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Help with Gut
I was diagnosed nearly 5 years ago. I have had diahorrea for 2 1/2yrs so lost 13kgs. I have been to Gastrologist, had 2 colonoscopies, diagnosed with colitis, on gluten free diet, tried strict fodmap diet, been on Budesonide (steroids) almost continuously for 2 yrs and still having trouble. Recently
I was diagnosed nearly 5 years ago. I have had diahorrea for 2 1/2yrs so lost 13kgs. I have been to Gastrologist, had 2 colonoscopies, diagnosed with colitis, on gluten free diet, tried strict fodmap diet, been on Budesonide (steroids) almost continuously for 2 yrs and still having trouble. Recently
Psalmody
in
Cure Parkinson's
2 years ago
Where could I get a genetic test done for B12 non absorption please?
I am coeliac but have been oob a strict gluten free diet for years. But although blood tests for B12 come back normal or sometimes over normal, I have the symptoms of low b12. I already have the Gio2 gene from both parents. Also another one from each that makes me prone to certain cancers. So I wonder
I am coeliac but have been oob a strict gluten free diet for years. But although blood tests for B12 come back normal or sometimes over normal, I have the symptoms of low b12. I already have the Gio2 gene from both parents. Also another one from each that makes me prone to certain cancers. So I wonder
Everdean
in
Pernicious Anaemia Society
2 years ago
Hello It has come to my notice that I may be low in vitamin b12.
I have struggled with chronic fatigue, thyroid problems and tingling in arms hands legs and feet for years. I am also experiencing dizziness and palpatations. I am also coeliac. I have had many blood tests that come back " normal " or even quite high. Recently had COVID and diagnosed as having " long
I have struggled with chronic fatigue, thyroid problems and tingling in arms hands legs and feet for years. I am also experiencing dizziness and palpatations. I am also coeliac. I have had many blood tests that come back " normal " or even quite high. Recently had COVID and diagnosed as having " long
Everdean
in
Pernicious Anaemia Society
2 years ago
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Contraception pill (mini pill) and gluten free diet for endometriosis.
Hi Ladies. Back in November 2021 I was diagnosed with endometriosis through laparscorpy surgery cyst was 8cm on my left ovary and another one on my rectum. On Tuesday the 26th of April I had ultrasound scan to check my ovaries, womb, fallopian tubes etc. The hospital has found that after 5 months of
Hi Ladies. Back in November 2021 I was diagnosed with endometriosis through laparscorpy surgery cyst was 8cm on my left ovary and another one on my rectum. On Tuesday the 26th of April I had ultrasound scan to check my ovaries, womb, fallopian tubes etc. The hospital has found that after 5 months of
Cockapoo-2016
in
Endometriosis UK
2 years ago
Proceedings of the Ninth Annual Deep Brain Stimulation Think Tank
Proceedings of the Ninth Annual Deep Brain Stimulation Think Tank: Advances in Cutting Edge Technologies, Artificial Intelligence, Neuromodulation, Neuroethics, Pain, Interventional Psychiatry, Epilepsy, and Traumatic Brain Injury https://www.frontiersin.org/articles/10.3389/fnhum.2022.813387/full?&
Proceedings of the Ninth Annual Deep Brain Stimulation Think Tank: Advances in Cutting Edge Technologies, Artificial Intelligence, Neuromodulation, Neuroethics, Pain, Interventional Psychiatry, Epilepsy, and Traumatic Brain Injury https://www.frontiersin.org/articles/10.3389/fnhum.2022.813387/full?&
Hidden
in
Cure Parkinson's
2 years ago
Some neurologists are Concerned about the negative impact of FUS on DBS Trials
Effect of Public Interest in Magnetic Resonance Imaging-Guided Focused Ultrasound on Enrolment for Deep Brain Stimulation https://pubmed.ncbi.nlm.nih.gov/35234316/
Effect of Public Interest in Magnetic Resonance Imaging-Guided Focused Ultrasound on Enrolment for Deep Brain Stimulation https://pubmed.ncbi.nlm.nih.gov/35234316/
Farooqji
in
Cure Parkinson's
2 years ago
Levadopa
208 years and still NO medicine that stops or improves Parkinson.. Levadopa discovered in 1910 used in 1960's for Parkinson. I'm impressed that researchers can keep a dangerous drug like levodopa as the leading treatment for Parkinson's for so long!!! when it does not even cure Parkinson's and after
208 years and still NO medicine that stops or improves Parkinson.. Levadopa discovered in 1910 used in 1960's for Parkinson. I'm impressed that researchers can keep a dangerous drug like levodopa as the leading treatment for Parkinson's for so long!!! when it does not even cure Parkinson's and after
Curious_Fred
in
Cure Parkinson's
2 years ago
Blood test
Hi just looking for some advice. I had my blood test last thursday at 10.50am and I had taken my thyroxine around 8am. I just had a call from Gp reception and told the GP wants to reduce my thyroxine from 125mcg to 100mcg. My TSH level is 0.06 and free thyroxine is 26, I have asked for a copy of results
Hi just looking for some advice. I had my blood test last thursday at 10.50am and I had taken my thyroxine around 8am. I just had a call from Gp reception and told the GP wants to reduce my thyroxine from 125mcg to 100mcg. My TSH level is 0.06 and free thyroxine is 26, I have asked for a copy of results
Hidden
in
Thyroid UK
2 years ago
Paralysed man walks again thanks to electrodes in his spine
Maybe some of you saw this already. [i]The title says it all:[/i]
[u]Paralysed man walks again thanks to electrodes in his spine[/u]
. https://www.theguardian.com/science/2022/feb/07/paralysed-man-walks-again-thanks-to-electrodes-in-his-spine "[i]A man who was paralysed in a motorcycle accident
Maybe some of you saw this already. [i]The title says it all:[/i]
[u]Paralysed man walks again thanks to electrodes in his spine[/u]
. https://www.theguardian.com/science/2022/feb/07/paralysed-man-walks-again-thanks-to-electrodes-in-his-spine "[i]A man who was paralysed in a motorcycle accident
monkeybus
in
AMN EASIER
2 years ago
Which Levothyroxine Brand?
Hi all, Finally getting somewhere after going round in circles for months, I now have a prescription for Levo. Is there a brand better suited for people with Cow's Milk intolerance? Do you know whether the lactose in some brands would affect me, or likely to be ok given lactose is the sugar rather the
Hi all, Finally getting somewhere after going round in circles for months, I now have a prescription for Levo. Is there a brand better suited for people with Cow's Milk intolerance? Do you know whether the lactose in some brands would affect me, or likely to be ok given lactose is the sugar rather the
Chasing-rainbows
in
Thyroid UK
2 years ago
ETTERUS, VIVACE 1017 AND HIDDEN. HOW ARE YOU FEELING, SEVEN OR EIGHT YEARS POST DBS SURGERY?
Hi Etterus, you a retired PT had DBS done at a hospital in Oregon Portland, according to your post 7 years ago, you were very satisfied with the outcome of your procedure. So far, are there any trade off or side effects now? How is your balance now? I know you are a none tremor dominant pwp. @ VIVACE1017
Hi Etterus, you a retired PT had DBS done at a hospital in Oregon Portland, according to your post 7 years ago, you were very satisfied with the outcome of your procedure. So far, are there any trade off or side effects now? How is your balance now? I know you are a none tremor dominant pwp. @ VIVACE1017
OREOLU
in
Cure Parkinson's
2 years ago
Management of Parkinson's Disease?
In this Neuro Support Group on 1/19/22, Dr. Ryan Kochanski discussed the use of Asleep MRI-Guided Deep Brain Stimulation to help manage certain symptoms of Parkinson's Disease. Ryan Kochanski, MD is a neurosurgeon with Methodist Physicians | Neurology Specialists in San Antonio, Texas. Dr. Kochanski
In this Neuro Support Group on 1/19/22, Dr. Ryan Kochanski discussed the use of Asleep MRI-Guided Deep Brain Stimulation to help manage certain symptoms of Parkinson's Disease. Ryan Kochanski, MD is a neurosurgeon with Methodist Physicians | Neurology Specialists in San Antonio, Texas. Dr. Kochanski
Farooqji
in
Cure Parkinson's
2 years ago
Shock, upset and flare up of hashimotos thyroiditis
I wondered if anyone is kindly able to offer advice please. I recently lost my dad suddenly a month ago. I was able to carry on working for a 3 weeks, though I was upset, I was able to physically work. However last week because it was his funeral I went downhill on the Monday suffering with an enormous
I wondered if anyone is kindly able to offer advice please. I recently lost my dad suddenly a month ago. I was able to carry on working for a 3 weeks, though I was upset, I was able to physically work. However last week because it was his funeral I went downhill on the Monday suffering with an enormous
alibongo
in
Thyroid UK
2 years ago
Memory worsening
I have recently increased my dose from 25/50 alternate days to 50 every day. My memory is worsening. I completely forgot my husband’s birthday today although I know I remembered it a few days back. I was writing my Dads birthday card last week and wrote To and then couldn’t remember what I was doing.
I have recently increased my dose from 25/50 alternate days to 50 every day. My memory is worsening. I completely forgot my husband’s birthday today although I know I remembered it a few days back. I was writing my Dads birthday card last week and wrote To and then couldn’t remember what I was doing.
Mst27
in
Thyroid UK
2 years ago
Private GP? Can they help?
Hi all, I have ordered a private blood tests this morning thanks to this group. Long story short I’m on 75mg of LEVO and have been for 6 years. I have been working with a PT on a calorie controlled gluten free diet for over 6 weeks with little results. The PT suggested I looked into T3 conversation
Hi all, I have ordered a private blood tests this morning thanks to this group. Long story short I’m on 75mg of LEVO and have been for 6 years. I have been working with a PT on a calorie controlled gluten free diet for over 6 weeks with little results. The PT suggested I looked into T3 conversation
Staceoglasgow
in
Thyroid UK
2 years ago
Online presentation from Dr Vicky Marshall discussing advances in Deep Brain Stimulation; Wednesday 26 January, from 2 - 3.30pm
The Greater Glasgow Research Interest Group have an online presentation from Dr Vicky Marshall @INSNeurosurgery discussing advances in Deep Brain Stimulation (DBS) for #Parkinsons; Wednesday 26 January, from 2 - 3.30pm https://parkinsons-org-uk.zoom.us/meeting/register/tJ0vcuyoqD4rGNT0RggD3Kd6CXwanITYaUyS
The Greater Glasgow Research Interest Group have an online presentation from Dr Vicky Marshall @INSNeurosurgery discussing advances in Deep Brain Stimulation (DBS) for #Parkinsons; Wednesday 26 January, from 2 - 3.30pm https://parkinsons-org-uk.zoom.us/meeting/register/tJ0vcuyoqD4rGNT0RggD3Kd6CXwanITYaUyS
Hidden
in
Cure Parkinson's
3 years ago
Supplement timing
Hey just wanted to check in on timing the following supplements and if you would add any others in or increase the amount. I take 150mg of Levothyroxine in the morning an hour before anything but water. I eat a gluten free diet and am careful about cross contamination. Sadly disnt get tested before
Hey just wanted to check in on timing the following supplements and if you would add any others in or increase the amount. I take 150mg of Levothyroxine in the morning an hour before anything but water. I eat a gluten free diet and am careful about cross contamination. Sadly disnt get tested before
Flowerpot108
in
Thyroid UK
2 years ago
Advice
Hi I wanted to asked some advice about how I have been over last few days. Do all this stated for me end of November 2021, I have tried to eliminate certain foods and I thought it may be wheat. I have therefore been eating a gluten free diet for a week now and OMG I have had the worst weekend. My
Hi I wanted to asked some advice about how I have been over last few days. Do all this stated for me end of November 2021, I have tried to eliminate certain foods and I thought it may be wheat. I have therefore been eating a gluten free diet for a week now and OMG I have had the worst weekend. My
Bassem1979
in
IBS Network
2 years ago
8 year old celiac disease
Hi everyone, Im new here. Just wondering if anyone has any tips regarding children with gluten free diets. I have the worlds fussiest child who has just turned 8 years old. Day after he turned 8 hes been diagnosed with celiac disease. So ive changed the obvious staples like bread to gluten free but
Hi everyone, Im new here. Just wondering if anyone has any tips regarding children with gluten free diets. I have the worlds fussiest child who has just turned 8 years old. Day after he turned 8 hes been diagnosed with celiac disease. So ive changed the obvious staples like bread to gluten free but
Laur1990
in
Gluten Free Guerrillas
2 years ago
Medichecks results
Good morning everyone These are my latest results from Medichecks from last week I followed guidance from here with regard to blood being drawn before 9am nothing to eat or drink before hand and last dose of thyroxine 24 hours before test .Also stopped Thorne Basic B complex 7 days before test. I am
Good morning everyone These are my latest results from Medichecks from last week I followed guidance from here with regard to blood being drawn before 9am nothing to eat or drink before hand and last dose of thyroxine 24 hours before test .Also stopped Thorne Basic B complex 7 days before test. I am
Starmen
in
Thyroid UK
2 years ago
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