Experiences with

Dilated cardiomyopathy

My son has been diagnosed with DCM after cardiogenic shock and mild stroke. He had Covid and was ill for a few months which GP and A&E initially put down to GORD but it was HF. He is recovering and out of hospital but struggling with side effects of medications-can these be tweaked? How long can he

Hi I have dilated cardiomyopathy and a recent increase in my Bisoprolol dose appears to have pushed my anxiety levels through the roof. Has anyone else experienced this problem ? Thanks

Is there anyone like me who has dilated cardiomyopathy and AF?

I’m 39 and was diagnosed with dilated cardiomyopathy at 14. I was not symptomatic when diagnosed but detected because my father had genetic DCM and was in heart failure.i am currently moderate and have a EJ of 41%.

Hi All, So I was diagnosed around April 2018 with dilated cardiomyopathy and continue to have multiple days of chest, around a year ago I was seen in Wythenshaw Manchester Hospital and advised my condition had improved and was able to start sports again etc and which has been great and helped me stay

I have dilated cardiomyopathy but also associated with it, AF and heart failure. I have just been started on Entresto as an alternative to Ramipiril (which I had been on stably for 6 months).

I have also recently been diagnosed with dilated cardiomyopathy which I understand can be caused by liver disease but I do have Atrial Fibrillation. I look forward to receiving information. Kind regards

Years rolled on and since turning 30 myself I've been diagnosed with heart failure, a dilated cardiomyopathy and left ventricular systolic dysfunction. It's been a lonely time in my life. Does anyone have any advice on how I can cope??

Hi All, I was diagnosed with non ischemic dilated cardiomyopathy in October. My ejection fraction was <20. They believe my condition has been caused by chemo and radiotherapy I had in the past. I am a teacher and have not returned to work.

Could the LVNC be from dilated cardiomyopathy or is it a separate defect altogether? Could my intermittent (mild) pains in heart area be caused by it as well as heart palpitations?

The letter said he has now been diagnosed with Dilated Cardiomyopathy and he would get an urgent cardiologist appointment, an MRI, a holter and be started immediately onto heart failure drugs. We were all shell shocked.

I’ve recently been told I have Left Ventricle Non Compaction and I also have the dilated cardiomyopathy gene but no symptoms of that yet. My EF is 52 and consultant not too concerned for now.

I have Dilated Cardiomyopathy. Only symptom was prolonged palpitations. Had them all my life. I’m now 55. I had an ablation November 2023, so far that has helped massively with the palpitations. I get daily ectopics but they don’t affect me at all. They last seconds.

I have Dilated Cardiomyopathy. Only symptom was prolonged palpitations. Had them all my life. I’m now 55. I had an ablation November 2023, so far that has helped massively with the palpitations. I get daily ectopics but they don’t affect me at all. They last seconds.

Iam very early into my journey with Dilated cardiomyopathy and HF at 39 yrs old we already have trips abroad booked, New York in May to celebrate our 40ths and Thailand at Xmas, so this diagnosis is a spanner in the works.

Good morning 🙂 I have non ischaemic dilated cardiomyopathy affecting both ventricles, which has led onto me having heart failure. I regularly have what I would call heart pain or chest discomfort. Usually, as the title says, at night or early morning, whilst in bed. Sometimes in the evening.

Hi, I’m new here and hoping for some advice .My partner who is 50 has just been diagnosed with hf which apparently has been going on for a few years but without symptoms so has come as a complete shock. The doctors are currently trying him on meds and I am wondering if anyone knows if it’s possible

Good morning 🙂 I have non ischaemic dilated cardiomyopathy affecting both ventricles, which has led onto me having heart failure. I regularly have what I would call heart pain or chest discomfort. Usually, as the title says, at night or early morning, whilst in bed. Sometimes in the evening.

My eldest has a very small PDA (patent ductus arteriosus) and a z number of 2.8 and so at the moment the consultant doesn’t want to diagnose him with DCM (dilated cardiomyopathy) and is happy to monitor for now.

Until admitted straight from work with stage 4 heart failure, ( now stage 1) I was a nurse with 45 yrs experience), eventually diagnosed with dilated cardiomyopathy and heart failure EJ 40%.