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Experiences with
Essential thrombocythaemia
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Orthostatic hypotension
I am trying to deal with being dizzy and sometimes fainting. I am transitioning from Sinemet to mucuna . My dosage was 7 1/2 pills a day. 1 extended at night and 1 amantadine in the morning and 1 at night I have increased my water intake and taking essential oils to increase my blood pressure. My neurologist
I am trying to deal with being dizzy and sometimes fainting. I am transitioning from Sinemet to mucuna . My dosage was 7 1/2 pills a day. 1 extended at night and 1 amantadine in the morning and 1 at night I have increased my water intake and taking essential oils to increase my blood pressure. My neurologist
Bowling55
in
Cure Parkinson's
4 years ago
Please keep cool and hydrated to avoid a worse risk of clotting.
Hello, just a gentle reminder to keep cool and hydrated in the current UK heat wave, or any location, tepid baths are better than hot baths for keeping cool in this sort of heat, as if totally cold, you body races to warm up again, I have a cool one with a few drops of lavender before bed, (Be careful
Hello, just a gentle reminder to keep cool and hydrated in the current UK heat wave, or any location, tepid baths are better than hot baths for keeping cool in this sort of heat, as if totally cold, you body races to warm up again, I have a cool one with a few drops of lavender before bed, (Be careful
MaryF
Administrator
in
Hughes Syndrome APS Forum
4 years ago
Essential oils
Studies have shown that using essential oils may improve sleep, enhance mood, and help with depression. Two of the best are bergamot and wild ginger. Bergamot is known for being both uplifting and calming. This acts as a hormone balancer and antidepressant. It also has sedative effects, making it an
Studies have shown that using essential oils may improve sleep, enhance mood, and help with depression. Two of the best are bergamot and wild ginger. Bergamot is known for being both uplifting and calming. This acts as a hormone balancer and antidepressant. It also has sedative effects, making it an
Survivor4Ever
in
Anxiety and Depression Support
4 years ago
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Endo diets
My zoledex injection has been cancelled and as I don’t get on with anything else I’m going to have to live without anything for a while. Does anyone have any recommendations on diets to follow that may help with pain? I tried the endo diet quite some years ago and didn’t get a great benefit from it but
My zoledex injection has been cancelled and as I don’t get on with anything else I’m going to have to live without anything for a while. Does anyone have any recommendations on diets to follow that may help with pain? I tried the endo diet quite some years ago and didn’t get a great benefit from it but
Bluetit
in
Endometriosis UK
4 years ago
Regards to essentials oils
Hi. I’m new here but looking for some knowledge regards to Parkinsons and essential oils. My husband is 48yrs and has been diagnosed with PD
Hi. I’m new here but looking for some knowledge regards to Parkinsons and essential oils. My husband is 48yrs and has been diagnosed with PD
Arcade786
in
Cure Parkinson's
4 years ago
Need help with one last thing pls. Anyone ever get PVCs after coughing or clearing their throat hard?
Yesterday I had a very stressful day I am working a full time, high pressure sales jobs making 100 dials on Canada's Wall st, Bay st and work like a dog that's why i'm the top closer Also growing 2 business have had some drama and personal things that were emotionally draining yesterday
Yesterday I had a very stressful day I am working a full time, high pressure sales jobs making 100 dials on Canada's Wall st, Bay st and work like a dog that's why i'm the top closer Also growing 2 business have had some drama and personal things that were emotionally draining yesterday
braziljjay
in
Arrhythmia Alliance
4 years ago
The Myeloproliferative Neoplasm Landscape: A Patient’s Eye View
Jonathan Mathias ABSTRACT Patients with myeloproliferative neoplasms (MPNs), a group of rare haematological conditions including polycythaemia vera,
essential
thrombocythaemia
, and myelofibrosis, often experience a range of symptoms which can significantly impact their quality of life (QoL).
Jonathan Mathias ABSTRACT Patients with myeloproliferative neoplasms (MPNs), a group of rare haematological conditions including polycythaemia vera,
essential
thrombocythaemia
, and myelofibrosis, often experience a range of symptoms which can significantly impact their quality of life (QoL).
socrates_8
in
MPN Voice
4 years ago
Problem reflux
I was diagnosed with
essential
thrombocythaemia
jak2 positive 3 weeks ago so all this is new to me been on hydroxycarbamide and aspirin but now I'm getting a lot of burping and bloating am taking omeprazole but doesn't seem to be helping I don't think I drink enough fluids has anyone else had this
I was diagnosed with
essential
thrombocythaemia
jak2 positive 3 weeks ago so all this is new to me been on hydroxycarbamide and aspirin but now I'm getting a lot of burping and bloating am taking omeprazole but doesn't seem to be helping I don't think I drink enough fluids has anyone else had this
Chel1
in
MPN Voice
5 years ago
Does Hydroxycarbamide make it take longer for you to recover from an infection?
I'm new on this site and I'm interested in learning about the experiences of people with
Essential
Thrombocythaemia
(ET).
I'm new on this site and I'm interested in learning about the experiences of people with
Essential
Thrombocythaemia
(ET).
JaK2ET
in
MPN Voice
5 years ago
Vitamin C and Corona virus
This is not new since vitamin C has been known to behave as an antiviral for decades. Yesterday a functional doctor explained how it works but this came to me today from the Zielinski's who have contributed to summits because of their expertise in essential oils. "We just read in the news that China
This is not new since vitamin C has been known to behave as an antiviral for decades. Yesterday a functional doctor explained how it works but this came to me today from the Zielinski's who have contributed to summits because of their expertise in essential oils. "We just read in the news that China
Magda123
in
Thyroid UK
5 years ago
VITAMIN C AND THE CORONA VIRUS
This is not new since vitamin C has been known to behave as an antiviral for decades. Yesterday a functional doctor explained how it works but this came to me today from the Zielinski's who have contributed to summits because of their expertise in essential oils. "We just read in the news that China
This is not new since vitamin C has been known to behave as an antiviral for decades. Yesterday a functional doctor explained how it works but this came to me today from the Zielinski's who have contributed to summits because of their expertise in essential oils. "We just read in the news that China
Heloise
in
Thyroid UK
5 years ago
Thieves Oil for coronavirus
Not exactly a Parkinsons problem but there have been other posts on how we can protect ourselves against the virus, so I'm posting this here for your interest. Thieves oil gets its name from the days of the Bubonic Plague when thieves entered the homes of the dead to rob them. They didn't catch the plague
Not exactly a Parkinsons problem but there have been other posts on how we can protect ourselves against the virus, so I'm posting this here for your interest. Thieves oil gets its name from the days of the Bubonic Plague when thieves entered the homes of the dead to rob them. They didn't catch the plague
Dap1948
in
Cure Parkinson's
5 years ago
Suggestion for endo flare up pain
Hi This will be my first post I'm not asking for help but trying to give some which feels good. I've discovered a gel from France whilst staying with a couple in Spain (he used it for broken leg trauma). Being someone who previously got addicted to codeine in a knock on effect of dealing with endometriosis
Hi This will be my first post I'm not asking for help but trying to give some which feels good. I've discovered a gel from France whilst staying with a couple in Spain (he used it for broken leg trauma). Being someone who previously got addicted to codeine in a knock on effect of dealing with endometriosis
Endowarrior27
in
Endometriosis UK
5 years ago
COVID-19 Outbreak: Advice for Patients with Myeloproliferative Neoplasms (MPNs) 30th March 2020
The
government’s general advice
may be found here: https://www.nhs.uk/conditions/coronavirus-covid-19/ The
Myeloproliferative Neoplasms
(MPNs, including
Essential
Thrombocythaemia
, Polycythaemia Vera and Myelofibrosis) are a group of blood cancers.
The
government’s general advice
may be found here: https://www.nhs.uk/conditions/coronavirus-covid-19/ The
Myeloproliferative Neoplasms
(MPNs, including
Essential
Thrombocythaemia
, Polycythaemia Vera and Myelofibrosis) are a group of blood cancers.
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Remedies for Congestion
Does anyone have a remedy or suggestions for dealing with congestion? Dealing with my asthma AND congestion is truly a pain! I’m on allergy medication (Flonase, Claritin. Etc) Can’t take Sudafed bc it raises my BP! I’ve also do steam with essential oils, taken horseradish, etc... all temporary! It’s
Does anyone have a remedy or suggestions for dealing with congestion? Dealing with my asthma AND congestion is truly a pain! I’m on allergy medication (Flonase, Claritin. Etc) Can’t take Sudafed bc it raises my BP! I’ve also do steam with essential oils, taken horseradish, etc... all temporary! It’s
krylan
in
Living with Asthma
5 years ago
Essential oils
Anyone use essential oils? What are the best ones for anxiety? I’m thinking about getting a necklace to help me while I’m at work
Anyone use essential oils? What are the best ones for anxiety? I’m thinking about getting a necklace to help me while I’m at work
Angmw82
in
Anxiety Support
5 years ago
Essential oils
Anyone use essential oils? What are the best ones for anxiety? I’m thinking about getting a necklace to help me while I’m at work
Anyone use essential oils? What are the best ones for anxiety? I’m thinking about getting a necklace to help me while I’m at work
Angmw82
in
Anxiety and Depression Support
5 years ago
Feeling on top of the world
Hello Ladies, I haven't posted for a while but I have news! I went for a scan last Wednesday and had a meeting with my oncologist on Thursday. The first thing he said was: 'We have your scan results'. I was not expecting them for another month but there was more. 'There is no measurable disease, a couple
Hello Ladies, I haven't posted for a while but I have news! I went for a scan last Wednesday and had a meeting with my oncologist on Thursday. The first thing he said was: 'We have your scan results'. I was not expecting them for another month but there was more. 'There is no measurable disease, a couple
LouisaMay
in
SHARE Metastatic Breast Cancer
5 years ago
Stress
Hey guys so y'all probably remember everything I been threw it was hell yes I still deal with things like stress depression and axiety but it not as bad like it use to be I don't get injection everyDay nomore or u havint been to the hospital so that's good but depression is part of my life now and I
Hey guys so y'all probably remember everything I been threw it was hell yes I still deal with things like stress depression and axiety but it not as bad like it use to be I don't get injection everyDay nomore or u havint been to the hospital so that's good but depression is part of my life now and I
Vannessasedillo
in
Anxiety and Depression Support
5 years ago
Essential oils and OCD
Hello. Does anyone have any experience of using essential oils to help with depression /ocd? My wife has ocd which makes her depressed. If so, which oils did u use n how did u use them?
Hello. Does anyone have any experience of using essential oils to help with depression /ocd? My wife has ocd which makes her depressed. If so, which oils did u use n how did u use them?
ghost_writer
in
Headway
5 years ago
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