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scleritis and rheumatoid arthritis
hi I have had rheumatoid arthritis for five years and scleritis for 1.5 years. I recently started imraldi(bio similar to humira), in feb 2024, after building antibodies to cimzia. since then I have noted small improvements in my joints but my eyes continue to be in a constant flare. Any suggestions
hi I have had rheumatoid arthritis for five years and scleritis for 1.5 years. I recently started imraldi(bio similar to humira), in feb 2024, after building antibodies to cimzia. since then I have noted small improvements in my joints but my eyes continue to be in a constant flare. Any suggestions
Jjj24
in
NRAS
2 months ago
cataract
Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one for years, possibly from a childhood eye injury. It’s now becoming a problem , affecting my sight. It’s Encapsulated, not as straightforward. My main concern is healing. It took a year for my leg to heal. Do you advise
Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one for years, possibly from a childhood eye injury. It’s now becoming a problem , affecting my sight. It’s Encapsulated, not as straightforward. My main concern is healing. It took a year for my leg to heal. Do you advise
Greensleeves
in
PMRGCAuk
2 months ago
Floundering
I have been taking Hydroxy for 10 months but the new Rheumy said my RF had increased so I needed another DMARD as I am unable to take MTX due to a lung condition I opted for Azathioprine which I started yesterday, however my main concern is I have Sjorns
syndrome
which I use
eye
drops daily and a
dry
I have been taking Hydroxy for 10 months but the new Rheumy said my RF had increased so I needed another DMARD as I am unable to take MTX due to a lung condition I opted for Azathioprine which I started yesterday, however my main concern is I have Sjorns
syndrome
which I use
eye
drops daily and a
dry
Wonderfullifeandmore
in
NRAS
2 months ago
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Blood in syringe
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Skyehope
in
MPN Voice
2 months ago
Sjrogens discomfort
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
Love2fish2
in
The Australian Sjögren's Syndrome Association
2 months ago
GCA and Elevation
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
Mooreby
in
PMRGCAuk
2 months ago
b 1 Therapy
Hello fellow readers. My name is Sakina. I am soo confused about the b1 therapy. I have been taking b1 sublingual 100 mg three times in a week under the tongue for quite a while l, but have noticed no difference. So now I am taking 100mgs of Thiamine Mononitrate. Which is better Thiamine Hydrochloride
Hello fellow readers. My name is Sakina. I am soo confused about the b1 therapy. I have been taking b1 sublingual 100 mg three times in a week under the tongue for quite a while l, but have noticed no difference. So now I am taking 100mgs of Thiamine Mononitrate. Which is better Thiamine Hydrochloride
Springbreak
in
Cure Parkinson's
3 months ago
Safe eye makeup
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
Marocean
in
Glaucoma UK
3 months ago
Eye Supplement Concern
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Mishie14
in
MPN Voice
3 months ago
Mixed messages
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Lancashirelass07
in
Glaucoma UK
3 months ago
cataract surgery
hi - I am healthy & 65. Very myopic (-10 & -9) with glaucoma in left eye). I have just dropped below DVLA driving limit so consultant is recommending cataract surgery in both eyes (NHS). My question is would it be worth it in terms of quality of vision improvement to go private as I understand that various
hi - I am healthy & 65. Very myopic (-10 & -9) with glaucoma in left eye). I have just dropped below DVLA driving limit so consultant is recommending cataract surgery in both eyes (NHS). My question is would it be worth it in terms of quality of vision improvement to go private as I understand that various
t55ddy
in
Glaucoma UK
3 months ago
Dark shadows from glaucoma eye drops
Hi I was diagnosed almost 3 yrs ago and simply handed a leaflet and a prescription. I now have to use them 3 times a day as the pressure has worsened.The dark shadows in my eye sockets now look so bad, although I did read about this I have never been told if there is an alternative. The nurse at the
Hi I was diagnosed almost 3 yrs ago and simply handed a leaflet and a prescription. I now have to use them 3 times a day as the pressure has worsened.The dark shadows in my eye sockets now look so bad, although I did read about this I have never been told if there is an alternative. The nurse at the
doileyqueen
in
Glaucoma UK
3 months ago
Rituximab and Denosumab
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Jacko37
in
NRAS
3 months ago
Informing DVLA
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Ideogram
in
Headway
5 months ago
Sjorgren syndrome
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Pippapot
in
MPN Voice
3 months ago
Puffy eyes
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Lucylou72
in
LUPUS UK
3 months ago
Dry Eye Webinar
Hello everyone, I wanted to let you all know about our next Digital Glaucoma Support Group - this session will be discussing Dry Eye. This is a topic that is often requested when we ask for topic suggestions, and we get lots of phone calls to the Glaucoma UK helpline about Dry Eye. This is your chance
Hello everyone, I wanted to let you all know about our next Digital Glaucoma Support Group - this session will be discussing Dry Eye. This is a topic that is often requested when we ask for topic suggestions, and we get lots of phone calls to the Glaucoma UK helpline about Dry Eye. This is your chance
Robyn_GlaucomaUK
in
Glaucoma UK
3 months ago
Clonidine - success with RLS anyone?
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Heatherandgorse
in
Restless Legs Syndrome
5 months ago
Faricimab injections and exercise
I’ve just been diagnosed with wet AMD R eye - my long sighted eye I used to use for driving - sadly no more - and dry AMD L eye (shortsighted) After each injection we are instructed to not do a variety of things including physical exertion for 5 days. No one has yet explained why no exertion and what
I’ve just been diagnosed with wet AMD R eye - my long sighted eye I used to use for driving - sadly no more - and dry AMD L eye (shortsighted) After each injection we are instructed to not do a variety of things including physical exertion for 5 days. No one has yet explained why no exertion and what
Birchermu
in
Macular Society
3 months ago
Efficacy of Trihexyphenidyl on Apraxia of Eyelid Opening in Parkinsonism: A Case Report
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Farooqji
in
Cure Parkinson's
5 months ago
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