Search
Search
About
Log in
Join
Experiences with
Eye pain
Posts
Communities
16,582 public posts
Filter results
NEWBIE
I have chronic myeloproliferative disease - between ET & prefibrotic myelofibrosis, on HU 500mg per day and 1000mg on Sundays, plus 75mg Aspirin. This is of course on top of all my usual pain medication. I was undiagnosed for 5years until this year in May, my high platelet levels were picked up by chance
I have chronic myeloproliferative disease - between ET & prefibrotic myelofibrosis, on HU 500mg per day and 1000mg on Sundays, plus 75mg Aspirin. This is of course on top of all my usual pain medication. I was undiagnosed for 5years until this year in May, my high platelet levels were picked up by chance
JOL13
in
MPN Voice
10 months ago
💥coping with chronic pain and fatigue💥
💥hi everyone! I’ve recently been diagnosed with fibro and I’m looking for ways to cope with the pain and fatigue. Does anyone have any advice they could offer me please? Anything from your experiences with medication and assistive devices, to the things you do to make daily living a bit more comfortable
💥hi everyone! I’ve recently been diagnosed with fibro and I’m looking for ways to cope with the pain and fatigue. Does anyone have any advice they could offer me please? Anything from your experiences with medication and assistive devices, to the things you do to make daily living a bit more comfortable
RatArt
in
Fibromyalgia Action UK
10 months ago
Gallstones
Hello again 👋 Well I didn't expect this! I'm just out of A&E after a gallstone attack. Excruciating, until the morphine kicked in. I've been given strong painkillers and antibiotics. I'm a bit miffed, as I've been following a Low Fodmap, anti- inflammatory, pescatarian diet for as long as I can remember
Hello again 👋 Well I didn't expect this! I'm just out of A&E after a gallstone attack. Excruciating, until the morphine kicked in. I've been given strong painkillers and antibiotics. I'm a bit miffed, as I've been following a Low Fodmap, anti- inflammatory, pescatarian diet for as long as I can remember
Caffeinefreezone
in
Thyroid UK
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Joint pain
Hi everyone I've been suffering with really bad joint pain I fill stiff and she all over is this normall with pbc if so wot pain killers can I take kind regards
Hi everyone I've been suffering with really bad joint pain I fill stiff and she all over is this normall with pbc if so wot pain killers can I take kind regards
Purdy2017
in
PBC Foundation
10 months ago
Painkiller advice for Anagrelide headaches.
Started Anagralide 7 days ago, & took horrendous headache today. Took Solpadeine Max, & this helped, but only to be used for 3 days, & are expensive. Can my GP give me strong painkillers, or should I jut stick with Solpadeine? Would Paracetamol maybe help? Again thank you for any response.
Started Anagralide 7 days ago, & took horrendous headache today. Took Solpadeine Max, & this helped, but only to be used for 3 days, & are expensive. Can my GP give me strong painkillers, or should I jut stick with Solpadeine? Would Paracetamol maybe help? Again thank you for any response.
Didgeridoo2
in
MPN Voice
10 months ago
sjogrens
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Samanthaann
in
PBC Foundation
11 months ago
visual disturbances and eye problems
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Loobyloo1966
in
Functional Neurological Disorder - FND Hope
11 months ago
visual snow and fibromyalgia
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
Loobyloo1966
in
Fibromyalgia Action UK
11 months ago
Waiting for an appointment
Hi everyone, Just a little rant at the useless NHS again, I have been waiting for 3 years to be seen at the pain management clinic at my local hospital. I have contacted my doctor umpteen times and finally he got me an appointment, YIPPEE! I thought, it was short lived though. It turns out that the
Hi everyone, Just a little rant at the useless NHS again, I have been waiting for 3 years to be seen at the pain management clinic at my local hospital. I have contacted my doctor umpteen times and finally he got me an appointment, YIPPEE! I thought, it was short lived though. It turns out that the
Imagine1
in
Pain Concern
10 months ago
First Post
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
10 months ago
Anti inflammatory pain killer
I am looking for recommendations for tolerable pain relief for hip bursitis please? So far I have only tried buprenorohine patches that did not help and turned me into a zombie overnight …couldn't stay awake and severe nausea ! Any experiences to share please I have atrophic gastritis ? thanks
I am looking for recommendations for tolerable pain relief for hip bursitis please? So far I have only tried buprenorohine patches that did not help and turned me into a zombie overnight …couldn't stay awake and severe nausea ! Any experiences to share please I have atrophic gastritis ? thanks
davina70
in
Pernicious Anaemia Society
10 months ago
pain relief for rotator cuff injury
I am seeking honest answers regarding treatment for severe pain. My PBC is “evolving “. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
I am seeking honest answers regarding treatment for severe pain. My PBC is “evolving “. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
Donti
in
PBC Foundation
10 months ago
Tapering - have I got it wrong?
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
EnyaBlue
in
PMRGCAuk
11 months ago
To Give Hope
n 2018 I could hardly walk, or get out of the bath without help, I did try a few drugs until finding the right one that worked, that being hydroxychloroquine don;t get me wrong I do have bad days but I have learnt to give in to it and rest,take pain killers,and that the flare will pass, I thought back
n 2018 I could hardly walk, or get out of the bath without help, I did try a few drugs until finding the right one that worked, that being hydroxychloroquine don;t get me wrong I do have bad days but I have learnt to give in to it and rest,take pain killers,and that the flare will pass, I thought back
VeronicaF
in
NRAS
10 months ago
Minor Calf Strains (Pulled Calf)
As many know by now, I've been firmly placed onto the injury couch again, so my next posts will not be about running, or walking, rowing, dancing, stretching, weightlifting 😩 but …. yes … recovery and rehabilitation. I’ll share my journey to hold myself to account, but also in case it helps anyone
As many know by now, I've been firmly placed onto the injury couch again, so my next posts will not be about running, or walking, rowing, dancing, stretching, weightlifting 😩 but …. yes … recovery and rehabilitation. I’ll share my journey to hold myself to account, but also in case it helps anyone
CBDB
Administrator
in
Strength & Flex
10 months ago
First Period after lap
Hello everyone. I had my laparoscopy for stage 4 endo 2 weeks ago and unexpectedly now have my period which is alot more painful than I ever imagined it would be. Has anyone experienced a more painful period after surgery? It’s worse than when I had endo! Has anyone also been on Ryeqo? If so, how
Hello everyone. I had my laparoscopy for stage 4 endo 2 weeks ago and unexpectedly now have my period which is alot more painful than I ever imagined it would be. Has anyone experienced a more painful period after surgery? It’s worse than when I had endo! Has anyone also been on Ryeqo? If so, how
lizh87
in
Endometriosis UK
10 months ago
Broken Shoulder
Hi, everyone. My 73 year old husband had a nasty fall playing walking football on Monday morning. It turned out that he broke his shoulder badly and most of his arm came out in a massive bruise. I took him straight to casualty hoping to get seen straight away because his shoulder didn't look right and
Hi, everyone. My 73 year old husband had a nasty fall playing walking football on Monday morning. It turned out that he broke his shoulder badly and most of his arm came out in a massive bruise. I took him straight to casualty hoping to get seen straight away because his shoulder didn't look right and
Imagine1
in
Pain Concern
10 months ago
Check your Thyroid
For about a year I’ve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
For about a year I’ve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
Readlots
in
British Liver Trust
10 months ago
What's your experience of coming of steroids
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
Autolupus
in
LUPUS UK
11 months ago
brain fog!
hi there, last year I had a closed angle glaucoma. I had little warning, thr blood pressure in my right eye suddenly shot up to 80 and I was temporarily blind in that eye. I had a week’s stay in hospital and an operation to bring the pressure down. It is amazing that I have retained quite a bit of
hi there, last year I had a closed angle glaucoma. I had little warning, thr blood pressure in my right eye suddenly shot up to 80 and I was temporarily blind in that eye. I had a week’s stay in hospital and an operation to bring the pressure down. It is amazing that I have retained quite a bit of
Belladoodle
in
Glaucoma UK
11 months ago
1
...
40
41
42
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
2485 results
NRAS
1179 results
Fibromyalgia Action UK
1161 results
View top 10 communities
Sort by
Most Relevant
Newest