Pseudoxanthoma Elasticum

[Shellyshell22]

Hi I was wondering if anyone else on here has this condition? It causes macular degeneration which is not age related. I have just had my first eye bleeds at age 51 and there is little information out there about treatment options and outcomes. I would love to hear from any other PiXiEs out there

[Kelly_macularsociety Partner]

Good afternoon Shellyshell22,

If you don't get a response from any other PiXiEs on here you could try posting on our working age & young people group on Facebook, I'll put the link to this group below:

facebook.com/groups/2516963...

Warm wishes,

Kelly

Kelly Ephgrave

Advice and Information Service Administrator

Macular Society

Tel [phone]

macularsociety.org