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Thiamine Tetrahydrofurfuryl Disulfide (TTFD) requires methylation
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
Gcf51
in
Cure Parkinson's
2 years ago
Traveling with Pegasys on airplane.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
JeanieRN
in
MPN Voice
2 years ago
Any eye problems?
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems haven’t gone away so I’ve persuaded
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems haven’t gone away so I’ve persuaded
MarybellM
in
MPN Voice
2 years ago
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THC O- a 1 person mini experiment
I got my THC O in the mail last Monday and have taken it all week. Here are my personal conclusions. Keep in mind this is just my experience. It may differ for others. DOES IT WORK: Yes. It seems to have the same efficacy, mg to mg, as normal THC. WOULD I RECOMMEND IT: No. Not if you have other options
I got my THC O in the mail last Monday and have taken it all week. Here are my personal conclusions. Keep in mind this is just my experience. It may differ for others. DOES IT WORK: Yes. It seems to have the same efficacy, mg to mg, as normal THC. WOULD I RECOMMEND IT: No. Not if you have other options
Guitarpickin
in
Restless Legs Syndrome
2 years ago
Sleep Tracker Recommendations?
Hi all, I'm 53 and have had severe refractory RLS and PLMD for over 30 years now. As you can imagine, or probably know yourself, lack of sleep has been a nightmare for a long time. I'm looking for recommendations for sleep trackers as my doctors want to know when and how long I sleep. Because of the
Hi all, I'm 53 and have had severe refractory RLS and PLMD for over 30 years now. As you can imagine, or probably know yourself, lack of sleep has been a nightmare for a long time. I'm looking for recommendations for sleep trackers as my doctors want to know when and how long I sleep. Because of the
Rezcat11
in
Restless Legs Syndrome
2 years ago
Glaucoma, Migraine, Anxiety & Depression : My Story
Hi. First of all this post is not an advert or a recommendation. It is just my Story and an opportunity for me to share my experiences in the hope that some good will come out of the last two years. My sincere wish is that something in my story will help someone that is reading this. Whether that is
Hi. First of all this post is not an advert or a recommendation. It is just my Story and an opportunity for me to share my experiences in the hope that some good will come out of the last two years. My sincere wish is that something in my story will help someone that is reading this. Whether that is
Royrace
in
Glaucoma UK
2 years ago
Cancelled surgery
I've just found out they have cancelled my planned surgery for the second time. This time not even bothering to give me an alternative date I have angle closure glaucoma. Because of COVID, it was already advanced in my right eye when diagnosed. I was on max drop (x3) and oral diamox, it having been
I've just found out they have cancelled my planned surgery for the second time. This time not even bothering to give me an alternative date I have angle closure glaucoma. Because of COVID, it was already advanced in my right eye when diagnosed. I was on max drop (x3) and oral diamox, it having been
Efabear
in
Glaucoma UK
2 years ago
16 and been diagnosed with lupus
My son was diagnosed with lupus last year December. I feel so sorry for him he’s suffering with a lot of pain in fingers. I never knew that at the age of 16 you could get lupus. I was 38 when I was diagnosed.
My son was diagnosed with lupus last year December. I feel so sorry for him he’s suffering with a lot of pain in fingers. I never knew that at the age of 16 you could get lupus. I was 38 when I was diagnosed.
djsema
in
LUPUS UK
2 years ago
Tramadol + Gabapentin
I have been on 100mg Tramadol and 1200mg Gabapentin for about 8 years now (after all the DA’s and augmentation). This last year getting up once or twice a night has turned into 3+ times and some very bad evenings and I believe I have reached tolerance in Tramadol. I won’t increase above 100mg as I fear
I have been on 100mg Tramadol and 1200mg Gabapentin for about 8 years now (after all the DA’s and augmentation). This last year getting up once or twice a night has turned into 3+ times and some very bad evenings and I believe I have reached tolerance in Tramadol. I won’t increase above 100mg as I fear
John_naylor
in
Restless Legs Syndrome
2 years ago
Anyone get chorea with aps?
Just wondering if anyone gets chorea with their aps? I haven't been diagnosed yet waiting for my 2nd test. I have been having these weird facial tics and arm/hand movements, usually followed by a seizure. Its just battling whsts happening to me. Then when I test positive for b2 glycoprotein and thought
Just wondering if anyone gets chorea with their aps? I haven't been diagnosed yet waiting for my 2nd test. I have been having these weird facial tics and arm/hand movements, usually followed by a seizure. Its just battling whsts happening to me. Then when I test positive for b2 glycoprotein and thought
Charts
in
Hughes Syndrome APS Forum
2 years ago
RLS and Mono (Epstein-Barr virus), any correlation?
Hi all, I'm testing an hypothesis about RLS and mono today. Short story, I had mono symptoms for months about two years go. I tested reactive for EBV VCA IgG EIA (mono) twice over a few months period. It eventually got better, but I still get those same symptoms randomly for a few days or a week at
Hi all, I'm testing an hypothesis about RLS and mono today. Short story, I had mono symptoms for months about two years go. I tested reactive for EBV VCA IgG EIA (mono) twice over a few months period. It eventually got better, but I still get those same symptoms randomly for a few days or a week at
GuillaumeL
in
Restless Legs Syndrome
2 years ago
What else is available?
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
27-359
in
My Ovacome
2 years ago
Almost 18 years walking alone with no diagnosis to my vocal tic disorder.
Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication. Then finding you guys, people who
Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication. Then finding you guys, people who
DarkBlackberry
in
Functional Neurological Disorder - FND Hope
2 years ago
Drooling/Botox/dry mouth
Drooling: I had Botox injections in my salivary glands to reduce drooling. I now have extreme dry mouth (cotton mouth). Supposedly takes months to wear off. The cotton mouth is more bothersome than the drooling. Has anyone experience this?
Drooling: I had Botox injections in my salivary glands to reduce drooling. I now have extreme dry mouth (cotton mouth). Supposedly takes months to wear off. The cotton mouth is more bothersome than the drooling. Has anyone experience this?
Gcf51
in
Cure Parkinson's
2 years ago
Flash backs covid pneumonitis
Hi I’m nearly 6 months post ventilation from covid pneumonitis and the flash backs are now giving me bad panic attacks this is the worst I’ve ever been, I’m waiting for councilling due to start in 3 weeks had anyone get any coping tips that I could possibly try to stop or not be so bad with the flashbacks
Hi I’m nearly 6 months post ventilation from covid pneumonitis and the flash backs are now giving me bad panic attacks this is the worst I’ve ever been, I’m waiting for councilling due to start in 3 weeks had anyone get any coping tips that I could possibly try to stop or not be so bad with the flashbacks
Nala8573
in
ICUsteps
2 years ago
Happy World Lupus Day
Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham Palace probably getting excited at the Queen's forthcoming Platinum Jubilee!. I do hope you enjoy them too. Hope your all as well as possible and
Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham Palace probably getting excited at the Queen's forthcoming Platinum Jubilee!. I do hope you enjoy them too. Hope your all as well as possible and
misty14
in
LUPUS UK
2 years ago
Fatigue after cataract surgery.
I had my first cataract operated on on 14th April. On 5mgs pred for PMR. (Diagnosed September 2020.) Since then I've been very tired, with "heavy" legs, but no other PMR symptoms. As my sight is now very "imbalanced" until I get my new specs, is it likely that the fatigue is caused by my brain
I had my first cataract operated on on 14th April. On 5mgs pred for PMR. (Diagnosed September 2020.) Since then I've been very tired, with "heavy" legs, but no other PMR symptoms. As my sight is now very "imbalanced" until I get my new specs, is it likely that the fatigue is caused by my brain
Grannymiaow
in
PMRGCAuk
2 years ago
First taper
New PMR diagnosis here, learning so much from this group. Thank you all. I’ve been taking Prednisone at 25mg for almost 4 weeks now and will be starting a taper soon. I started on 15, with welcomed but only partial symptom relief (? maybe 50%, lasting 1/2 the time to next dose). Dose was then increased
New PMR diagnosis here, learning so much from this group. Thank you all. I’ve been taking Prednisone at 25mg for almost 4 weeks now and will be starting a taper soon. I started on 15, with welcomed but only partial symptom relief (? maybe 50%, lasting 1/2 the time to next dose). Dose was then increased
Egunon
in
PMRGCAuk
2 years ago
Emergency eye problems - urgent local services
https://primaryeyecare.co.uk/services/urgent-eyecare-service/ While looking stuff up for a post about eye problems to day I found this urgent care service for eye problems. "What is the Urgent Eyecare Service? The Urgent Eyecare Service (UES) provides urgent assessment, treatment or referral for sudden
https://primaryeyecare.co.uk/services/urgent-eyecare-service/ While looking stuff up for a post about eye problems to day I found this urgent care service for eye problems. "What is the Urgent Eyecare Service? The Urgent Eyecare Service (UES) provides urgent assessment, treatment or referral for sudden
PMRpro
Ambassador
in
PMRGCAuk
2 years ago
Slowly withdrawing from Pramipexole
For cutting down my use of pramipexole,, I'm not sure what route to follow - cannabis, gabapentin & tramadol, methadone etc., etc. but I now know that I have to do something to get off it, yet there are so many things to consider. I first got to EARLS by searching for info. on Iron, since my GP
For cutting down my use of pramipexole,, I'm not sure what route to follow - cannabis, gabapentin & tramadol, methadone etc., etc. but I now know that I have to do something to get off it, yet there are so many things to consider. I first got to EARLS by searching for info. on Iron, since my GP
RestlessC
in
Restless Legs Syndrome
2 years ago
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