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Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
2 months ago
Recommendations for a rheumatologist in Merseyside area please.
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
Pennypip
in
PMRGCAuk
6 months ago
clinical trial for gene therapy
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
Slattery
in
Macular Society
1 year ago
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I'm back....!
Bricking it now....thoracoscopy due on Thursday morning and I'm terrified....has anyone here had it done? I just hate pain of any sort even though I know I'll have sedation - Fentanyl and Midazolam -I'm still really, really panicking....šš
Bricking it now....thoracoscopy due on Thursday morning and I'm terrified....has anyone here had it done? I just hate pain of any sort even though I know I'll have sedation - Fentanyl and Midazolam -I'm still really, really panicking....šš
sue32
in
Lung Conditions Community Forum
6 months ago
Problems following microsuction
Hi everyone. After many issues with my ears over the years including tinnitus I finally got my appointment for the ENT and went in last week. I had a hearing test and it shows some hearing loss in both ears and alsoa pressure test that showed the pressure wasn't right in both ears as well, all the doctor
Hi everyone. After many issues with my ears over the years including tinnitus I finally got my appointment for the ENT and went in last week. I had a hearing test and it shows some hearing loss in both ears and alsoa pressure test that showed the pressure wasn't right in both ears as well, all the doctor
andy614
in
Tinnitus UK
6 months ago
In the words of Columbo - "just one more thingā¦ā
I've been diagnosed with fibromyalgia for only the last 15 months. Although battling chronic fatigue, muscle spasms, painful joints, sporadic pain from head to toe (comes & goes), constant nausea, lack of concentration, brain fog, etc. Has been going on for years In addition 2020 saw me in
I've been diagnosed with fibromyalgia for only the last 15 months. Although battling chronic fatigue, muscle spasms, painful joints, sporadic pain from head to toe (comes & goes), constant nausea, lack of concentration, brain fog, etc. Has been going on for years In addition 2020 saw me in
Gulfstream_Maggie
in
Fibromyalgia Action UK
1 year ago
Dry scalp
I have recently noticed increasingly dry scalp. Can anyone recommend any shampoo/ conditioner to help? No expense (at this scale) spared. I have very fine hair, and dont want this to have further effects. I've looked at all the commercially available ones, dont have any way to judge which work and are
I have recently noticed increasingly dry scalp. Can anyone recommend any shampoo/ conditioner to help? No expense (at this scale) spared. I have very fine hair, and dont want this to have further effects. I've looked at all the commercially available ones, dont have any way to judge which work and are
cathie
in
NRAS
6 months ago
Easyhaler vs salamol
Ive been on easyhaler for years but when I picked up my last prescription they gave me salamol.I don't feel as though it's helped as I've been a bit short of breath the past few days.Also I got changed from foxtail to luforbec a few months ago.I feel as though my asthma is flaring up at the moment.Anybody
Ive been on easyhaler for years but when I picked up my last prescription they gave me salamol.I don't feel as though it's helped as I've been a bit short of breath the past few days.Also I got changed from foxtail to luforbec a few months ago.I feel as though my asthma is flaring up at the moment.Anybody
Asthma1973
in
Asthma Community Forum
6 months ago
cataract plus micro shunt
Has anybody had cataract surgery with micro surgery at same time My consultant says it only takes 2 mins longer and did it work ?
Has anybody had cataract surgery with micro surgery at same time My consultant says it only takes 2 mins longer and did it work ?
Eye2see
in
Glaucoma UK
1 year ago
Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
6 months ago
The continuing saga of the purple toe
Surprise, surprise, after having a MRI scan of my legs, an echocardiogram, an ECG and a twenty four hour heart monitor, no trace of blockages except what the consultant called a 'pinch' in a leg artery, suspected of causing a blood clot and the purple toe. But, on my last appointment with the consultant
Surprise, surprise, after having a MRI scan of my legs, an echocardiogram, an ECG and a twenty four hour heart monitor, no trace of blockages except what the consultant called a 'pinch' in a leg artery, suspected of causing a blood clot and the purple toe. But, on my last appointment with the consultant
KatyB
in
Cholesterol Support
6 months ago
Beta Alanine, okay or not okay?
Many pre workout supplements include beta Alanine. I used it in my pre PCA days because I felt it did help with the workout intensity, particularly those exercises that are short...I.e. weight lifting. Anyway, I liked the additional energy release and the slight tingly feeling when using this supplement
Many pre workout supplements include beta Alanine. I used it in my pre PCA days because I felt it did help with the workout intensity, particularly those exercises that are short...I.e. weight lifting. Anyway, I liked the additional energy release and the slight tingly feeling when using this supplement
MoonRocket
in
Advanced Prostate Cancer
6 months ago
Inulin pre-biotic - bowels/stomach restoration aid
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Danielj1
in
Thyroid UK
6 months ago
PMR/Hiatus hernia and PPIs
Iām not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
Iām not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
Lclmlbls
in
PMRGCAuk
6 months ago
Progynova and ovulation
Hey lovely ladies! I am preparing for a new FET (3day embryos), I have just started Progynova (estradiol 2mg), 3 pills a day. My dr told me that once you are on Progynova it is a controlled cycle and that ovulation is unlikely. This is how all of my previous FETs looked like - progynova for a number
Hey lovely ladies! I am preparing for a new FET (3day embryos), I have just started Progynova (estradiol 2mg), 3 pills a day. My dr told me that once you are on Progynova it is a controlled cycle and that ovulation is unlikely. This is how all of my previous FETs looked like - progynova for a number
Anita85
in
Fertility Network UK
1 year ago
Weight loss with Felodipine anyone ?
I have now been on Felodipine 2.5mg for 10 days I have reduced appetite and have lost 4 pounds. I am usually 7st 10lbs and really don't want to lose any weight at all. I have IBS and had a bad flare up with diahorrea but didn't notice any weight loss at that point. Have an appointment with GP 26th but
I have now been on Felodipine 2.5mg for 10 days I have reduced appetite and have lost 4 pounds. I am usually 7st 10lbs and really don't want to lose any weight at all. I have IBS and had a bad flare up with diahorrea but didn't notice any weight loss at that point. Have an appointment with GP 26th but
BobbyCollins
in
High Blood Pressure Support
2 months ago
Abdominal ultrasound
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Loveneige
in
Endometriosis UK
6 months ago
Angular Cheilitis?
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Haz58
in
NRAS
2 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. Iām on methotrexate and seems to be ok with no abnormal hair loss but since taking it I havenāt had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others peopleās experience. Thanks
hi I forgot to ask my rheum nurse about my hair. Iām on methotrexate and seems to be ok with no abnormal hair loss but since taking it I havenāt had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others peopleās experience. Thanks
Teddyboy17
in
NRAS
6 months ago
Bladder Cancer Update,
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
Ern007
in
Lung Conditions Community Forum
6 months ago
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