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Experiences with
Essential thrombocythaemia
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What are the stages of myelofibrosis
My husband of 81 was diagnosed with myelofibrosis last week after having Jack2 negative
essential
thrombocythaemia
since 2009. His consultant will be watching him closely for the next few months and has not yet prescribed any treatment.
My husband of 81 was diagnosed with myelofibrosis last week after having Jack2 negative
essential
thrombocythaemia
since 2009. His consultant will be watching him closely for the next few months and has not yet prescribed any treatment.
Richinspirit
in
MPN Voice
2 months ago
Does anyone have experience/info about Lumbrokinase?
I am aiming to continue decreasing the platelet count and my herbalist suggested asking whether anyone here has any experience or knowledge about using Lumbrokinase in supporting the effects of
Essential
Thrombocythaemia
? Many thanks!
I am aiming to continue decreasing the platelet count and my herbalist suggested asking whether anyone here has any experience or knowledge about using Lumbrokinase in supporting the effects of
Essential
Thrombocythaemia
? Many thanks!
Greenlace
in
MPN Voice
10 months ago
Essential Thrombocythaemia PIP?
Hi just thought would say hi as not been on for awhile š Iām considering applying for PIP ā¦ Iāve had ET now for 27 years CALRā¦ chemo for 22 years. Iāve had to reduce my hours and leave my job as an NHS Paramedicā¦ fatigue was killing me and just had to leave. Iām a trainer now working part time, money
Hi just thought would say hi as not been on for awhile š Iām considering applying for PIP ā¦ Iāve had ET now for 27 years CALRā¦ chemo for 22 years. Iāve had to reduce my hours and leave my job as an NHS Paramedicā¦ fatigue was killing me and just had to leave. Iām a trainer now working part time, money
DENMOOR
in
MPN Voice
1 year ago
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Report: Ceylon Cinnamon Relieves Parkinson's Motor Impairment. Evidence Suggests Remedy of Underlying Disease (repost)
Image credit: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7720887/pdf/nihms-1649509.pdf Can cinnamon spice down autoimmune diseases? This post includes both evidence from the medical literature and personal observation. It was originally posted in 2020 and had been deleted recently due to an unfortunate
Image credit: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7720887/pdf/nihms-1649509.pdf Can cinnamon spice down autoimmune diseases? This post includes both evidence from the medical literature and personal observation. It was originally posted in 2020 and had been deleted recently due to an unfortunate
park_bear
in
Cure Parkinson's
2 days ago
Rosemary Oil: A Versatile Elixir
Rosemary, a fragrant herb with a long history of culinary and medicinal use, has captured the attention of modern wellness enthusiasts for its potent essential oil. Extracted from the leaves of the Rosmarinus officinalis plant, rosemary oil is a concentrated essence brimming with therapeutic properties
Rosemary, a fragrant herb with a long history of culinary and medicinal use, has captured the attention of modern wellness enthusiasts for its potent essential oil. Extracted from the leaves of the Rosmarinus officinalis plant, rosemary oil is a concentrated essence brimming with therapeutic properties
saadafzalcs
in
Cure Parkinson's
2 months ago
Hereās a herbal for the lungs
I have just come across this herbal formula which has many reviews on the benefits for chest congestion coughs, breathing problems. It has an extensive list of herbs in it. Some have been shown to be anti anxiety, anti oxidant, anti inflammatory inducing. Might be worth a shot if you have issues
I have just come across this herbal formula which has many reviews on the benefits for chest congestion coughs, breathing problems. It has an extensive list of herbs in it. Some have been shown to be anti anxiety, anti oxidant, anti inflammatory inducing. Might be worth a shot if you have issues
LAJ12345
in
Cure Parkinson's
2 months ago
Turmeric Curcumin: BCM-95 or Meriva - Maybe Neither
I switched my Turmeric to BCM-95 some years ago. I had read an article āresearchers believe that the ar-turmerone derivatives... can be used as new therapeutic agents for Parkinsonās disease (a). The search was on to find a supplement with turmerone. I found BCM-95 had some essential oils in it. I asked
I switched my Turmeric to BCM-95 some years ago. I had read an article āresearchers believe that the ar-turmerone derivatives... can be used as new therapeutic agents for Parkinsonās disease (a). The search was on to find a supplement with turmerone. I found BCM-95 had some essential oils in it. I asked
Gcf51
in
Cure Parkinson's
4 months ago
Smell Training (Olfactory Training)
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post āOlfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinsonāsā
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post āOlfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinsonāsā
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Bolt_Upright
in
Cure Parkinson's
6 months ago
Essential oils and IVF
Hello, I've recently been making efforts to free my home as far as possible from environmental toxins in preparation for my next round of IVF, the book 'It starts with the egg' recommends not using plastics with BPA etc and also using fragrance free products like hand soap etc, I ordered alot of products
Hello, I've recently been making efforts to free my home as far as possible from environmental toxins in preparation for my next round of IVF, the book 'It starts with the egg' recommends not using plastics with BPA etc and also using fragrance free products like hand soap etc, I ordered alot of products
Xmishell37
in
Fertility Network UK
8 months ago
Specialist MPN Consultant
Having being diagnosed recently with
Essential
Thrombocythaemia
, I am struggling to find haematologists who have a specialist knowledge and interest in my condition. I live in the East Midlands and ask if anyone living with this condition can recommend a consultant/ hospital?
Having being diagnosed recently with
Essential
Thrombocythaemia
, I am struggling to find haematologists who have a specialist knowledge and interest in my condition. I live in the East Midlands and ask if anyone living with this condition can recommend a consultant/ hospital?
Rebus12
in
MPN Voice
1 year ago
natural remedies
hello, I am interested in natural remedies to help anxiety and depression. Best essential oils .. vitamins? I am trying to get off a medication I should not have been put on long term.
hello, I am interested in natural remedies to help anxiety and depression. Best essential oils .. vitamins? I am trying to get off a medication I should not have been put on long term.
TurquoiseWaters86
in
Anxiety and Depression Support
10 months ago
Trying to make the most of being chronically ill and unemployed š
āØ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely āØ *depending on what you can do that day x ā¢ Quality time with loved ones ā¢ Getting a new pet or spending more quality time with yours. ā¢ Developing a self care routine ā¢ Free adult learning courses
āØ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely āØ *depending on what you can do that day x ā¢ Quality time with loved ones ā¢ Getting a new pet or spending more quality time with yours. ā¢ Developing a self care routine ā¢ Free adult learning courses
x_emily_x
in
Endometriosis UK
10 months ago
Burning Feet
After I started taking hydroxycarbamide for
Essential
Thrombocythaemia
I experienced extremely unpleasant burning sensations in my feet after I had been in bed for a short while which prevented me sleeping. This lasted for many months and then stopped - I donāt know why.
After I started taking hydroxycarbamide for
Essential
Thrombocythaemia
I experienced extremely unpleasant burning sensations in my feet after I had been in bed for a short while which prevented me sleeping. This lasted for many months and then stopped - I donāt know why.
Mistymountain
in
MPN Voice
1 year ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
Fight MPN
1 year ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
MPN Voice
1 year ago
Essential Thrombocythaemia and Pneumococcal vaccine safe to take?
hello my husband is 36 with
Essential
Thrombocythaemia
Calr type 1 and on aspirin only he has received a letter for the Pneumococcal vaccine but Iām wondering is it safe to take with having ET?
hello my husband is 36 with
Essential
Thrombocythaemia
Calr type 1 and on aspirin only he has received a letter for the Pneumococcal vaccine but Iām wondering is it safe to take with having ET?
Green1988
in
MPN Voice
2 years ago
bp very up and down
Most of the time I can coast along and my systolic bp is acceptable but just sometimes it goes up rather for apparently no reason. I then have to start taking Candesartan again for a day or two and then taper off with every other day for a week or so and it goes back down. I do all the deep breathing
Most of the time I can coast along and my systolic bp is acceptable but just sometimes it goes up rather for apparently no reason. I then have to start taking Candesartan again for a day or two and then taper off with every other day for a week or so and it goes back down. I do all the deep breathing
GrannyE
in
British Heart Foundation
1 year ago
Tips on Panic
Hello friends,Ā I am new to the group. Just joined moments ago. Iāve had anxiety most of my life with occasional panic attacks induced by stressful life events (and only lasted about a minute). The last few months my anxiety has gotten worse and I started having more and more frequent panic attacks randomly
Hello friends,Ā I am new to the group. Just joined moments ago. Iāve had anxiety most of my life with occasional panic attacks induced by stressful life events (and only lasted about a minute). The last few months my anxiety has gotten worse and I started having more and more frequent panic attacks randomly
Fearful_Kitty
in
Anxiety Support
1 year ago
Epsom Salt and essential oils foot soak query
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. š¤¦āāļø I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. š¤¦āāļø I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
Gilli54
in
AF Association
2 years ago
Berberine / Curcurmin essential oils?
Iāve been reading about use of Berberine, curcurmin, clove and cinnamon oils for SIBO/ SIFO symptoms. (In Dr William Davies book supergut) Iām pretty much there with resolving my GI issues so reticent to mess around, but you know how it goes, Iām also curious as to whether it could be even better.
Iāve been reading about use of Berberine, curcurmin, clove and cinnamon oils for SIBO/ SIFO symptoms. (In Dr William Davies book supergut) Iām pretty much there with resolving my GI issues so reticent to mess around, but you know how it goes, Iām also curious as to whether it could be even better.
Regenallotment
in
Thyroid UK
2 years ago
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