CF liver disease

[DeaconEllie]

My son has just been diagnosed with CF liver disease and portal vein hypertension. He is only 6 and currently is not showing any outward symptoms. Wondered if anyone else has experience of this in a child so young.

[Hidden]

Hi DeaconEllie, sorry to hear that your son has been diagnosed with liver disease relating to CF, I would definitely recommend reading this childliverdisease.org/Infor...

CLDF know of many children whose liver is also affected as CF sufferers, this can occur at any stage and we know of other families who have had these issues at your son's age. The liver unit your son will be under now or very shortly will be fantastic, please message me if you have any questions or would like us to send an information pack out. Best wishes, David

[babyzuzu in reply to Hidden]

David, can this be avoided by transplant at an earlier age?

[Hidden in reply to babyzuzu]

Hi Babyzuzu, I don't know the answer to this question I am afraid sorry, I would definitely recommend asking your child's liver team.