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ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
5 months ago
think I’ve found my trigger.
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
Patters56
in
Restless Legs Syndrome
11 months ago
Another update
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
Gandalf2
in
Encephalitis International
5 months ago
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Menopause and tingly feet
anyone have tingly feet on oestrogel at all?
anyone have tingly feet on oestrogel at all?
RayannAbbey
in
Anxiety and Depression Support
9 months ago
Declining psa #8
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Nfler
in
Advanced Prostate Cancer
7 months ago
Abiraterone + Olaparib: ASCO GU 2024 Highlights: BRCAAway Trial
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
Maxone73
in
Advanced Prostate Cancer
5 months ago
Testosterone
Hi everyone, I'm a long time ThyroidUK participant. Right now the thyroid replacement is good, vitamins, minerals, are all great. I'm very particular to ensure this. I use HRT (Triestrogen/progesterone) topical cream and have used since age 45 and I'm now 65. Here's the problem: in March
Hi everyone, I'm a long time ThyroidUK participant. Right now the thyroid replacement is good, vitamins, minerals, are all great. I'm very particular to ensure this. I use HRT (Triestrogen/progesterone) topical cream and have used since age 45 and I'm now 65. Here's the problem: in March
gabkad
in
Menopause and Perimenopause Support
11 months ago
T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Min invasive Aortic valve replacement:- happy or disappointed?
I’m 67 yo, male, slightly overweight but otherwise good health but I have a severe Aortic Stenosis, that’s running at about 25% of full capacity. My only symptoms are slight breathlessness when climbing stairs. Saw a surgeon yesterday who wants to replace the valve with an animal valve, but he does not
I’m 67 yo, male, slightly overweight but otherwise good health but I have a severe Aortic Stenosis, that’s running at about 25% of full capacity. My only symptoms are slight breathlessness when climbing stairs. Saw a surgeon yesterday who wants to replace the valve with an animal valve, but he does not
7LTR
in
British Heart Foundation
8 months ago
Gene therapy
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
Farooqji
in
Cure Parkinson's
5 months ago
FSH going from 8 to 43 just in few weeks while preparing for a FET, is it temporary or menopause?
Hi Ladies Can anyone help put a light to my issue of FSH going from 8 to 43 just in 2-3 weeks while I was doing tests before a frozen transfer. I am devastated as I cannot find a logic to this. Background I am preparing for a FET cycle but my hormons all of a sudden messed up besides my thin lining
Hi Ladies Can anyone help put a light to my issue of FSH going from 8 to 43 just in 2-3 weeks while I was doing tests before a frozen transfer. I am devastated as I cannot find a logic to this. Background I am preparing for a FET cycle but my hormons all of a sudden messed up besides my thin lining
Bebe294
in
Fertility Network UK
11 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
5 months ago
hip replacement advice
Thank you all for your extremely helpful responses to my question on hip replacement! I am just starting research on ortho surgeons and would like to proceed. I cannot thank you enough for your input and yes, I will follow up on the tips offered for the stuff they don’t tell you at the doctor’s office
Thank you all for your extremely helpful responses to my question on hip replacement! I am just starting research on ortho surgeons and would like to proceed. I cannot thank you enough for your input and yes, I will follow up on the tips offered for the stuff they don’t tell you at the doctor’s office
ClarenceO
in
SHARE Metastatic Breast Cancer
8 months ago
knee replacement
hi had a meniscus op repair for torn cartlidge 2007 and have all sorts of problems since, with by right knee, swelling so much with walking and can’t stand in one position for long, and have a bakers cyst swelling pouch on the back crease of knee which is painful. my left leg has carried the right
hi had a meniscus op repair for torn cartlidge 2007 and have all sorts of problems since, with by right knee, swelling so much with walking and can’t stand in one position for long, and have a bakers cyst swelling pouch on the back crease of knee which is painful. my left leg has carried the right
Nat107
in
Arthritis Action
8 months ago
testing protocol on T4 and T3
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Topes009
in
Thyroid UK
6 months ago
Where was I?
I gave some insight recently into problems I’d had which led to a diagnosis of Vestibular Migraine. I posted as Everywhere. However, Everywhere disappeared and is now nowhere to be seen in the members list. As a result of an HU glitch which took them a week to sort out, I had to rejoin as Everywhere2
I gave some insight recently into problems I’d had which led to a diagnosis of Vestibular Migraine. I posted as Everywhere. However, Everywhere disappeared and is now nowhere to be seen in the members list. As a result of an HU glitch which took them a week to sort out, I had to rejoin as Everywhere2
Hidden
in
Thyroid UK
11 months ago
Progesterone: oestrogen ratio
Hi all I recently got my oestrogen and progesterone levels done by medichecks.I was hoping they worked out the actual ratio of oestrogen to progesterone but they don't so now I'm confused. The 2 results are calculated in different values (pmol/L Vs nmol/L) which makes it hard to interpret if one of
Hi all I recently got my oestrogen and progesterone levels done by medichecks.I was hoping they worked out the actual ratio of oestrogen to progesterone but they don't so now I'm confused. The 2 results are calculated in different values (pmol/L Vs nmol/L) which makes it hard to interpret if one of
Hollybushroad
in
Menopause and Perimenopause Support
11 months ago
-3" waist
I started to try and lose weight way back in May before a hip replacement operation. My diet was disrupted because over a period of 3 months I managed to dissociate my hip 4 times. my hip feels right now so I am able to start walking. So... I have lost just 1 stone in 7 months, nothing at all in the
I started to try and lose weight way back in May before a hip replacement operation. My diet was disrupted because over a period of 3 months I managed to dissociate my hip 4 times. my hip feels right now so I am able to start walking. So... I have lost just 1 stone in 7 months, nothing at all in the
PB30
Restart June 2023
in
Weight Loss Support
8 months ago
mild IVF? not great so far.
Just an update on how mild IVF is going so far for anyone interested: After multiple (7!) miserable attempts with traditional IVF (1-2 mature eggs retrieved each time), I finally switched to a mild protocol. I did a week of estrogen priming with provera in the previous luteal phase, then started Clomid
Just an update on how mild IVF is going so far for anyone interested: After multiple (7!) miserable attempts with traditional IVF (1-2 mature eggs retrieved each time), I finally switched to a mild protocol. I did a week of estrogen priming with provera in the previous luteal phase, then started Clomid
finup0321
in
Fertility Network UK
11 months ago
second opinion?
I was diagnosed with endometriosis over two years ago when I was being tested for a problem with my bladder. Doctor found a mass and sent me for scans internal and external. I also had a hysteroscopy (more than one eventually) where they had problems with my cervix. I have a massive chocolate cyst in
I was diagnosed with endometriosis over two years ago when I was being tested for a problem with my bladder. Doctor found a mass and sent me for scans internal and external. I also had a hysteroscopy (more than one eventually) where they had problems with my cervix. I have a massive chocolate cyst in
Noonehelps
in
Endometriosis UK
11 months ago
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