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Enzyme Replacement Therapy
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Anxiety/peri menopause
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
Bassem1979
in
Menopause and Perimenopause Support
11 months ago
Post total knee replacement
Anyone who has had a total knee replacement had more pain in the hip area than the knee. Having a job to keep my knee straight at night as keep waking up every hour with tremendous pain in the hip and end up getting up and having a walk round. It's inhibiting my physio as well. It didn't help that ended
Anyone who has had a total knee replacement had more pain in the hip area than the knee. Having a job to keep my knee straight at night as keep waking up every hour with tremendous pain in the hip and end up getting up and having a walk round. It's inhibiting my physio as well. It didn't help that ended
annpavitt250448
in
Arthritis Action
5 months ago
Endoscopy was a bust.............
I got to the hospital fairly early for my apt. at 1.30pm and i was the second patient on the list. Dr lee came to see me and he was lovely. He has hinted that i might need a valve replacement as it is thickening quite a lot. I don't remember much about it as the sedation was working and afterwards
I got to the hospital fairly early for my apt. at 1.30pm and i was the second patient on the list. Dr lee came to see me and he was lovely. He has hinted that i might need a valve replacement as it is thickening quite a lot. I don't remember much about it as the sedation was working and afterwards
sylvi
in
NRAS
8 months ago
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stage 3b/c inoperable non small cell lung cancer. Cannot tolerate durvalumab, (pneumonitis) No mutations - any hope?
hi, Im 57 and was diagnosed with inoperable non small cell lung cancer in October 2022. Since then Ive adopted a dairy, gluten & sugar free diet , organic only & prinipally vegan. I take millions of supplements a day plus Chinese traditional Medicine. I’ve had 3 rounds of chemo, then combined radio
hi, Im 57 and was diagnosed with inoperable non small cell lung cancer in October 2022. Since then Ive adopted a dairy, gluten & sugar free diet , organic only & prinipally vegan. I take millions of supplements a day plus Chinese traditional Medicine. I’ve had 3 rounds of chemo, then combined radio
ohayeai
in
The Roy Castle Lung Cancer Foundation
5 months ago
EP consult
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
Desertflowerchild
in
Atrial Fibrillation Support
5 months ago
Looking for TKR advice
Hello everyone. I’m a 55 year old male who has had knee problems for the majority of my life. I think it originated from sports injuries as a schoolboy but I remember twisting it while at work when I was about 17 too. I have a long history of having treatment for knee problems including 2 or 3 arthroscopy
Hello everyone. I’m a 55 year old male who has had knee problems for the majority of my life. I think it originated from sports injuries as a schoolboy but I remember twisting it while at work when I was about 17 too. I have a long history of having treatment for knee problems including 2 or 3 arthroscopy
Wolf68
in
Arthritis Action
6 months ago
Amitriptyline! Treatment for nerve damage.Anyone had this for nerve damage?
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
K2023
in
Endometriosis UK
11 months ago
Who also has ... osteoarthritis?
I had xrays and an orthopedic surgeon exam. He says I have osteoarthritis and need a FULL hip replacement. !!!!!!!!!!! !!!!!!!!!!! !!!!!!!!!!! ------------------------------------------------- 1. Anybody else, here --- have that disagnosis? 2. What are you doing for the pain and limping? 3. Did
I had xrays and an orthopedic surgeon exam. He says I have osteoarthritis and need a FULL hip replacement. !!!!!!!!!!! !!!!!!!!!!! !!!!!!!!!!! ------------------------------------------------- 1. Anybody else, here --- have that disagnosis? 2. What are you doing for the pain and limping? 3. Did
NewGuywithPD
in
Cure Parkinson's
8 months ago
Things, regimens,etc that are probably RLS worthless.
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
fritz34
in
Restless Legs Syndrome
6 months ago
perimenopause and heart stuff!
at 49 I’ve finally realised the not sleeping and feeling head fog for the past years is not having a late child (7 now) and a stent (1.5 now), it’s perimenpause as I’m now getting a lot of hot flushes (heat not helping here!). Periods still normal if closer together. But I’ve also being having more
at 49 I’ve finally realised the not sleeping and feeling head fog for the past years is not having a late child (7 now) and a stent (1.5 now), it’s perimenpause as I’m now getting a lot of hot flushes (heat not helping here!). Periods still normal if closer together. But I’ve also being having more
Mangojamontoast
in
British Heart Foundation
11 months ago
Zoladex and HRT
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Sunset-lady
in
Endometriosis UK
11 months ago
coming off oxicodone
Despite the victorious stopping of my RLS, i am still struggling with sleep. I have been taking 10mg of oxicodone. One dose at night. But it had been making me dog tired and zombie like during day. I have read lots on here about spreading the dose but i want to come off it. I am starting to cut it down
Despite the victorious stopping of my RLS, i am still struggling with sleep. I have been taking 10mg of oxicodone. One dose at night. But it had been making me dog tired and zombie like during day. I have read lots on here about spreading the dose but i want to come off it. I am starting to cut it down
Jukebox55
in
Restless Legs Syndrome
11 months ago
Wrist Ulna Head Joint Replacement
Has anyone had their wrist ulna head joint replaced due to RA and if so, how are you doing now?
Has anyone had their wrist ulna head joint replaced due to RA and if so, how are you doing now?
ellilu58
in
NRAS
8 months ago
ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
6 months ago
Another update
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
Gandalf2
in
Encephalitis International
6 months ago
Abiraterone + Olaparib: ASCO GU 2024 Highlights: BRCAAway Trial
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
Maxone73
in
Advanced Prostate Cancer
6 months ago
Fragility score on Osteoscan and different meds.
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Nightingales
in
PMRGCAuk
11 months ago
T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
6 months ago
Gene therapy
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
Farooqji
in
Cure Parkinson's
6 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
6 months ago
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