Declining psa #8: Gm folks, hope all is... - Advanced Prostate...

Advanced Prostate Cancer

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Declining psa #8

Nfler profile image
22 Replies

Gm folks, hope all is well during this Christmas season…

I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely.

Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95, 9 months ago when the alternative trx started, one of the bigger declines during this trx.

Met with MO last month n he is still pleased n supportive of my trx n results and wants a psma scan in Jan. It’s rather encouraging to see the psa drop a whole 1 point in less than a year and all this w no adt n horrific side effects.

My belief is to catch it early n hit hard w IVM n cbd as once psa gets below 2 it’s much easier to treat.

Keep an open mind and read as much as possible on what actually does n does not work. I hope my testimony was helpful. Good luck 🍀 on whichever route is chosen to fight this dreaded disease n hopefully a cure is coming 🔜…😁😇😇🙏

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22 Replies
DesertDaisy profile image
DesertDaisy

That's wonderful. Can you tell me IVM dosage and how often you take it?

Nfler profile image
Nfler in reply toDesertDaisy

Sure, I take about 19 mg/day, 4 days/wk as a maintenance dose. I initially took about 48mg every other day for a total of 6 doses to hit the tumors hard, also take 100 mg of cbd 6 days/week along w turmeric n zinc. I get the ivm from all day chemists out of India as well… hope this helps

Nfler profile image
Nfler in reply toDesertDaisy

The ivm works really well with our without Abi n pred. I didn’t like the side effects of Abi n orgavix so I stopped. Just use ivm n luckily am having great results with halving time less than a year, opposite of doubling time. If he starts feeling bad or starts having severe complications from the drugs then you have an option of just using ivm and it’s been safely used since 1987…

KocoPr profile image
KocoPr

yehaw! Time to celebrate!!!

How much and what DIM brand do you take?

Nfler profile image
Nfler in reply toKocoPr

Thank you! I just take the Costco Joe weider brand, it’s ashwaganda n dim together on sale for about $22…

austinsurvivor profile image
austinsurvivor

how did you get your MO to sign off on Ivermectin treatment?

Nfler profile image
Nfler in reply toaustinsurvivor

Well he can’t control what I take, so I mentioned it to him after my testosterone returned n psa stabilized. He was like there’s no denying that what your doing is working so keep doing it and I mentioned that low wbc count could be a problem, so he ordered the complete blood count test in addition to the reg orders…

gsun profile image
gsun

Why hasn't there been large human studies of IVM?

Nfler profile image
Nfler in reply togsun

Because there’s no money in it. When I was on orgavix n Abi it was almost $15,000.00/ month and ivermectin is about $19/ mo. I felt so guilty when my insurance had to pay this ridiculous amount knowing it wasn’t a cure and was so glad to discover ivm and pay for it myself…

kindermom profile image
kindermom

This is fantastic info. Could you tell me where/how you came across it? Does your Pca include Mets? Thank you.

Nfler profile image
Nfler in reply tokindermom

this is one of many that convinced me what may or not work

Article that inspired me
kindermom profile image
kindermom in reply toNfler

Found the article! Thank you! My husband went from 97 PSA to .08 (and one more check on 12/19) after 6 rounds of chemo docetaxel, 2 shots of Lupron, 4 shots of Xgeva and daily does of Nubeqa all since 8/11/23! Meeting with oncologist on 12/19 /23 to see what's next and really wants to get off of ADT! This article is very timely so thanks again!

Nfler profile image
Nfler in reply tokindermom

Also if he wants to get off ADT don’t take anymore lupron s as it takes forever to get out of your system n sometimes testosterone doesn’t return fully, go w orgavix as it works immediately n gets out of system rather quickly. I quit all asap after starting ivm…

kindermom profile image
kindermom in reply toNfler

His Lupron isn't due til beginning if Feb so it gives us time to get everything in place before he has to take any kind of ADT! Yaaay! Hope the IVM doesn't take to long to get to us. He is in a grest place to start this regime and it gives him something TO do rather than just stopping everything and hope things don't get worse. Pretty risky if you ask me but zi do understand guys doing that because of such negative effects of the ADT. Thanks for giving us hope for a potentially great quality of life and perhaps a longer one at that! Please keep us all updated on your progress/challenges, etc.

Nfler profile image
Nfler in reply tokindermom

yes I had Mets to 3 lymph nodes, now two no longer show up and one is shrinking as of last scan. I’ll have my one year scan next month. Here’s my latest graph on psa

Graph of psa
dhccpa profile image
dhccpa

How many mg of IVM are you taking per day?

Nfler profile image
Nfler in reply todhccpa

I’m down to 12 mg/ day 2/3 days week but i was doing 4 days/week for the last 6 months. I also incorporate a very important cbd oil, turmericn zinc. Rick Simpson oil once weekly for the added benefit and it all seems to b working very well…

j-o-h-n profile image
j-o-h-n

May a gale full your sail..............

Note: I wish to offer my apologies if I offended anyone regarding my so-called humor about "race" or "misogyny". To me, humor is boundless and since we cry when we are born, I would like to see us laugh when we die.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 12/16/2023 11:07 PM EST

OldGuysRule profile image
OldGuysRule

Fell free to be wide open my man!

Nfler profile image
Nfler in reply toOldGuysRule

Thank you n you as well. Live good…😁😎🏄‍♂️🏈🏈🏉🏉

Professorgary profile image
Professorgary

Excellent news! Is this similar to the protocol used by Joe Tippen?

Nfler profile image
Nfler in reply toProfessorgary

Yes very similar, I actually followed his recommendations… thank you

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