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Moon Face!!!
I'm reading up as much as i can on PMR & was rather worried to read that a condition called moon face can occur where fat deposits go to the face making it swollen and round . Has anyone had this problem? I have just started 15 mg of prednisone is this classed as high dosage many
I'm reading up as much as i can on PMR & was rather worried to read that a condition called moon face can occur where fat deposits go to the face making it swollen and round . Has anyone had this problem? I have just started 15 mg of prednisone is this classed as high dosage many
rachelbell
in
PMRGCAuk
2 years ago
Go back on Pramaprexol?
I was on Miropex/Pramaprexol for 15 years for RLS until I augmented late 2021. I phased out the Pramapexol slowly as recommended by this site and Mayo Clinic(complete hell),as I began Gabapentin. I hated the side effects so switched to Pregabalin,which I also hated. I now take 100 MG of Tramadol
I was on Miropex/Pramaprexol for 15 years for RLS until I augmented late 2021. I phased out the Pramapexol slowly as recommended by this site and Mayo Clinic(complete hell),as I began Gabapentin. I hated the side effects so switched to Pregabalin,which I also hated. I now take 100 MG of Tramadol
SteveWess
in
Restless Legs Syndrome
2 years ago
One year Couch to 5k Runniversary
Just a quick post (hopefully, during lunch break), Sunday 24th was a year since I graduated from c25k. I couldn't really mark it as following a half marathon training plan that scheduled just a15 min recovery run and I want change because I had a 10k event yesterday. So, I marked that run as the anniversary
Just a quick post (hopefully, during lunch break), Sunday 24th was a year since I graduated from c25k. I couldn't really mark it as following a half marathon training plan that scheduled just a15 min recovery run and I want change because I had a 10k event yesterday. So, I marked that run as the anniversary
Freecloud
Graduate
in
Couch to 5K
2 years ago
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Myopic macular degeneration
Hi all. After treatment (18 months and 10 Lucentis injections) for what I’d assumed was ‘age related’ MD, a consultant today told me, no, it was ‘myopic’ MD. I’ve always (since teens) been extremely short sighted so maybe no surprise there. Has anyone else been diagnosed with ‘myopic’ MD and, if so
Hi all. After treatment (18 months and 10 Lucentis injections) for what I’d assumed was ‘age related’ MD, a consultant today told me, no, it was ‘myopic’ MD. I’ve always (since teens) been extremely short sighted so maybe no surprise there. Has anyone else been diagnosed with ‘myopic’ MD and, if so
Fuzzbox100
in
Macular Society
2 years ago
What's this in my RPE after Eyleas injections?
Had CNV/AMD in left eye 2016, didn't know if I could hold still for injections, hence no central vision in that eye. CNV/AMD started in right eye in January 2018. No choice about going for injections. Had injections until March 2020 when oedema stopped. The small bump in my RPE, as in the first of my
Had CNV/AMD in left eye 2016, didn't know if I could hold still for injections, hence no central vision in that eye. CNV/AMD started in right eye in January 2018. No choice about going for injections. Had injections until March 2020 when oedema stopped. The small bump in my RPE, as in the first of my
ironbrain
in
Macular Society
2 years ago
sensitive feet?
Does anyone else have really sensitive feet.?It's happened this last year. It hurts to wear shoes. The softest shoes cause bruises or blisters after just a short while. I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or pilocarpine. I'm early fifties so it can't
Does anyone else have really sensitive feet.?It's happened this last year. It hurts to wear shoes. The softest shoes cause bruises or blisters after just a short while. I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or pilocarpine. I'm early fifties so it can't
dg70
in
LUPUS UK
2 years ago
Prednisone and CSR - wondering about the connection
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Sunnyday365
in
PMRGCAuk
2 years ago
buprenorphine for RLS
I have been trying doses of suboxone for RLS. for some people it is magic that gives them there life back. I took all the way up to 8 mg and it didn’t do much 🫤 I don’t get it. We are more experts than the doctors so my question is, does anyone have any clue why 8 mg of buprenorphine would not
I have been trying doses of suboxone for RLS. for some people it is magic that gives them there life back. I took all the way up to 8 mg and it didn’t do much 🫤 I don’t get it. We are more experts than the doctors so my question is, does anyone have any clue why 8 mg of buprenorphine would not
RC723
in
Restless Legs Syndrome
2 years ago
Connecting with someone with similar diagnoses
I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome
I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome
Led_zepplin
in
The Australian Sjögren's Syndrome Association
2 years ago
Dangers of treatment for mild symptoms
Hello all. My PET scan showed evidence of PMR and my rheumatologist wants me to go onto steroids although I have very little pain or stiffness at present. This is to guard against GCA. If I understood her correctly the options include local injections and Depo Medrone. The rheumatologist also mentioned
Hello all. My PET scan showed evidence of PMR and my rheumatologist wants me to go onto steroids although I have very little pain or stiffness at present. This is to guard against GCA. If I understood her correctly the options include local injections and Depo Medrone. The rheumatologist also mentioned
Donaloge
in
PMRGCAuk
2 years ago
Clonazepam
Hi I'm still having a rough time with RLS despite my usual gabapentin and temgesic. My doctor has suggested trying clonazepam in combination with my existing medication and I wondered what experience my fellow sufferers had with it. I've tried other benzo sleeping tablets in the past but the RL always
Hi I'm still having a rough time with RLS despite my usual gabapentin and temgesic. My doctor has suggested trying clonazepam in combination with my existing medication and I wondered what experience my fellow sufferers had with it. I've tried other benzo sleeping tablets in the past but the RL always
puzzler1
in
Restless Legs Syndrome
2 years ago
Just received the full copy of my blood test where I can see my TSI
My TSI is 1.20 (0.00 - 2.00) Does it mean that I ddi not have Graves and RAI is not right treatment for me? Thank you very much for your opinions.
My TSI is 1.20 (0.00 - 2.00) Does it mean that I ddi not have Graves and RAI is not right treatment for me? Thank you very much for your opinions.
femme12000
in
Thyroid UK
2 years ago
Deteriorating eyesight...........
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hidden
in
Macular Society
2 years ago
UTIs & D mannose
I'm currently having recurring infections- 2 different abx in just a few weeks. Due to see yet another gynae in early September re bladder prolapse. Tried D mannose before without success but maybe not taking enough?? Should it be 3 tabs every 3 hours- for how long? Thanks again as usual, Valerie
I'm currently having recurring infections- 2 different abx in just a few weeks. Due to see yet another gynae in early September re bladder prolapse. Tried D mannose before without success but maybe not taking enough?? Should it be 3 tabs every 3 hours- for how long? Thanks again as usual, Valerie
Portobello
in
PMRGCAuk
2 years ago
Bizarre aid in relieving my RLS symptoms
I have suffered severely from RLS for most of my life (I'm now 66). For the last few years I have been prescribed Ropinirole and Pregabalin, although the Pregabalin was stopped at the end of 2021. My symptoms have been unchanged for many years - sensations in legs, arms, shoulders and wrists; generally
I have suffered severely from RLS for most of my life (I'm now 66). For the last few years I have been prescribed Ropinirole and Pregabalin, although the Pregabalin was stopped at the end of 2021. My symptoms have been unchanged for many years - sensations in legs, arms, shoulders and wrists; generally
Niksles
in
Restless Legs Syndrome
2 years ago
Covid and AF
I tested positive with Covid on Saturday and feeling ill. I’ve had AFfor 8 years but luckily only had three bad attacks in the last 6 months.Now I’m getting supraventricular ectopics in long runs which are scary and make me feel I’m going to faint, and then ramp up my heartbeat. The GP knew little aboutAF
I tested positive with Covid on Saturday and feeling ill. I’ve had AFfor 8 years but luckily only had three bad attacks in the last 6 months.Now I’m getting supraventricular ectopics in long runs which are scary and make me feel I’m going to faint, and then ramp up my heartbeat. The GP knew little aboutAF
Janna501
in
AF Association
2 years ago
Comparing two INFs
This is mostly for science nerds, a comparison of the old PEG-Intron (no longer available) to Pegasys, shedding some light on what the Besremi guys are doing with longer dosing intervals. --- A 2004 report in context of hepatitis therapy: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2036.2004.02170
This is mostly for science nerds, a comparison of the old PEG-Intron (no longer available) to Pegasys, shedding some light on what the Besremi guys are doing with longer dosing intervals. --- A 2004 report in context of hepatitis therapy: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2036.2004.02170
EPguy
in
MPN Voice
2 years ago
A recent review of the failings of the currently held model for thyroid treatment
I don't think I've already posted this. This review again sets out the failings of the TSH-T4 dominated model of thyroid therapy and treatment. Open to download Endocrine https://doi.org/10.1007/s12020-021-02851-6 VIEWPOINT Thyroid testing paradigm switch from thyrotropin to thyroidhormones—Future
I don't think I've already posted this. This review again sets out the failings of the TSH-T4 dominated model of thyroid therapy and treatment. Open to download Endocrine https://doi.org/10.1007/s12020-021-02851-6 VIEWPOINT Thyroid testing paradigm switch from thyrotropin to thyroidhormones—Future
diogenes
in
Thyroid UK
2 years ago
Blepharitis and infections
since being on 2 lots of combination drops for my eye pressure I it has reduced . But also dry eye worsened , developed blepharitis now and had to have steroid drops for infection a few time. Is this something others have also experienced? It’s getting me down as a few month don’t seem to go by before
since being on 2 lots of combination drops for my eye pressure I it has reduced . But also dry eye worsened , developed blepharitis now and had to have steroid drops for infection a few time. Is this something others have also experienced? It’s getting me down as a few month don’t seem to go by before
Sufitzy
in
Glaucoma UK
2 years ago
Eye exercises to reduce pressure
Hi everyone, Do any of you do any eye exercises to reduce your eye pressures? I've done some research and found some videos on YouTube about exercises you can do to reduce your eye pressure. Link below: https://www.youtube.com/watch?v=lGWcku_hmGY I've recently been diagnosed with glaucoma
Hi everyone, Do any of you do any eye exercises to reduce your eye pressures? I've done some research and found some videos on YouTube about exercises you can do to reduce your eye pressure. Link below: https://www.youtube.com/watch?v=lGWcku_hmGY I've recently been diagnosed with glaucoma
Mimesy
in
Glaucoma UK
2 years ago
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