRGCAuk recently. I have learnt so much from the group and am so glad I found you. I started with awful symptoms in early February 2022 and was treated as arthritis and given strong painkillers as the headaches I was suffering with were horrendous. After
Hello, I am new to the group and have joined PMRGCAuk recently. I have learnt so much from the group and am so glad I found you. I started with awful symptoms in early February 2022 and was treated as arthritis and given strong painkillers as the headaches I was suffering with were horrendous. After
Golfers1
in
PMRGCAuk
5 months ago
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