second opinion?

[Noonehelps]

I was diagnosed with endometriosis over two years ago when I was being tested for a problem with my bladder. Doctor found a mass and sent me for scans internal and external. I also had a hysteroscopy (more than one eventually) where they had problems with my cervix. I have a massive chocolate cyst in my ovaries and endometriosis. Looking at posts on here and on SM pages relating to Endometriosis, women and girls are suffering so much pain and discomfort and I have nothing 🤷‍♀️ I have been put on prostap injections, monthly for four months then every 3 months, HRT treatment too. We seem to be going no further because the doctor won’t remove cyst until I lose a lot of weight. I’ve always been big and find it hard losing weight when I have other health issues which just seem to be the gift that keeps giving, sort one issue and two replace it. I have to keep chasing for appointments to speak to her, get results etc.

Is it worth trying to get a second opinion? I ask this as the last hysteroscopy, the person said no sign of menopause and we haven’t gone through laparoscopic route. Just scans and jabs or as I call them stabby stabby.

I am confused.

[BloomingMarvellous]

Hi , Just so you know not everyone with endometriosis gets pain or pain can develop later on in the process depending on each individual and the tissue that gets affected. You aren’t alone here if it’s truly the case. Why I say truly the case is that there are indications that a percentage of those reporting no symptoms or pain actually have some but have learnt to “normalise” or “minimise “ the discomfort. So actually it’s a much smaller number who truly have no pain or symptoms at all. All that said your experience is yours ! You can have endometriosis and no pain. It doesn’t mean it’s not interfering with organ or metabolic function however so will need care to keep it from doing so.

One struggle for many of us with endo is weight management. The tissue seems to create metabolic disfunction which can contribute to weight issues as well as being associated with more frequent auto immune issues with the thyroid. You mention you have “always been big” and that may be a product of the endometriosis process, as well as other factors. Part it that can be the inflammatory process involved in the disease. Lots of us find help with using an anti inflammatory diet which can really help with weight that seems resistant to every method known. To get a grasp of the disease and the anti inflammatory approach I would go to two books by Katie Edmonds “ Heal Endo” and her other book which gives several weeks of recipes so you have structure to try it out. While it’s not about weight loss many of us find the reduced inflammation enables the body to shed unwanted weight as the system is soothed. Each of us is different as to the specific thing that can trigger the inflammation and the book enables you to have a safe way to explore that. Also try her latest Instagram post of “Endo without pain” @heal.endo you may find more helpful information on. Good luck.