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Essential thrombocythaemia
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Essential Thrombocythaemia PIP?
Hi just thought would say hi as not been on for awhile š Iām considering applying for PIP ā¦ Iāve had ET now for 27 years CALRā¦ chemo for 22 years. Iāve had to reduce my hours and leave my job as an NHS Paramedicā¦ fatigue was killing me and just had to leave. Iām a trainer now working part time, money
Hi just thought would say hi as not been on for awhile š Iām considering applying for PIP ā¦ Iāve had ET now for 27 years CALRā¦ chemo for 22 years. Iāve had to reduce my hours and leave my job as an NHS Paramedicā¦ fatigue was killing me and just had to leave. Iām a trainer now working part time, money
DENMOOR
in
MPN Voice
8 months ago
Does anyone have experience/info about Lumbrokinase?
I am aiming to continue decreasing the platelet count and my herbalist suggested asking whether anyone here has any experience or knowledge about using Lumbrokinase in supporting the effects of
Essential
Thrombocythaemia
? Many thanks!
I am aiming to continue decreasing the platelet count and my herbalist suggested asking whether anyone here has any experience or knowledge about using Lumbrokinase in supporting the effects of
Essential
Thrombocythaemia
? Many thanks!
Greenlace
in
MPN Voice
5 months ago
Specialist MPN Consultant
Having being diagnosed recently with
Essential
Thrombocythaemia
, I am struggling to find haematologists who have a specialist knowledge and interest in my condition. I live in the East Midlands and ask if anyone living with this condition can recommend a consultant/ hospital?
Having being diagnosed recently with
Essential
Thrombocythaemia
, I am struggling to find haematologists who have a specialist knowledge and interest in my condition. I live in the East Midlands and ask if anyone living with this condition can recommend a consultant/ hospital?
Rebus12
in
MPN Voice
1 year ago
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Burning Feet
After I started taking hydroxycarbamide for
Essential
Thrombocythaemia
I experienced extremely unpleasant burning sensations in my feet after I had been in bed for a short while which prevented me sleeping. This lasted for many months and then stopped - I donāt know why.
After I started taking hydroxycarbamide for
Essential
Thrombocythaemia
I experienced extremely unpleasant burning sensations in my feet after I had been in bed for a short while which prevented me sleeping. This lasted for many months and then stopped - I donāt know why.
Mistymountain
in
MPN Voice
1 year ago
Essential Thrombocythaemia and Pneumococcal vaccine safe to take?
hello my husband is 36 with
Essential
Thrombocythaemia
Calr type 1 and on aspirin only he has received a letter for the Pneumococcal vaccine but Iām wondering is it safe to take with having ET?
hello my husband is 36 with
Essential
Thrombocythaemia
Calr type 1 and on aspirin only he has received a letter for the Pneumococcal vaccine but Iām wondering is it safe to take with having ET?
Green1988
in
MPN Voice
1 year ago
Smell Training (Olfactory Training)
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post āOlfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinsonāsā
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post āOlfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinsonāsā
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Bolt_Upright
in
Cure Parkinson's
1 month ago
Essential oils and IVF
Hello, I've recently been making efforts to free my home as far as possible from environmental toxins in preparation for my next round of IVF, the book 'It starts with the egg' recommends not using plastics with BPA etc and also using fragrance free products like hand soap etc, I ordered alot of products
Hello, I've recently been making efforts to free my home as far as possible from environmental toxins in preparation for my next round of IVF, the book 'It starts with the egg' recommends not using plastics with BPA etc and also using fragrance free products like hand soap etc, I ordered alot of products
Xmishell37
in
Fertility Network UK
2 months ago
natural remedies
hello, I am interested in natural remedies to help anxiety and depression. Best essential oils .. vitamins? I am trying to get off a medication I should not have been put on long term.
hello, I am interested in natural remedies to help anxiety and depression. Best essential oils .. vitamins? I am trying to get off a medication I should not have been put on long term.
TurquoiseWaters86
in
Anxiety and Depression Support
4 months ago
Trying to make the most of being chronically ill and unemployed š
āØ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely āØ *depending on what you can do that day x ā¢ Quality time with loved ones ā¢ Getting a new pet or spending more quality time with yours. ā¢ Developing a self care routine ā¢ Free adult learning courses
āØ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely āØ *depending on what you can do that day x ā¢ Quality time with loved ones ā¢ Getting a new pet or spending more quality time with yours. ā¢ Developing a self care routine ā¢ Free adult learning courses
x_emily_x
in
Endometriosis UK
5 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
Fight MPN
7 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
MPN Voice
7 months ago
Essential Thrombocythaemia
Hi, I have just been diagnosed with a rear blood condition called
Essential
Thrombocythaemia
(ET The courses of treatment offered to me are Hydroxycarbamide and Pegasys.
Hi, I have just been diagnosed with a rear blood condition called
Essential
Thrombocythaemia
(ET The courses of treatment offered to me are Hydroxycarbamide and Pegasys.
Snowking
in
Leukaemia CARE
2 years ago
bp very up and down
Most of the time I can coast along and my systolic bp is acceptable but just sometimes it goes up rather for apparently no reason. I then have to start taking Candesartan again for a day or two and then taper off with every other day for a week or so and it goes back down. I do all the deep breathing
Most of the time I can coast along and my systolic bp is acceptable but just sometimes it goes up rather for apparently no reason. I then have to start taking Candesartan again for a day or two and then taper off with every other day for a week or so and it goes back down. I do all the deep breathing
GrannyE
in
British Heart Foundation
1 year ago
Tips on Panic
Hello friends,Ā I am new to the group. Just joined moments ago. Iāve had anxiety most of my life with occasional panic attacks induced by stressful life events (and only lasted about a minute). The last few months my anxiety has gotten worse and I started having more and more frequent panic attacks randomly
Hello friends,Ā I am new to the group. Just joined moments ago. Iāve had anxiety most of my life with occasional panic attacks induced by stressful life events (and only lasted about a minute). The last few months my anxiety has gotten worse and I started having more and more frequent panic attacks randomly
Fearful_Kitty
in
Anxiety Support
1 year ago
Epsom Salt and essential oils foot soak query
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. š¤¦āāļø I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. š¤¦āāļø I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
Gilli54
in
AF Association
1 year ago
Berberine / Curcurmin essential oils?
Iāve been reading about use of Berberine, curcurmin, clove and cinnamon oils for SIBO/ SIFO symptoms. (In Dr William Davies book supergut) Iām pretty much there with resolving my GI issues so reticent to mess around, but you know how it goes, Iām also curious as to whether it could be even better.
Iāve been reading about use of Berberine, curcurmin, clove and cinnamon oils for SIBO/ SIFO symptoms. (In Dr William Davies book supergut) Iām pretty much there with resolving my GI issues so reticent to mess around, but you know how it goes, Iām also curious as to whether it could be even better.
Regenallotment
in
Thyroid UK
1 year ago
Natural remedies. Essential oils.
Have any of you used essential oils to help with PBC. I have been researching the use of oils to help detox and dilate the ducts to help with releasing the bile. I want to take info to my Dr for discussion. Medication side effects have been so severe that I only take milk thistle. My ALT and AST are
Have any of you used essential oils to help with PBC. I have been researching the use of oils to help detox and dilate the ducts to help with releasing the bile. I want to take info to my Dr for discussion. Medication side effects have been so severe that I only take milk thistle. My ALT and AST are
pbc-zero
in
PBC Foundation
1 year ago
AF with bad ankle and back therefore problems exercising.
I am now almost never in normal Heart rhythm. It is eitherA/F, or supraventricular,or unclassified. I have a permanently swollen outer left ankle (scan says damage and arthritis) often have a pain in the left buttock relating to spinal cavity being reduced with spurs on. This means that I have problems
I am now almost never in normal Heart rhythm. It is eitherA/F, or supraventricular,or unclassified. I have a permanently swollen outer left ankle (scan says damage and arthritis) often have a pain in the left buttock relating to spinal cavity being reduced with spurs on. This means that I have problems
GrannyE
in
British Heart Foundation
1 year ago
Xeloda/Cape-Hand/Foot & Essential Oil Help
For those experiencing sore feet with cape: I had responded to BettyBucket with info about Topical Heparin Gel, but now also have some info about essential oil use for help if you need it. I realize not everyone believes in essential oil use, or has a stock....but for those who are interested, after
For those experiencing sore feet with cape: I had responded to BettyBucket with info about Topical Heparin Gel, but now also have some info about essential oil use for help if you need it. I realize not everyone believes in essential oil use, or has a stock....but for those who are interested, after
doulos21
in
SHARE Metastatic Breast Cancer
1 year ago
Tea Tree Oil that I order.
NOW Essential Oils, Tea Tree Oil, Cleansing Aromatherapy Scent, Steam Distilled, 100% Pure, Vegan, Child Resistant Cap, 2-Ounce https://a.co/d/7Xz3KLE
NOW Essential Oils, Tea Tree Oil, Cleansing Aromatherapy Scent, Steam Distilled, 100% Pure, Vegan, Child Resistant Cap, 2-Ounce https://a.co/d/7Xz3KLE
Hidden
in
Cure Parkinson's
1 year ago
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