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Dilated cardiomyopathy
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Carnitine
Just some info for those using Carnitine for hyper symptoms. I use it and originally used l carnitine before changing to acetyl. Found both worked well but at a high dose 4000 -4500 mg daily. Less did not stop the palpitations completely. However I am now using an l carnitine product bought on eBay made
Just some info for those using Carnitine for hyper symptoms. I use it and originally used l carnitine before changing to acetyl. Found both worked well but at a high dose 4000 -4500 mg daily. Less did not stop the palpitations completely. However I am now using an l carnitine product bought on eBay made
linnet2014
in
Thyroid UK
10 years ago
Eylea Versus Lucentis.
Do any of you have Eylea injections? only I have read that this Drug lasts longer than Lucentis. & cuts down the need to have the injections as frequently....thank you. Eve.
Do any of you have Eylea injections? only I have read that this Drug lasts longer than Lucentis. & cuts down the need to have the injections as frequently....thank you. Eve.
shi-tzu
in
Macular Society
10 years ago
Does anyone know what's going on with my eye?
I have wet macular degeneration in both eyes since i was 25. So far, i've had a few bleeds so i recognise them and know when i'm having one. But since 2 days ago, i can see a dark-ish spot just to one side of my central vision of my left eye everytime my eye is half-closed as well as closed. The spot
I have wet macular degeneration in both eyes since i was 25. So far, i've had a few bleeds so i recognise them and know when i'm having one. But since 2 days ago, i can see a dark-ish spot just to one side of my central vision of my left eye everytime my eye is half-closed as well as closed. The spot
sywcindy
in
Macular Society
10 years ago
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Should fluid intake be limited when acities is present?
Hi, my husband has cirrhosis & is waiting to be assessed for a transplant. He has acities which he feels is getting worse. He's on spirolactone 100mga daily. I have been encouraging 1 1/2 -2 litres a day but am worried this might be making the acities worse?! Any advice would be much appreciated. Thank
Hi, my husband has cirrhosis & is waiting to be assessed for a transplant. He has acities which he feels is getting worse. He's on spirolactone 100mga daily. I have been encouraging 1 1/2 -2 litres a day but am worried this might be making the acities worse?! Any advice would be much appreciated. Thank
moxoa
in
British Liver Trust
10 years ago
Red flushes and my liver tests, time to stop?
I was quite a heavy drinker in periods over the last 15-20 years up until the end of January this year. Sometimes it was 2-4 times per week, some weeks nothing, sometimes periods of 6-8 weeks or longer without. Generally it was not daily though there were periods of several days in a row. Essentially
I was quite a heavy drinker in periods over the last 15-20 years up until the end of January this year. Sometimes it was 2-4 times per week, some weeks nothing, sometimes periods of 6-8 weeks or longer without. Generally it was not daily though there were periods of several days in a row. Essentially
OllieReed
in
British Liver Trust
10 years ago
Enlarged Liver
Any advice on whether it's possible to have an enlarged, fatty liver but LFT results to be normal? The main thing that is worrying me is the fact the liver is enlarged which to me means there is some kind of problem going on!!!? If my results come back normal should I still insist on a referral to see
Any advice on whether it's possible to have an enlarged, fatty liver but LFT results to be normal? The main thing that is worrying me is the fact the liver is enlarged which to me means there is some kind of problem going on!!!? If my results come back normal should I still insist on a referral to see
northern_lass
in
British Liver Trust
10 years ago
High GGT (309), normal ultrasound and fibroscan (3.2kPa), other liver functions normal. Any ideas?
Hi, this is my first post here. I am 38 and had a general health check last november, which found high GGT function. I was referred to gastroenterologist, who ordered ultrasound, fibroscan, and more blood tests. Ultrasound and fibroscan were normal. Still haven't received results of blood tests. I
Hi, this is my first post here. I am 38 and had a general health check last november, which found high GGT function. I was referred to gastroenterologist, who ordered ultrasound, fibroscan, and more blood tests. Ultrasound and fibroscan were normal. Still haven't received results of blood tests. I
JECCIE
in
British Liver Trust
10 years ago
Spironolactone and Gynaecomastia in men.
Are there any male contributors that have taken the potassium sparing diuretic Spironolactone for their liver disease and as a consequence suffered as a side effect very sore as well as developing breasts or as is often described 'male boobs' ? I have been taking this medication for several months and
Are there any male contributors that have taken the potassium sparing diuretic Spironolactone for their liver disease and as a consequence suffered as a side effect very sore as well as developing breasts or as is often described 'male boobs' ? I have been taking this medication for several months and
findasolution
in
British Liver Trust
10 years ago
Hi, im a newbee and would like your opinion please, for over 10 years i have had yearly blood sugar, liver and cholesterol tests done and
This is the first time ive ever been called back for a GGT test!! Should i be worried??
This is the first time ive ever been called back for a GGT test!! Should i be worried??
Mamac
in
British Liver Trust
10 years ago
I'm trying to find someone else who has Nodular Regenerative Hyperplasia!
It is an autoimmune condition linked to a primary Immune Condition that I have called Common Variable Immune Deficiency. This liver condition is an autoimmune condition. Very few people have it and it isn't even mentioned on the Liver Trust website and they haven't heard of it!! I would love to be able
It is an autoimmune condition linked to a primary Immune Condition that I have called Common Variable Immune Deficiency. This liver condition is an autoimmune condition. Very few people have it and it isn't even mentioned on the Liver Trust website and they haven't heard of it!! I would love to be able
Heather_May
in
British Liver Trust
10 years ago
Will muscle & joint pain disappear, and to what degree will I feel better after I quit taking Crestor after six years of 10 mg. daily?
In 2008, I was diagnosed with idiopathic
dilated
cardiomyopathy
with an ejection fraction of 17%. I had been taking Crestor for about a year at that time. The Heart Failure Clinic (I was a patient there for the next 3 1/2 years) put me on 5 or 6 heart medications to treat my condition.
In 2008, I was diagnosed with idiopathic
dilated
cardiomyopathy
with an ejection fraction of 17%. I had been taking Crestor for about a year at that time. The Heart Failure Clinic (I was a patient there for the next 3 1/2 years) put me on 5 or 6 heart medications to treat my condition.
worried_muscles
in
Cholesterol Support
11 years ago
Hi, Recently I got diagnosed with fatty liver disease. However I do not drink alcohol, and I am most certainly not over weight.
Doctors and specialist have done test and everything yet still can't work out how this has happened.. Can someone advise me with some options.
Doctors and specialist have done test and everything yet still can't work out how this has happened.. Can someone advise me with some options.
Sophie11
in
British Liver Trust
11 years ago
Ultrasound tomorrow
To check if all my ascites has gone after they drained most of it in April - over 10 litres. Since then I have stopped drinking and followed a low salt diet meticulously. The gastr doc says if I am clear of fluid, I can stop taking the spiro. My stomach is flat, I feel okish...really hope I get a good
To check if all my ascites has gone after they drained most of it in April - over 10 litres. Since then I have stopped drinking and followed a low salt diet meticulously. The gastr doc says if I am clear of fluid, I can stop taking the spiro. My stomach is flat, I feel okish...really hope I get a good
JoJo
in
British Liver Trust
11 years ago
Help Please Advice Needed ASAPxx
Hi I wonder if anybody can give me some advice please. My mother in law has been diagnosed with cirrhosis of the liver. She is an alcoholic however until this week would not admit it. She has spent a long time hiding her illness from the family but this week she was rushed into hospital and things
Hi I wonder if anybody can give me some advice please. My mother in law has been diagnosed with cirrhosis of the liver. She is an alcoholic however until this week would not admit it. She has spent a long time hiding her illness from the family but this week she was rushed into hospital and things
mrsmcd09
in
British Liver Trust
11 years ago
Confused over terminology and advice on diagnosis of ALD
Hi, I recently had a Fibroscan, blood test and consultation privately as a result of my chronic alcohol issue as my GP has not been helpful in supporting or diagnosing as a result of my symptoms even though I present with stigmata of alcohol abuse of Dupuytren's contracture, spider naevi and palmar
Hi, I recently had a Fibroscan, blood test and consultation privately as a result of my chronic alcohol issue as my GP has not been helpful in supporting or diagnosing as a result of my symptoms even though I present with stigmata of alcohol abuse of Dupuytren's contracture, spider naevi and palmar
jellybelly
in
British Liver Trust
11 years ago
Rituximab in Thyroid Associated Orbitopathy (early report)
Very early report on use of rituximab in Thyroid Associated Orbitopathy (also known as Graves' Eye Disease, and various other names). That this approach appears to work is itself of interest. Also, while not wanting to be negative, it might be some time before this approach gets out of Italy and beyond
Very early report on use of rituximab in Thyroid Associated Orbitopathy (also known as Graves' Eye Disease, and various other names). That this approach appears to work is itself of interest. Also, while not wanting to be negative, it might be some time before this approach gets out of Italy and beyond
helvella
Thyroid UK
in
Thyroid UK
11 years ago
Not had a drain but feel I need one as now can not breath, even just sitting down, Who to ask Doc or consultant & advice plz if u had one
I am on furosemide hi dose of Spiro but just getting bigger and bigger must have put on 4st if not more in last 4 weeks. Also do they put you out when having a drain, my son had one but said it was really painful very worried not seeing my consultant till July and my doctor is rubbish, not seen them
I am on furosemide hi dose of Spiro but just getting bigger and bigger must have put on 4st if not more in last 4 weeks. Also do they put you out when having a drain, my son had one but said it was really painful very worried not seeing my consultant till July and my doctor is rubbish, not seen them
Ruby52
in
British Liver Trust
11 years ago
Medical
I have
dilated
cardiomyopathy
and atrial fibrillation . I don't like talking about my illness because I get frustrated.How can you explain you get dizzy while sitting down or in bed.But sometimes you can walk normally and feel good. I am going for an dhss medical soon I am dreading it.
I have
dilated
cardiomyopathy
and atrial fibrillation . I don't like talking about my illness because I get frustrated.How can you explain you get dizzy while sitting down or in bed.But sometimes you can walk normally and feel good. I am going for an dhss medical soon I am dreading it.
kevin123
in
AF Association
11 years ago
PLD
Ive hereditary polycystic liver disease and my liver function tests are way outside the norm. I've stopped drinking alcohol and the last test was better, but I'd hate to think that I can't drink again, even just occasionally ie holidays, birthdays, etc. does anyone have any experience to share and/or
Ive hereditary polycystic liver disease and my liver function tests are way outside the norm. I've stopped drinking alcohol and the last test was better, but I'd hate to think that I can't drink again, even just occasionally ie holidays, birthdays, etc. does anyone have any experience to share and/or
Poppyanne
in
British Liver Trust
11 years ago
It seems ironic that I haver liver disease and never drink alcohol .
I've got fatty liver, and though I've always been teetotaller all my life my weight has mostly been obese. When I diet I've lost 6 stone then it goes back over the years. I'm eating as healthy as I can nowadays, as when I get to a certain point in weight the itching stops on my arms! I'm wondering that
I've got fatty liver, and though I've always been teetotaller all my life my weight has mostly been obese. When I diet I've lost 6 stone then it goes back over the years. I'm eating as healthy as I can nowadays, as when I get to a certain point in weight the itching stops on my arms! I'm wondering that
Bevlinden
in
British Liver Trust
11 years ago
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