Hi I was wondering if anyone else on here has this condition? It causes macular degeneration which is not age related. I have just had my first eye bleeds at age 51 and there is little information out there about treatment options and outcomes. I would love to hear from any other PiXiEs out there
Pseudoxanthoma Elasticum: Hi I was wondering... - Macular Society
Pseudoxanthoma Elasticum
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Shellyshell22
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Kelly_macularsocietyPartner
Good afternoon Shellyshell22,
If you don't get a response from any other PiXiEs on here you could try posting on our working age & young people group on Facebook, I'll put the link to this group below:
facebook.com/groups/2516963...
Warm wishes,
Kelly
Kelly Ephgrave
Advice and Information Service Administrator
Macular Society
Tel 0300 3030111
macularsociety.org
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