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Some good news
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Trish8433
in
Restless Legs Syndrome
8 months ago
No more spaghetti or jelly legs!
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
Mark1499
in
My MSAA Community
9 months ago
cateract surgery
Hello: I’m a little worried about having cateract surgery as I like most have tremor or dyskinesia. The doctor asked could I be still. Funny. Anyone experience this? Any thoughts? Thanks.
Hello: I’m a little worried about having cateract surgery as I like most have tremor or dyskinesia. The doctor asked could I be still. Funny. Anyone experience this? Any thoughts? Thanks.
Ep0522
in
Cure Parkinson's
9 months ago
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Who has had cataract surgery with a bleb?
So as is the way with this condition, you cruise for a while then your eyes decide they do not wish to play ball! So basically I’ve been noticing a decrease in clarity with my right eye. The Glaucoma clinic doesn’t think I’m an urgent case so I’m waiting till November where I will see a nurse 😒.
So as is the way with this condition, you cruise for a while then your eyes decide they do not wish to play ball! So basically I’ve been noticing a decrease in clarity with my right eye. The Glaucoma clinic doesn’t think I’m an urgent case so I’m waiting till November where I will see a nurse 😒.
Vich81
in
Glaucoma UK
9 months ago
reversal of approval
Ihave been on Buprenorphine for two and a half month and doing well. I was able to stop the Pramipexol. All of a sudden, the pharmacy says it can’t refill it as it doesn’t carry an indication for RLS.. They are Dayi g their pharmacist made a mistake. My doctor has spoken to them and they are demanding
Ihave been on Buprenorphine for two and a half month and doing well. I was able to stop the Pramipexol. All of a sudden, the pharmacy says it can’t refill it as it doesn’t carry an indication for RLS.. They are Dayi g their pharmacist made a mistake. My doctor has spoken to them and they are demanding
teakabeagle
in
Restless Legs Syndrome
8 months ago
Haemolysis
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Lottyplum
in
Thyroid UK
10 months ago
Being taking off Pegasys. :( Looking for alternatives
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
JustKeepSw1mming
in
MPN Voice
9 months ago
Requip and Collagen
I have been taking Requip for several years and started taking Collagen last year as I had come off HRTand my hair and nails were in a terrible condition. I seem to remember seeing that taking both was not advised, is that correct? I have gone back on HRT but it has not made any difference.
I have been taking Requip for several years and started taking Collagen last year as I had come off HRTand my hair and nails were in a terrible condition. I seem to remember seeing that taking both was not advised, is that correct? I have gone back on HRT but it has not made any difference.
Brenda48
in
Restless Legs Syndrome
8 months ago
Update
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
Firenze1
in
Restless Legs Syndrome
8 months ago
getting off pramipexole
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
Moretravel1
in
Restless Legs Syndrome
8 months ago
a little drama
I have just reduced to 5mg. And like many others my energy is crashing. So a bit of a roller coaster and trying to plan things so that I don’t have too much excitement all at once! Wednesday my husband was diagnosed with detached retina, yesterday was an hour and a half trip to eye hospital for his
I have just reduced to 5mg. And like many others my energy is crashing. So a bit of a roller coaster and trying to plan things so that I don’t have too much excitement all at once! Wednesday my husband was diagnosed with detached retina, yesterday was an hour and a half trip to eye hospital for his
Alazarin
in
PMRGCAuk
9 months ago
Coming out of a very very long dark tunnel.
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
HipHop1972
in
Restless Legs Syndrome
8 months ago
Augmentation- Report via Yellow Card Scheme
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
Joolsg
in
Restless Legs Syndrome
8 months ago
Bloating - Zoladex/Tibolone
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Bookish_Girl
in
Endometriosis UK
2 months ago
Glaucoma along with advanced AMD (GA stage)
Hi all, I am new to this forum and would like an opinion from the experts here. My father has glaucoma in both eyes and unfortunately, by the time it was diagnosed, his vision in right eyes was 30% remaining only. This was almost 12 yrs back. His left eye was the savior for us so many years till 2018
Hi all, I am new to this forum and would like an opinion from the experts here. My father has glaucoma in both eyes and unfortunately, by the time it was diagnosed, his vision in right eyes was 30% remaining only. This was almost 12 yrs back. His left eye was the savior for us so many years till 2018
VikPa
in
Macular Society
9 months ago
immune system
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
lindyloulou
in
MPN Voice
9 months ago
Psilocybin
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
JustVisiting23
in
Restless Legs Syndrome
8 months ago
Surgery day
OMG, after what seems a long wait my vitrectomy is scheduled for tomorrow. I have to be in hospital at 12:15 !!!!! I’m excited and anxious all at the same time. Relieved that the macular hole is going to be repaired. Not looking forward to posturing though Any advice or tips on how to survive the
OMG, after what seems a long wait my vitrectomy is scheduled for tomorrow. I have to be in hospital at 12:15 !!!!! I’m excited and anxious all at the same time. Relieved that the macular hole is going to be repaired. Not looking forward to posturing though Any advice or tips on how to survive the
Gulfstream_Maggie
in
Macular Society
9 months ago
Side Effects - Ropinirole & Pramipexole
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
PaddyMac1
in
Restless Legs Syndrome
8 months ago
Cloudy Vision after IVOM / Injection
Good day, On Friday, I had my 3rd Vabysmo injection in both my left and right eyes. I'm 28 years old and have been a diabetic for 23 years. My prescription for both eyes is -0.75. During my last appointment four weeks ago, my left eye had 100% vision, while my right eye had 90%. After the procedure
Good day, On Friday, I had my 3rd Vabysmo injection in both my left and right eyes. I'm 28 years old and have been a diabetic for 23 years. My prescription for both eyes is -0.75. During my last appointment four weeks ago, my left eye had 100% vision, while my right eye had 90%. After the procedure
eddys95
in
Macular Society
9 months ago
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