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Introduction: I'm new here
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Kanjee18
in
Vasculitis UK
2 years ago
Ototoxic drugs
I was scrolling through some old posts looking for something about habituation. But what caught my eye was a post about ototoxic drugs - those medications which may have an adverse effect on T, specifically. Either currently or in the past I’ve been prescribed several of those mentioned and none of these
I was scrolling through some old posts looking for something about habituation. But what caught my eye was a post about ototoxic drugs - those medications which may have an adverse effect on T, specifically. Either currently or in the past I’ve been prescribed several of those mentioned and none of these
Happyrosie
in
Tinnitus UK
2 years ago
Bad taste
I've been on prednisone since last March I have really bad taste and very dry mouth my tongue sometimes painful does anyone else suffer this on prednisone
I've been on prednisone since last March I have really bad taste and very dry mouth my tongue sometimes painful does anyone else suffer this on prednisone
jacquelinebell101
in
PMRGCAuk
3 years ago
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Other experiences of late stage glioblastoma
My husband of thirty years who is a little older than me and in his mid 60s has glioblastoma. He began hospice and palliative care at home in mid-October and they didn’t think he would make Christmas. He has done really well but I am exhausted. The cancer is definitely taking hold of him now. He sleeps
My husband of thirty years who is a little older than me and in his mid 60s has glioblastoma. He began hospice and palliative care at home in mid-October and they didn’t think he would make Christmas. He has done really well but I am exhausted. The cancer is definitely taking hold of him now. He sleeps
Endstage
in
Glioblastoma Support
2 years ago
Practical Advice for PWP. Teeth Grinding
Alot of us folks that have pd grind our teeth especially at night, often without realizing it. You might wake up with an unusually sore jaw etc. What i do is buy an otc mouth gaurd found in grocery stores otc med sections. They are 10$ and you can mold it to your mouth. These are, imo, a much better
Alot of us folks that have pd grind our teeth especially at night, often without realizing it. You might wake up with an unusually sore jaw etc. What i do is buy an otc mouth gaurd found in grocery stores otc med sections. They are 10$ and you can mold it to your mouth. These are, imo, a much better
beehive23
in
Cure Parkinson's
3 years ago
Diverticular disease, IBD or IBS?
I have diverticular disease but for the past year or so I have this pattern where I wake up in the morning have three decent bowel movements and the urgency continues all day long. This is daily and doesn't stop and of course I get tenesmus and rectal pain to boot. My stools are long and on the thin
I have diverticular disease but for the past year or so I have this pattern where I wake up in the morning have three decent bowel movements and the urgency continues all day long. This is daily and doesn't stop and of course I get tenesmus and rectal pain to boot. My stools are long and on the thin
Angrybelly
in
IBS Network
3 years ago
At a Dialysis Crossroads
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal dialysis. I spent a couple of hours in a center talking to a couple of nurses about peritoneal dialysis and it sounds like a bad choice given its near constant presence in your life. With hemodialysis
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal dialysis. I spent a couple of hours in a center talking to a couple of nurses about peritoneal dialysis and it sounds like a bad choice given its near constant presence in your life. With hemodialysis
MP11
in
Kidney Dialysis
2 years ago
Rectal prolapse and pudendal nerve pain
I am new to this, I have a suspected mucosal prolapse (similar to rectal prolapse) in my bottom. The symptoms are horrible - a feeling of pressure inside my bottom and pudendal nerve pain all around my bottom. I am waiting for an ‘examination under anaesthetic’ for a confirmed diagnosis but in the meantime
I am new to this, I have a suspected mucosal prolapse (similar to rectal prolapse) in my bottom. The symptoms are horrible - a feeling of pressure inside my bottom and pudendal nerve pain all around my bottom. I am waiting for an ‘examination under anaesthetic’ for a confirmed diagnosis but in the meantime
Beautifultrees
in
Pelvic Pain Support Network
2 years ago
Why are my gums hurting?
The gum under one of my bottom front teeth is painful. I also have cuts on the sides of my mouth and front which are painful. Does anyone know why this is?
The gum under one of my bottom front teeth is painful. I also have cuts on the sides of my mouth and front which are painful. Does anyone know why this is?
Billybobbins
in
BASHH
3 years ago
Macular oedema and steroids
I have diabetic macular oedema and my opthamologist said today that although my eyes are not getting any worse my right eye maybe needs some laser. She said she thought it wasn’t the diabetes that was the problem, I am in remission with a hba1c of 37 but the steroids. Any thoughts on this please. My
I have diabetic macular oedema and my opthamologist said today that although my eyes are not getting any worse my right eye maybe needs some laser. She said she thought it wasn’t the diabetes that was the problem, I am in remission with a hba1c of 37 but the steroids. Any thoughts on this please. My
Koalajane
in
PMRGCAuk
2 years ago
update....
hi all. has been a week since my initial post. thanks again for all the helpful and supportive ideas. i now have 2 weeks until my 'in person' appt with my onc. she is near impossible to get on the phone. but i will definitely devote my appt to discussing palliative care. and the new mets to my
hi all. has been a week since my initial post. thanks again for all the helpful and supportive ideas. i now have 2 weeks until my 'in person' appt with my onc. she is near impossible to get on the phone. but i will definitely devote my appt to discussing palliative care. and the new mets to my
kokopelli2017
in
SHARE Metastatic Breast Cancer
3 years ago
Lip biopsy
I would pose this question on the Sjogren’s forums but have not had much luck getting replies there and know many of you will have had this procedure done as part of your AI journeys, so hope you don’t mind if I pose it here. That’s a Louis Theroux documentary we need to see: AI journeys. My ENT doc
I would pose this question on the Sjogren’s forums but have not had much luck getting replies there and know many of you will have had this procedure done as part of your AI journeys, so hope you don’t mind if I pose it here. That’s a Louis Theroux documentary we need to see: AI journeys. My ENT doc
HowNowWhatNow
in
Thyroid UK
2 years ago
Lamictal & dental treatment
I am new here so please do bear with me. I'm starting much needed dental as my teeth are crumbling & falling out. I've been on Lamictal since my first seizure in 2013 and now on 500mg (300am/200pm) Concerned about local used to freeze - There is data everywhere but only for GA. I'm having trouble
I am new here so please do bear with me. I'm starting much needed dental as my teeth are crumbling & falling out. I've been on Lamictal since my first seizure in 2013 and now on 500mg (300am/200pm) Concerned about local used to freeze - There is data everywhere but only for GA. I'm having trouble
Alsoginger
in
Epilepsy Action
3 years ago
Tacrolimus?
Hi guys, Can anyone tell me if 14mg of tacrolimus everyday after 3 months post transplant is normal? I know from other consultants that I have slight rejection. I have 1 consultant who will not give me an answer to "what are my blood results". He says everything is fine and there is nothing to worry
Hi guys, Can anyone tell me if 14mg of tacrolimus everyday after 3 months post transplant is normal? I know from other consultants that I have slight rejection. I have 1 consultant who will not give me an answer to "what are my blood results". He says everything is fine and there is nothing to worry
Zukosmile07
in
British Liver Trust
2 years ago
Trying to cope…
In October 2021, my dad was diagnosed with a terminal Glioblastoma. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care. I’
In October 2021, my dad was diagnosed with a terminal Glioblastoma. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care. I’
Shanice1997
in
Glioblastoma Support
3 years ago
At Israel’s Sheba, 40-Second Eye Exams Could Detect COVID-19
by Sharon Wrobel Researchers at Israel’s Sheba Medical Center have teamed up with AdOM Advanced Optical Technologies, an ophthalmic medical device company, to study whether the surface of the eye can reveal a COVID-19 infection. Israel’s largest medical center said that the study will be conducted
by Sharon Wrobel Researchers at Israel’s Sheba Medical Center have teamed up with AdOM Advanced Optical Technologies, an ophthalmic medical device company, to study whether the surface of the eye can reveal a COVID-19 infection. Israel’s largest medical center said that the study will be conducted
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Monthly thrush ruining my life
Hi all. Long story short I have been getting recurrent thrush for 4 years, ever since I lost my virginity to my current partner. We have both been treated and I have even done long term courses of fluconazole (150mg a week for 6 months) this keeps the thrush away but 6 months after the last tablet it
Hi all. Long story short I have been getting recurrent thrush for 4 years, ever since I lost my virginity to my current partner. We have both been treated and I have even done long term courses of fluconazole (150mg a week for 6 months) this keeps the thrush away but 6 months after the last tablet it
maddie818
in
Women's Health
3 years ago
thanks to all....and curious about palliative care?
thanks so much to all of you for your thoughtful and caring replies. you are an amazing group of women, but i already knew that! yesterday i gave an overview...a lengthy one at that...lol. today i will be more specific.... the deterioration of my spine is progressing rapidly the past couple months.
thanks so much to all of you for your thoughtful and caring replies. you are an amazing group of women, but i already knew that! yesterday i gave an overview...a lengthy one at that...lol. today i will be more specific.... the deterioration of my spine is progressing rapidly the past couple months.
kokopelli2017
in
SHARE Metastatic Breast Cancer
3 years ago
Rock on Cabazitaxel!!
Dx 18 months ago, becoming mCRPC after only 6 months on ADT, failing abiraterone , failing docetaxel and failing Lu 177 my husband was running out of options. He was in a lot of pain with a soaring PSA - things were looking grim. We had our first visit from the palliative care team two weeks ago. We
Dx 18 months ago, becoming mCRPC after only 6 months on ADT, failing abiraterone , failing docetaxel and failing Lu 177 my husband was running out of options. He was in a lot of pain with a soaring PSA - things were looking grim. We had our first visit from the palliative care team two weeks ago. We
Crummy64
in
Advanced Prostate Cancer
3 years ago
L-tryptophan or 5-HTP
If I wean myself off 7.5mg of Mirtazapine ,I am wondering if l-tryptophan or 5 -HTP would be an effective substitute ? If so ,which one is preferable please and what would a characteristic dosage ? How long until one would see an improvement in sleep patterns? Thanks Peter
If I wean myself off 7.5mg of Mirtazapine ,I am wondering if l-tryptophan or 5 -HTP would be an effective substitute ? If so ,which one is preferable please and what would a characteristic dosage ? How long until one would see an improvement in sleep patterns? Thanks Peter
DR650SE
in
British Tinnitus Association
3 years ago
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