stage 3b/c inoperable non small cell lung cancer. Cannot tolerate durvalumab, (pneumonitis) No mutations - any hope?

[ohayeai]

hi,

Im 57 and was diagnosed with inoperable non small cell lung cancer in October 2022. Since then Ive adopted a dairy, gluten & sugar free diet , organic only & prinipally vegan. I take millions of supplements a day plus Chinese traditional Medicine. I’ve had 3 rounds of chemo, then combined radio (x25) and chemo (x5) . This was followed up with durvalumab ( discontinued after 5 sessions due to pneumonitis, and have been in corticoids ever since. My breathing & coughing has become progressively worse since, along with developing facial neuralgia. Eventually a pet tac and broncoscopy in January showed I have a new 5cm inoperable tumour , with no mutations, so. no targeted therapy.. As this is obstructing my trachea, I am undergoing more chemo to try & reduce it as no other treatment available,

Still no mets yet, but other than waiting for death, does anyone have any ideas or suggestions?

[Eglingham]

Hi sorry to hear your news but don't lose hope.Have you asked or looked into trials? I'm sure there is a link on this sight that a lady shared, sorry I have forgot her name.

[Kalilou2]

Same here right top lung I had this adenocarcinoma and squamous

Still here nearly five years later. Keep going and be positive x

Four big chemos four top ups 30 radio .

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Hello ohayeai,

I am sorry to hear that you were not able to tolerate durvalumab, generally the treatment for steroids but symptoms can be difficult to treat.

A previous post here by a member N1ria has developed a website to help people identify clinical trials they may be eligible to enroll in, I have added the link to the site below

trials.clinicalnet.com/login

If you would like to chat or ask any questions, our ask the nurse free phone helpline number is 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600 or email us at [e-mail]

Kind regards

The Roy Castle Support Team

[Leniko]

oh my, is Opdiva/Yervoy immunotherapy an option?