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Nicotinamide Treatment
A month ago some of you (and me) started to take nicotinamide mononucleotide to halt glaucoma progression and maybe improve vision, as was reported in a trial in Australia. Has anyone as yet seen any difference or improvement? I am not sure if my situation is better but it does feel different with some
A month ago some of you (and me) started to take nicotinamide mononucleotide to halt glaucoma progression and maybe improve vision, as was reported in a trial in Australia. Has anyone as yet seen any difference or improvement? I am not sure if my situation is better but it does feel different with some
blackdog76
in
Glaucoma UK
2 years ago
The PSP-CBD Ice Cream Challenge Day 6
The PSP-CBD Ice Cream Challenge 2022 Day 6 - Sugar Shack - BANG BANG BABY Base - softened French Vanilla ice cream Log Shack - Chocolate Finger biscuits (licked clean) Maple Creme Maple Trees Graham Wafer roof with marshmallow snow Milk chocolate poles, fire pot and chocolate finger biscuits logs
The PSP-CBD Ice Cream Challenge 2022 Day 6 - Sugar Shack - BANG BANG BABY Base - softened French Vanilla ice cream Log Shack - Chocolate Finger biscuits (licked clean) Maple Creme Maple Trees Graham Wafer roof with marshmallow snow Milk chocolate poles, fire pot and chocolate finger biscuits logs
daddyt
in
PSP Association
2 years ago
A bit of drama on Besremi
(there's a sort of survey question near the end) I've been on it for 3 months now. From starting dose of 50mcg for HU transition my dose last week was ~110. -That evening I had high sensitivity to light, looking at the overhead kitchen light was nearly like looking at the sun. Even the white sink
(there's a sort of survey question near the end) I've been on it for 3 months now. From starting dose of 50mcg for HU transition my dose last week was ~110. -That evening I had high sensitivity to light, looking at the overhead kitchen light was nearly like looking at the sun. Even the white sink
EPguy
in
MPN Voice
2 years ago
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Tested low oxalate diet - No effect on my RLS - Tired of hearing about dietary "cause" of RLS
After hearing a lot of good comments for low oxalate diet, I decided to give it a try. I figured it was worth trying since I'm normally a vegetarian and I eat some of the worst offenders of the low oxalate diet in great quantities (a lot of almonds & peanuts as well as cocoa in my morning smoothie).
After hearing a lot of good comments for low oxalate diet, I decided to give it a try. I figured it was worth trying since I'm normally a vegetarian and I eat some of the worst offenders of the low oxalate diet in great quantities (a lot of almonds & peanuts as well as cocoa in my morning smoothie).
GuillaumeL
in
Restless Legs Syndrome
2 years ago
Selenium Metabolism and Biosynthesis of Selenoproteins in the Human Body
A surprisingly readable and potentially helpful review of selenium in humans. (So far, I have only given it a cursory read.) Yes - some bits are difficult but the narrative seems to make sense even if we have to pass over some detail. For those of us in the UK, it is a shame that they did
A surprisingly readable and potentially helpful review of selenium in humans. (So far, I have only given it a cursory read.) Yes - some bits are difficult but the narrative seems to make sense even if we have to pass over some detail. For those of us in the UK, it is a shame that they did
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Mathematical analysis of T4/T3 dosing
This upcoming paper is joined with ours in the same edition of Frontiers.
[u]However, do not judge it on a personal level. [/u]It simply shows, against different situations, a general
trend which either supports or does not the use of combined therapy. It indicates optimum dosing
This upcoming paper is joined with ours in the same edition of Frontiers.
[u]However, do not judge it on a personal level. [/u]It simply shows, against different situations, a general
trend which either supports or does not the use of combined therapy. It indicates optimum dosing
diogenes
in
Thyroid UK
2 years ago
Relapsing Polychondritis
Methotrexate and/or Prednisolone side effects? Anyone experiencing tremors with either of these drugs? Unusual hand tremor started in right hand after 3 or 4 weeks of 5mg Prednisolone. When the drug was stopped the tremor stopped. When the drug was re-started for increased symptoms, at a higher dose
Methotrexate and/or Prednisolone side effects? Anyone experiencing tremors with either of these drugs? Unusual hand tremor started in right hand after 3 or 4 weeks of 5mg Prednisolone. When the drug was stopped the tremor stopped. When the drug was re-started for increased symptoms, at a higher dose
NorfolkWife
in
PMRGCAuk
2 years ago
Still tired?
I take 150 mg of Pregabalin for PLMD and with carefully watching food/drink triggers my PLMD is pretty much taken care of (going on 3 years). I thought the reason I still suffered from daytime sedation was the side effect of the Pregabalin (even though the 1/2 life isn't that long and I take it at 7pm
I take 150 mg of Pregabalin for PLMD and with carefully watching food/drink triggers my PLMD is pretty much taken care of (going on 3 years). I thought the reason I still suffered from daytime sedation was the side effect of the Pregabalin (even though the 1/2 life isn't that long and I take it at 7pm
wantokporo
in
Restless Legs Syndrome
2 years ago
EMDR
Has anyone tried EMDR Therapy for PTSD? Would like to hear your experiences and how it was in the beginning, did you get better?
Has anyone tried EMDR Therapy for PTSD? Would like to hear your experiences and how it was in the beginning, did you get better?
Ali500
in
Anxiety and Depression Support
2 years ago
Pseudoxanthoma Elasticum
Hi I was wondering if anyone else on here has this condition? It causes macular degeneration which is not age related. I have just had my first eye bleeds at age 51 and there is little information out there about treatment options and outcomes. I would love to hear from any other PiXiEs out there
Hi I was wondering if anyone else on here has this condition? It causes macular degeneration which is not age related. I have just had my first eye bleeds at age 51 and there is little information out there about treatment options and outcomes. I would love to hear from any other PiXiEs out there
Shellyshell22
in
Macular Society
2 years ago
Trab waiting list and a few questions about Trab and NTG
I posted a month ago about the turn round of my diagnosis from a new doctor. I just had another exam and consultation with two more doctors. They are unanimous about the necessity of a trab, and very quickly. -otherwise, blindness, they spelled out. The doctor said my optic nerves are thin and in bad
I posted a month ago about the turn round of my diagnosis from a new doctor. I just had another exam and consultation with two more doctors. They are unanimous about the necessity of a trab, and very quickly. -otherwise, blindness, they spelled out. The doctor said my optic nerves are thin and in bad
charles555
in
Glaucoma UK
2 years ago
Hi there (newbie)
Well, here I am led in the bath…..at 00:09am! And I’m utterly shattered for these regular (nightly) twilight baths to help my legs from constantly moving in the bed, no matter what my ‘sleeping’ position (sleep, what was that again?). My restless legs joined my body a couple of years ago but would annoy
Well, here I am led in the bath…..at 00:09am! And I’m utterly shattered for these regular (nightly) twilight baths to help my legs from constantly moving in the bed, no matter what my ‘sleeping’ position (sleep, what was that again?). My restless legs joined my body a couple of years ago but would annoy
simplysal
in
Restless Legs Syndrome
2 years ago
Steroid eye drops
Do most people with glaucoma that have a cataract operation have their steroid eye drops tapered off after using them four times a day for two weeks.I am really worried as I have been told by the consultant not to do this to carry on four times a day for another two weeks . I would be very grateful to
Do most people with glaucoma that have a cataract operation have their steroid eye drops tapered off after using them four times a day for two weeks.I am really worried as I have been told by the consultant not to do this to carry on four times a day for another two weeks . I would be very grateful to
booktwo
in
Glaucoma UK
2 years ago
Another Change Of Meds
Hi warriors 💜💙 I'm in bad flare mode at the moment and my rheumy is changing my meds again. Stopping adalimumab injections (stopped methotrexate a while back) and they're trying me on Filgotinib Jyseleca 🤪 One good thing.. I'm on steroids for a while until things settle down 😁 Does anyone have a
Hi warriors 💜💙 I'm in bad flare mode at the moment and my rheumy is changing my meds again. Stopping adalimumab injections (stopped methotrexate a while back) and they're trying me on Filgotinib Jyseleca 🤪 One good thing.. I'm on steroids for a while until things settle down 😁 Does anyone have a
EnglishRose63
in
NRAS
2 years ago
Ropinirole Reduction
Hello, some advise needed please. I have been trying to reduce my Ropinirole dose from 2mg to 1.5 mg for the past 3 weeks. For the first few nights all was well but this didn’t last long as the RLS kicked in again. I used to use Ropinirole before I augmented, then went to Pramipexole and I seem to
Hello, some advise needed please. I have been trying to reduce my Ropinirole dose from 2mg to 1.5 mg for the past 3 weeks. For the first few nights all was well but this didn’t last long as the RLS kicked in again. I used to use Ropinirole before I augmented, then went to Pramipexole and I seem to
21years
in
Restless Legs Syndrome
2 years ago
Update eye issues, MS issues and any reflections
I previously reported some eye issues in early March for an epiretinal membrane surgery (Dec 21 )that was supposed to help my vision be clearer, but it worsened. In March 22eye surgeon said surgery well healed, "brain not talking to eyes" and suggested immediate visit with neuro. MRi finally done April
I previously reported some eye issues in early March for an epiretinal membrane surgery (Dec 21 )that was supposed to help my vision be clearer, but it worsened. In March 22eye surgeon said surgery well healed, "brain not talking to eyes" and suggested immediate visit with neuro. MRi finally done April
Brindisi1
in
My MSAA Community
2 years ago
Missed Ropinirole Doses
Yep, I'm still on it, don't ask! BUT, I've had food poisoning and missed three doses - Friday, Saturday and Sunday. I've woken up this morning feeling like I've been hit over the head with a sledgehammer. I thought it would be fine to resume taking it at my normal time tonight (Monday) but a quick search
Yep, I'm still on it, don't ask! BUT, I've had food poisoning and missed three doses - Friday, Saturday and Sunday. I've woken up this morning feeling like I've been hit over the head with a sledgehammer. I thought it would be fine to resume taking it at my normal time tonight (Monday) but a quick search
RVC_Hants
in
Restless Legs Syndrome
2 years ago
Overlapping Hydroxycarbamide with Pegasys
I’m 57, living in the USA, and have CalR mutated ET. I took hydoxycarbamide for 8 years at an average of 750 mg per day which kept the platelet count to between 850-950,000. I was happy with that because I didn’t notice any side effects. Then, about 18 months ago, the hydoxycarbamide became less effective
I’m 57, living in the USA, and have CalR mutated ET. I took hydoxycarbamide for 8 years at an average of 750 mg per day which kept the platelet count to between 850-950,000. I was happy with that because I didn’t notice any side effects. Then, about 18 months ago, the hydoxycarbamide became less effective
LongETinUS
in
MPN Voice
2 years ago
Problems with Eylea injection
My husband had an eylea injection Feb 14, 2022 and a day later he lost all vision in the eye..........he experienced an eye infection that took away his vision. Has any one else had this happen?
My husband had an eylea injection Feb 14, 2022 and a day later he lost all vision in the eye..........he experienced an eye infection that took away his vision. Has any one else had this happen?
bruno5485
in
Macular Society
2 years ago
Lexapro withdrawal symptoms
Anyone have experience with weaning off lexapro as it is antagonst for RLS. I have cut dose in half to 5 mg and have been doing that for 3 weeks. I will continue the cut back to 5 mg every other day and keeping fingers crossed I can move on without an antidepresssant anymore. I have experienced a myriad
Anyone have experience with weaning off lexapro as it is antagonst for RLS. I have cut dose in half to 5 mg and have been doing that for 3 weeks. I will continue the cut back to 5 mg every other day and keeping fingers crossed I can move on without an antidepresssant anymore. I have experienced a myriad
Hidden
in
Restless Legs Syndrome
2 years ago
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