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Do you ever feel that no one understands?
Yes, I have Fibro. Yes, I have migraines. Yes, I have Tinnitus. I've had all of this for years and years and I can't but help mention it from time to time as sometimes it just all gets too much! But do you ever feel that no one understands? I do! I feel that they think I've always got something wrong
Yes, I have Fibro. Yes, I have migraines. Yes, I have Tinnitus. I've had all of this for years and years and I can't but help mention it from time to time as sometimes it just all gets too much! But do you ever feel that no one understands? I do! I feel that they think I've always got something wrong
Hidden
in
Fibromyalgia Action UK
4 years ago
5 hours sleep a night
Hi everyone, who do you cope with your morning pains? The last month has been rough for me waking up every morning at 4-5 am with painfull shoulders. I drink caffeine free tea after 5 pm and stop eating at 6 pm and keep myself busy most days if not flaring. I do take valerian root extract but its not
Hi everyone, who do you cope with your morning pains? The last month has been rough for me waking up every morning at 4-5 am with painfull shoulders. I drink caffeine free tea after 5 pm and stop eating at 6 pm and keep myself busy most days if not flaring. I do take valerian root extract but its not
Frankiefocus
in
NRAS
4 years ago
Hello
Hello e3verybody. My name is Jack. I have Primary Progressive MS and was diagnosed in 2002. Now I'm stuck in a wheelchair, Legally deaf, but with hearing aids, I do ok.
Hello e3verybody. My name is Jack. I have Primary Progressive MS and was diagnosed in 2002. Now I'm stuck in a wheelchair, Legally deaf, but with hearing aids, I do ok.
jwoj13699
in
My MSAA Community
4 years ago
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Nefopam is evil....🤢
Hello After trying my best to fight my daily pain with paracetamol, I’ve finally had to give in and ask my GP for some help. I’ve also been prescribed some meds for anxiety too but I’ve only started today...that goes for the nefopam too. So...the prescribed dosage for the nefopam is 2 30mg tablets
Hello After trying my best to fight my daily pain with paracetamol, I’ve finally had to give in and ask my GP for some help. I’ve also been prescribed some meds for anxiety too but I’ve only started today...that goes for the nefopam too. So...the prescribed dosage for the nefopam is 2 30mg tablets
HawthorneBerry
in
Fibromyalgia Action UK
4 years ago
RECENT DIAGNOSIS AN
Just trying to get my head around the possibility that the screaming continuous tinnitus in my right ear is caused by 'Boris' ( I've named the tumor) and that the 'treatment' recommended is watch and wait, rescan in 6 months. It's 15mm at first scan. Anyone had useful treatment for the symptoms of tinnitus
Just trying to get my head around the possibility that the screaming continuous tinnitus in my right ear is caused by 'Boris' ( I've named the tumor) and that the 'treatment' recommended is watch and wait, rescan in 6 months. It's 15mm at first scan. Anyone had useful treatment for the symptoms of tinnitus
flappers
in
Acoustic Neuroma Support
4 years ago
Tinnitus and Hypothyroidism
Hi everyone. Wonder if any of you suffer from tinnitus as I do and is it linked to hypothyroidism? It never goes away and the ringing is driving me mad. I have trouble hearing conversation and TV. I get quite panicky about it. I've been to an ear specialist at Guys and had tests and also been to the
Hi everyone. Wonder if any of you suffer from tinnitus as I do and is it linked to hypothyroidism? It never goes away and the ringing is driving me mad. I have trouble hearing conversation and TV. I get quite panicky about it. I've been to an ear specialist at Guys and had tests and also been to the
LouisThyroux
in
Thyroid UK
4 years ago
SEVERE NEUROPATHY BOTH FEET - Other Treatment Options?
SEVERE neuropathy in both feet for past 2 years. I have tried COUNTLESS Rx (Gabapentin, Pregabalin, Cymbalta, weekly injections (now discontinued) of marcaine into my popliteal nerves, a clinical trial in 2018 with Ketamine and Lidocaine and numerous narcotics - currently on only suboxone for pain)
SEVERE neuropathy in both feet for past 2 years. I have tried COUNTLESS Rx (Gabapentin, Pregabalin, Cymbalta, weekly injections (now discontinued) of marcaine into my popliteal nerves, a clinical trial in 2018 with Ketamine and Lidocaine and numerous narcotics - currently on only suboxone for pain)
Dwight67
in
Neuropathy Support
4 years ago
Out of nowhere: scary vertigo!
Morning everyone. Non lung enquiry. On Wednesday I woke up to the room spinning. Massively worse than anything experienced when I used to have hangovers years ago (drink nothing now). Then throughout the day I got sudden episodes where my head went crazy with a rushing visual thing which felt like
Morning everyone. Non lung enquiry. On Wednesday I woke up to the room spinning. Massively worse than anything experienced when I used to have hangovers years ago (drink nothing now). Then throughout the day I got sudden episodes where my head went crazy with a rushing visual thing which felt like
O2Trees
in
Lung Conditions Community Forum
4 years ago
RLS and it’s woes
Hi everyone. As a RLS sufferer for years I have tried magnesium iron supplements. Acupuncture mats Gabapenten and for the lack of sleep Clonazepam. My mainstay is ropinirole now up to 2mgs per day which makes my vision blurred and augmentation. Ropinirole is failing. I find the symptoms are timely
Hi everyone. As a RLS sufferer for years I have tried magnesium iron supplements. Acupuncture mats Gabapenten and for the lack of sleep Clonazepam. My mainstay is ropinirole now up to 2mgs per day which makes my vision blurred and augmentation. Ropinirole is failing. I find the symptoms are timely
Debsamuels
in
Restless Legs Syndrome
4 years ago
It's that time of day...
I was having an okay morning. Not stellar, but OK. Having to put the effort in today to stay in front of the anxiety and was being pretty successful. I had a Zoom Support group at 11, which I think just made my anxiety worse. Had an appointment with my therapist right after and the panic and anxiety
I was having an okay morning. Not stellar, but OK. Having to put the effort in today to stay in front of the anxiety and was being pretty successful. I had a Zoom Support group at 11, which I think just made my anxiety worse. Had an appointment with my therapist right after and the panic and anxiety
evilspicy
in
Anxiety and Depression Support
4 years ago
Ear Wax Removal
I always get ear wax that needs removing every 2 or 3 years via syringing. I am currently using Olive Oil as a treatment in view of COVID. Any recommendations as to whether Bicarbonate or Peroxide off the shelf treatments are any better?
I always get ear wax that needs removing every 2 or 3 years via syringing. I am currently using Olive Oil as a treatment in view of COVID. Any recommendations as to whether Bicarbonate or Peroxide off the shelf treatments are any better?
RobertCLL
in
British Tinnitus Association
4 years ago
Thyroid question
Thyroid question I got tinnitus in one ear from micro suction for ear wax removal and I the other ear from using Otomize ear drops. Both things occurred in a couple of days. I have heard about the thyroid causing tinnitus problems. Do you think my thyroid could be involved also or am I complicating
Thyroid question I got tinnitus in one ear from micro suction for ear wax removal and I the other ear from using Otomize ear drops. Both things occurred in a couple of days. I have heard about the thyroid causing tinnitus problems. Do you think my thyroid could be involved also or am I complicating
Suzysunday
in
British Tinnitus Association
4 years ago
Loss of Taste??
Before I was diagnosed in December but had been suffering with jaw/shoulder pain since Oct, my taste buds stopped working. Smell is still okay. Some days I think it is improving, then next day things taste sour/sweet/bitter. Just curious if others have experienced this. Think GCA was lurking but not
Before I was diagnosed in December but had been suffering with jaw/shoulder pain since Oct, my taste buds stopped working. Smell is still okay. Some days I think it is improving, then next day things taste sour/sweet/bitter. Just curious if others have experienced this. Think GCA was lurking but not
jarn
in
PMRGCAuk
4 years ago
5 Day Spike
Hi Everyone, At the moment I am 5 days in a bad Tinnitus spike and not getting any quieter, everything I try, breathing exercise, going for a walk, diy, music masking, etc, nothing will make it better. No stress, no health issues, never had a bad spike for more than 5 days, no point in contacting GP
Hi Everyone, At the moment I am 5 days in a bad Tinnitus spike and not getting any quieter, everything I try, breathing exercise, going for a walk, diy, music masking, etc, nothing will make it better. No stress, no health issues, never had a bad spike for more than 5 days, no point in contacting GP
bantams
in
Tinnitus UK
4 years ago
Thyroid removed, questioning Levothyroxine
Hi, I’m new to the forum, thank you for sharing it has given me hope in finding my way through with what am starting to believe what might be a problem with my Levothyroxine medication I had full thyroid removal in June of 20014 and had another return operation in 2015 to remove infected lymph nodes
Hi, I’m new to the forum, thank you for sharing it has given me hope in finding my way through with what am starting to believe what might be a problem with my Levothyroxine medication I had full thyroid removal in June of 20014 and had another return operation in 2015 to remove infected lymph nodes
dandiliontilt
in
Thyroid UK
4 years ago
sudden onset ear fullness and hearing loss
Hi everyone, having a bit of a panic and would like to ask your advice. I'm 52 and have had tinnitus in my left ear for many years. I have noticed over the last few months that I think its starting in my right ear also (hard to tell sometimes). However today I get up feeling fine and then at lunchtime
Hi everyone, having a bit of a panic and would like to ask your advice. I'm 52 and have had tinnitus in my left ear for many years. I have noticed over the last few months that I think its starting in my right ear also (hard to tell sometimes). However today I get up feeling fine and then at lunchtime
queridalady
in
British Tinnitus Association
4 years ago
Crippling low back pain
I am at a breaking point emotionally from the pain I am in and have experienced. I don’t know what to do. I have had back pain my entire life but this is unlike anything before. I am 27 I have been a bartender/server since I was 16. I recently had to stop bartending due to covid effecting income and
I am at a breaking point emotionally from the pain I am in and have experienced. I don’t know what to do. I have had back pain my entire life but this is unlike anything before. I am 27 I have been a bartender/server since I was 16. I recently had to stop bartending due to covid effecting income and
HuskyMom93
in
Chronic Myofascial Pain
4 years ago
my first ivf ... Tips for success
Hello everyone! Thank you for your support, I do appreciate it. Now, after several IUIs, we are going to give IVF a try. This is my first ivf. I don’t know anyone else who has done it, so I don’t have anyone to ask. I am constantly on the internet looking for dos, don’ts and tips. So far we have:
Hello everyone! Thank you for your support, I do appreciate it. Now, after several IUIs, we are going to give IVF a try. This is my first ivf. I don’t know anyone else who has done it, so I don’t have anyone to ask. I am constantly on the internet looking for dos, don’ts and tips. So far we have:
Loretti
in
Fertility Network UK
4 years ago
When others don't undertsnd
I was undiagnosed for 20 years. I knew I was ill, properly ill. With something. And yet I was still naive enough in those days to believe that the doctors must be right and that I was imaging myself to have 'all sorts of dire medical conditions' as my spring chicken of a GP, barely out of medical school
I was undiagnosed for 20 years. I knew I was ill, properly ill. With something. And yet I was still naive enough in those days to believe that the doctors must be right and that I was imaging myself to have 'all sorts of dire medical conditions' as my spring chicken of a GP, barely out of medical school
Lindle
in
Endometriosis UK
4 years ago
First Clomid cycle failed 😞
I waited all summer to start Clomid, but I couldn’t because I had to do the vaccine for the Rubella and I also had an infection. In the summer when I couldn’t ttc I did acupuncture and ovulated naturally. Just typical! This month I took 50mg Clomid on day 2-6 of the cycle and had no side effects at
I waited all summer to start Clomid, but I couldn’t because I had to do the vaccine for the Rubella and I also had an infection. In the summer when I couldn’t ttc I did acupuncture and ovulated naturally. Just typical! This month I took 50mg Clomid on day 2-6 of the cycle and had no side effects at
FrancyItaly
in
Fertility Network UK
4 years ago
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